Monday, January 17

Quick update.

Regina had audiology evaluation today. Her hearing is getting worse. Her hearing loss is rated moderate. Not the news I wanted to hear but I was ready to take whatever comes. I have noticed that she does not hear as well as before and she asks huh, what, more often.
Her speach went very well. She has little trouble with th sounds but that is ok. She does not know how to for her thong to make it sound righ.

Tomorrow we have no apointments

Wednesday- MRI
Thursday- Spinal Tap.

And maybe end of the week her line will be removed -;)

3 comments:

Kathy said...

The hearing loss--

Is it high frequency only, or is the loss extending to the middle frequencies also?

When it got worse, did it get worse in the high frequency range only, or did the range of loss increase?

If the loss is staying in the high frequency range only, that's not so bad. It is unlikely (although not impossible) that it will get any worse from this point on.

The amifostine is supposed to help with this, but unfortunately it doesn't always prevent the loss.

We notice it with Steven. If I whisper in his hear, he doesn't hear it too well, not because of the volume but because of the high frequency loss.

I hope Regina gets to have her line out. I don't know exactly why, but every single patient that I know of on this trial was initially told they had to keep their line, but in the end most of them ended up getting it out.

Wishing you good luck the rest of the week, and maybe they'll release you on Friday??

Also, check out our weather. We finally got that great weather we were all hoping for:

http://sd7day.notlong.com

Queen D said...

It is High frequency only and I was told that if we don't protect her ears from loud sounds , with time it may get worse. Right now she seems to be doing pretty well. It depends how much attention she is paying to that person who talks to her.

Anonymous said...

Hello ladies. I am glad to hear that everything is going well. I bet you just can not wait for the line to come put. Hope all goes well.
Love Jaci and Camble
www.caringbridge.org/il/.camble