Update--- Bummer,,, I am telling you. I have giant Latino curse laying over my head. WE are back in same room 430 B with 2 other families. I WAS told that they will not do such thing when counts are low and person has fever, but I guess, we do not qualify for 2 person room for some weird reason. EVERYBODY else form our room gets moved away to 2 family rooms... Not sure why they can't do this to us??? Regina still has 38.3 fever.
And question how many times I have donated blood here- answer is 0. I have couple of health problems and my blood is not good quality blood.
Regina In ER ( and my "chair bed" next to Reginas bed)
yes, last night around 1.30 we ended up in CHLA ER. Regina had 38.4 fever and we just took her to ER. Since hospital is over crowded with children , there were no available beds on oncology floor, so Regina and I had to spend in ER room. OK guys, now I want you to all feel bad at me... I HAD TO sleep sitting up!!!!!! Because there were no sleeping beds in room..( enough about me)
Since Regina had fever when we got there, they threw her labs, she is on 2 different antibiotics, and her mouth hurts, which may mean 2 things- she may have tooth pain, or she is starting to get mouth sores ( common thing with her). If she has a tooth pain- Poor Regina , I feel her pain, if she has mouth sores, she will probably refuse food soon. :( She has all ready lost one pound in hospital.:(
Today, if they get a room we can move away from ER, but we were told that sometimes people stay to ER couple of days, before there area available beds. ( OK guys, NOW I miss ST JUDE, Terribly..
Also, for my surprise Regina was never hooked up with monitors that monitor her heart rate, oxygen levels, pulse, etc. They take her temp, feed her bottles of tylenol and pat on the sholder- FEEL BETTER... I am telling you people- We are spoiled when it comes to hospitals, and I am not used this kind of treatment. ALso, it drives me nuts when nurses start talking to me in Spanish. We live in AMErICA people, what happened to ENGLISH???(Yes, I am frustrated./ And with that said----- Puedo tener un jarra de cervesa por favor
I just hope that whatever Infection Regina is fighting right now, leaves her body and causes no serious damage. Her counts are still very LOW. ANC is 0. Platelets are up since she got platelet transfusion yesterday..
PEOPLE. Come to CHLA and donate blood and platelets. Reginas blood type is B positive. That is how you can help Regina and other kids who need blood products.