Regina woke up with her ANC being 200!! WOHOOOOO!. From here everythins HAS to go for better. Let's leave all the trouble and sorrow into year 2004, and lets start new with 2005!!!!!! I really hope next year will be better for us and all the other parents who are here in St jude.
Last night we had little toilet accident in our room. lol. Regina wanted to go to potty around 4 AM. After she was done I had to flush. But water kept coming and coming and coming and did not stop. I told the nurses , they contacted maintance team and finally they fixed the problem. But the water flushing sound was toooooooo loud- it sounded like Niagra Falls. lol It was loud.
My teeth are still huring - no meds help, and I look like lilttle chipmunk with my swollen cheek. lol I can not wait till 6th of January, so they can pull my trouble out. And then I have to be in more pain for at least when pain is gone. I have no Idea what I just sayed, but it sounded logical.
I wish all of you Happy New Year.
PLEASE, sign our guestbook. I know that daily I have around 36 unique visitors, but I never hear from you. Just drop a note that you stepped buy and wished us Happy new year ;) . :) We Really, really want to hear from you :) ( now I am forcing you to do so)
Friday, December 31
Thursday, December 30
It was little better today. :)
Todays tests came back negative- no more infection in her line. :) But she still has to be on antibiotics another 10-12 days :) She is not eating almost anything at all. We tryed to reduce the amount of TPN she is getting, but she still shows no signs of hunger. She looks very tired and stressed. Different Regina . She is still very moody and angry most of the time and smiles only when she makes a joke or thinks what she says is funny.
Nick is in china now. I want to tell you what he did today :) He read about one woman whose daughter has Leukemia( in China), but she does not have money to get her daughter treatment. After reading that he contacted her and sent her money. I almost started crying when he told me that. ( don't tell him). THank you honey for helping other :)
About me- I went to see Dentist. Next week 3 of my wisdom teeth has to be pulled. No fun, but I can not take this pain anymore. It is horrible. No painkillers have helped so far. I got prescription for new ones, but I doubt that there will work. Well see.
Nick is in china now. I want to tell you what he did today :) He read about one woman whose daughter has Leukemia( in China), but she does not have money to get her daughter treatment. After reading that he contacted her and sent her money. I almost started crying when he told me that. ( don't tell him). THank you honey for helping other :)
About me- I went to see Dentist. Next week 3 of my wisdom teeth has to be pulled. No fun, but I can not take this pain anymore. It is horrible. No painkillers have helped so far. I got prescription for new ones, but I doubt that there will work. Well see.
Wednesday, December 29
Wednesday update.
All I really know at this point is that Regina is doing somewhat better and fever has not returned. And I know that we will be spending New Years Even in the hospital also.
She is still on 3 kinds of antibiotics and all those meds make her tummy feel not soo good. Last night she woke up every hour to go to the bathroom. Not much sleep .
Today Doctor Yusuf game by - and let me mention that I have seen him most during this week that I had seen him within her 4 Chemo months. He gives me latest updates and what they are going to do next. Now they are working on finding out what kind of infection is it.
Doc Renee mentioned to my sister that It is really good thing that I acted fast. Because If I had waited with her fever one more hour or so, the infection may have started spreading all over her body, and make things 100 times harder, but they got it while infection was still spreading its wings in her line. SO Jey to me!!!
Regina acts very mean most of the time. Her favorite Nurse practitioner is miss Katie. She tells me that every single day, but every time miss Katie comes over she just hides her face from her and tells her to leave her alone( kind off). Every time miss Katie leaves she draws her picture or card, but when It is time to give it to here- she has to hide again.
I so wish I knew what is going on in her growing brain. I want to help her , but she just closes down and stops talking to me when I ask if it hurts somewhere or how she feels. I don't like the fact that she keeps everything inside. Maybe tomorrow is better day. Maybe she will smile tomorrow. :)
She is still on 3 kinds of antibiotics and all those meds make her tummy feel not soo good. Last night she woke up every hour to go to the bathroom. Not much sleep .
Today Doctor Yusuf game by - and let me mention that I have seen him most during this week that I had seen him within her 4 Chemo months. He gives me latest updates and what they are going to do next. Now they are working on finding out what kind of infection is it.
Doc Renee mentioned to my sister that It is really good thing that I acted fast. Because If I had waited with her fever one more hour or so, the infection may have started spreading all over her body, and make things 100 times harder, but they got it while infection was still spreading its wings in her line. SO Jey to me!!!
Regina acts very mean most of the time. Her favorite Nurse practitioner is miss Katie. She tells me that every single day, but every time miss Katie comes over she just hides her face from her and tells her to leave her alone( kind off). Every time miss Katie leaves she draws her picture or card, but when It is time to give it to here- she has to hide again.
I so wish I knew what is going on in her growing brain. I want to help her , but she just closes down and stops talking to me when I ask if it hurts somewhere or how she feels. I don't like the fact that she keeps everything inside. Maybe tomorrow is better day. Maybe she will smile tomorrow. :)
Tuesday, December 28
Happy Anniversary to us.
Today December 28th, is our 6th wedding anniversary. This is our first anniversary apart. My dh is flying to China to his brothers wedding :)
Urgent- REgina neeeds well wishes!!!
Yesterday( Monday morning), 6 am Regina wanted to go to the restroom. I picked her up and took her there. She felt extremely hot. I took her temp and it was 40,1. ( high). I tryed to call to the hospital but nobody picked up the phone. So I called nick and we took her to St Jude.
For now I know it is line infection and her line has to be pulled( that what I was told today). They are taking her blood every 4 hours to make sure she is ok.
Since we went to the hospital to early yesterday, there were no Doctors who could help us. They finally found Doc on call. ( hour later). Then doctor Yusuf arrived and did the best he could. Reginas blood pressure was suddenly too high and then drop to really , really low. ( within one minute) .I was scared and out of my mind. Then she started having chills . And those chilles looked like she had a seizure, she was shaking uncontrollably. Finally chills stopped and she started feeling hot. It lasted for about 2 hours. Finally medicine started kicking in and she felt somewhat better.
About 4 pm her temp was gone and she felt much better. Now she is on 3 different antibiotics, and extra potassium and magnesium. She is also on antinausea meds.
Her fever has not returned today and let hope that it will never return. Now we are waiting her counts to recover.
For now I know it is line infection and her line has to be pulled( that what I was told today). They are taking her blood every 4 hours to make sure she is ok.
Since we went to the hospital to early yesterday, there were no Doctors who could help us. They finally found Doc on call. ( hour later). Then doctor Yusuf arrived and did the best he could. Reginas blood pressure was suddenly too high and then drop to really , really low. ( within one minute) .I was scared and out of my mind. Then she started having chills . And those chilles looked like she had a seizure, she was shaking uncontrollably. Finally chills stopped and she started feeling hot. It lasted for about 2 hours. Finally medicine started kicking in and she felt somewhat better.
About 4 pm her temp was gone and she felt much better. Now she is on 3 different antibiotics, and extra potassium and magnesium. She is also on antinausea meds.
Her fever has not returned today and let hope that it will never return. Now we are waiting her counts to recover.
Saturday, December 25
Merry Christmas- NOT
What a day and it is not over yet. Today started with assesement and triage, then she got her G shot and while she received her G shot her labs came back. She needed blood and platelets. No problem + 3 extra hours in Medicine room. She got her platelets and when infusion was complete , she got itchy all over. I forgot to mention that she got premeds, but this time they where not working.
Suddenly she started coughing, and slowly her vomiting turned pink, and then brown. SHe was vomiting blood. In a split second the whole room was filled with nurses and doctors. She got nebuliser treatment( for her congested treatment). ANd since she just got her platelets doctor was not concerned her vomiting blood, because usually when platelets are low bleeding occurs.
Her blood was ready, but since she got bad reaction to platelets, it was taken back to lab and they have to give her new , special blood. So today , instead of spending our night with family, we spend our day and night with our St Jude family. Blood has not arrived yet, so I guess we get out of here around 8o'clock.
Regina is feeling much petter now than before. SHe is not throwing up and her breating has cleared up and her heartrate is back to normal.
My back hurts and I am hungry. :(
UPDATE-Finally, around 6.30pm she got her blood and she is receiving it now. Nick is with Regina now.
Suddenly she started coughing, and slowly her vomiting turned pink, and then brown. SHe was vomiting blood. In a split second the whole room was filled with nurses and doctors. She got nebuliser treatment( for her congested treatment). ANd since she just got her platelets doctor was not concerned her vomiting blood, because usually when platelets are low bleeding occurs.
Her blood was ready, but since she got bad reaction to platelets, it was taken back to lab and they have to give her new , special blood. So today , instead of spending our night with family, we spend our day and night with our St Jude family. Blood has not arrived yet, so I guess we get out of here around 8o'clock.
Regina is feeling much petter now than before. SHe is not throwing up and her breating has cleared up and her heartrate is back to normal.
My back hurts and I am hungry. :(
UPDATE-Finally, around 6.30pm she got her blood and she is receiving it now. Nick is with Regina now.
Friday, December 24
Thursday, December 23
HO, ho ho and Merry Chistmas. :)
OMG, and it is again this time of year. Presents, people being nice to each other and smiling and pretending they like each other ,but really all they think is maybe behaving this way we get more good stuff.
Anyway. We are doing ok. Not the best day in Reginas life. She threw up constantly today. Nothing seemed to be working. She got her ondensatron, adavan and again- ondensatron. I finally called to St Jude and doc. on call sayed that it is good idea to get her to bed, because then everything will stop. AND he was right. One hour no vomiting. She fell asleep listening her favorite Kids Pop 6 CD. SHe knows all those songs by heart. Before she fell asleep she was singing out loud. My sweet Pop princess.
It is really quiet here now. Kids are sleeping. I am eating Asiago and drinking red Zinfadel. No husband and sister around. I told them to get out of here or I will explode. lol
But Really, I asked them to go clubbing. So now they went off to find a club that is open. Ihope they have fun. I was no mood for fun tonight. I want to keep closer eye on Regina incase she starts vomiting again.
Her counts are doing really well. Usually when she was released from St Jude her ANC was 300, but today it was 5000. Yesterday it was 1800. So weird. Her hemoglobin was 8,2 and platelets 45000. I dont understand why she is so weak and moody and not active at all. I think that she is fighting with that viral infection , and the medicine she gets in the medicine room makes her really sick.
About weather here. It is icy cold and roads are slippery. I really like my 3 weel drive. I love, love , love driving in this kind of conditions. I get this adrenalin rush when I brake and car really does not stop right away because it is so slippery. It takes a little to make me happy :)
I hope you all have safe and Merry Christmas :)
Our Christmas dinner menu
Extra smokey ham
Sourcraut, barley and bacon dish
Estonian Potato salad- I tryed hard to get it to taste the way It tasted in Estonia
Tomato, cucumber salad with sourcream dressing
Apple bread
Cinnamon rolls
Gingersnap cookies
Glogg
REd wine
Holiday spice Pepsi
Boiled potatoes( Very healthy!!!)
Homemade gravy
Sausages and mac and cheese for kids, or whatever they feel like eating if they dont like homemade dinner cooked from scratch.
And maybe I make something more.
Hey you all!!! If you feel like joinging us tomorrow around 6pm, be our guest. Just take a holiday dish with you ( room 518, Target II) and lets have Merry Chistmas party!!!
More than Marrier:) All our St Jude friends are welcome.
You can call me (949) 290 6959 ( cell)
or Room (901)545 0145
Anyway. We are doing ok. Not the best day in Reginas life. She threw up constantly today. Nothing seemed to be working. She got her ondensatron, adavan and again- ondensatron. I finally called to St Jude and doc. on call sayed that it is good idea to get her to bed, because then everything will stop. AND he was right. One hour no vomiting. She fell asleep listening her favorite Kids Pop 6 CD. SHe knows all those songs by heart. Before she fell asleep she was singing out loud. My sweet Pop princess.
It is really quiet here now. Kids are sleeping. I am eating Asiago and drinking red Zinfadel. No husband and sister around. I told them to get out of here or I will explode. lol
But Really, I asked them to go clubbing. So now they went off to find a club that is open. Ihope they have fun. I was no mood for fun tonight. I want to keep closer eye on Regina incase she starts vomiting again.
Her counts are doing really well. Usually when she was released from St Jude her ANC was 300, but today it was 5000. Yesterday it was 1800. So weird. Her hemoglobin was 8,2 and platelets 45000. I dont understand why she is so weak and moody and not active at all. I think that she is fighting with that viral infection , and the medicine she gets in the medicine room makes her really sick.
About weather here. It is icy cold and roads are slippery. I really like my 3 weel drive. I love, love , love driving in this kind of conditions. I get this adrenalin rush when I brake and car really does not stop right away because it is so slippery. It takes a little to make me happy :)
I hope you all have safe and Merry Christmas :)
Our Christmas dinner menu
Extra smokey ham
Sourcraut, barley and bacon dish
Estonian Potato salad- I tryed hard to get it to taste the way It tasted in Estonia
Tomato, cucumber salad with sourcream dressing
Apple bread
Cinnamon rolls
Gingersnap cookies
Glogg
REd wine
Holiday spice Pepsi
Boiled potatoes( Very healthy!!!)
Homemade gravy
Sausages and mac and cheese for kids, or whatever they feel like eating if they dont like homemade dinner cooked from scratch.
And maybe I make something more.
Hey you all!!! If you feel like joinging us tomorrow around 6pm, be our guest. Just take a holiday dish with you ( room 518, Target II) and lets have Merry Chistmas party!!!
More than Marrier:) All our St Jude friends are welcome.
You can call me (949) 290 6959 ( cell)
or Room (901)545 0145
Wednesday, December 22
Tuesday, December 21
Happy- it is finally over :)
We are done with high dose chemo!! YES!!! Now we are back in Target house and doing nothing. TOmorrow we have to go back to Hospital because Regina has to receive her regular Gshots and new antibiotics because her blood tests showed that there is one evel virus in her and ready to do some serious damage/ :(
last Stem cell tranplant went very well. She only threw up once , during doc injected her stem cells. Then we waited for 4 hours , to make sure everything goes well. Sadly we did not have NO MORE CHEMO party. I ask tomorrow from Lisa and maybe she can do something about it( Regina still has one lover dose of Vincristine waiting for her in medicine room). So maybe she can have her NO MORE CHEMO party then. All our friends here had that party and I WANT IT TOO( regina wants it too).
Tomorrow we have Christmas party here in Target house.
Tomorrow Nick will come here for 4 days.
In the elevator Regina started to sing. - No more chemo for me- yeyeyeyeyey
last Stem cell tranplant went very well. She only threw up once , during doc injected her stem cells. Then we waited for 4 hours , to make sure everything goes well. Sadly we did not have NO MORE CHEMO party. I ask tomorrow from Lisa and maybe she can do something about it( Regina still has one lover dose of Vincristine waiting for her in medicine room). So maybe she can have her NO MORE CHEMO party then. All our friends here had that party and I WANT IT TOO( regina wants it too).
Tomorrow we have Christmas party here in Target house.
Tomorrow Nick will come here for 4 days.
In the elevator Regina started to sing. - No more chemo for me- yeyeyeyeyey
Monday, December 20
Santa in St Jude.
Today was 86th annual St Jude santa visit. :) Santa comes here twice a year- In july and in December. It was fun. Thanks to ALSAC Jennifer, Local Fox13 news did short interview with us How we feel about Santa and presents and family. :) Thank you Jennifer.
Now back to business. Regina is feeling very weak and tired most of the time. If I compare this round with other 3 ones, this ones hit her the most. She has been sleeping constantly and not actincg like real Regina. Last night her knees hurted. Today she is doing better. Morning started with vomiting, nurse gave her some fenadrin( sp) nausea med. After she got it , she fell asleep. :( Poor baby. She feels so bad she even don't want to talk to anybody. :( Nothing seems make her happy . Tomorrow everything will be over. No more hardcore Chemo.
Gabriel is doing good. He talks a lot about CA. He misses daddy very much and wants to go back to school. :)
Sija is taking care of Gabriel most of the time- Thank you evil Sister.;)
I am worried sick about how everything will go after we leave Memphis. Hospital really feels like second home, and I don't mind spending days and nights there.
Now back to business. Regina is feeling very weak and tired most of the time. If I compare this round with other 3 ones, this ones hit her the most. She has been sleeping constantly and not actincg like real Regina. Last night her knees hurted. Today she is doing better. Morning started with vomiting, nurse gave her some fenadrin( sp) nausea med. After she got it , she fell asleep. :( Poor baby. She feels so bad she even don't want to talk to anybody. :( Nothing seems make her happy . Tomorrow everything will be over. No more hardcore Chemo.
Gabriel is doing good. He talks a lot about CA. He misses daddy very much and wants to go back to school. :)
Sija is taking care of Gabriel most of the time- Thank you evil Sister.;)
I am worried sick about how everything will go after we leave Memphis. Hospital really feels like second home, and I don't mind spending days and nights there.
Sunday, December 19
I can not belive :)
That we are almost done. She is finished with her 3 day chemo course, now she gets tomorrow off and then she will get her stemcells back on Tuesday. And one feek after tuesday she will get her last low dose of vincristine. :) She is doing ok. We are still on third floor and most likely stay there until she receives her stem cells. 4th floor is overfloaded with sick kids. One thing I like about ICU is every nurse has one patient, so Regina gets the best care possible, but the same time they really dont know all the chemo " rules".
Once somebody asked from me what religion I am and I told them I am ortodox. The person asked if I go to chuch and pray daily . I told her that not really. I used to go to church back in Estonia but I quit going after I moved to USA. I also told her that I don't pray. I am sending my best wishes and thoughts to all the kids that need them and those are my " prayers". The person asked if I was afride that after I die I burn in hell from enternety to enternety. I told her that if this is what hell feels like I am ready, because what I am experiencing right now is probably worse than hell- not knowing what will happen and worring constantly. I can take the HEAT!!!!
One of the Christmas presents for Regina is Leapster. Last night I asked one more time about her christmas wishes. That was very wrong thing to do. She changed her mind and now she wants to have LEap Frog. Oh boy. Her and her grazy wishes. I hope santa has time to go to shopping and get that leap frog thing.
And I want to cook Traditional Estonian Christmas dinner this year -.. so much to do , so little time.
Once somebody asked from me what religion I am and I told them I am ortodox. The person asked if I go to chuch and pray daily . I told her that not really. I used to go to church back in Estonia but I quit going after I moved to USA. I also told her that I don't pray. I am sending my best wishes and thoughts to all the kids that need them and those are my " prayers". The person asked if I was afride that after I die I burn in hell from enternety to enternety. I told her that if this is what hell feels like I am ready, because what I am experiencing right now is probably worse than hell- not knowing what will happen and worring constantly. I can take the HEAT!!!!
One of the Christmas presents for Regina is Leapster. Last night I asked one more time about her christmas wishes. That was very wrong thing to do. She changed her mind and now she wants to have LEap Frog. Oh boy. Her and her grazy wishes. I hope santa has time to go to shopping and get that leap frog thing.
And I want to cook Traditional Estonian Christmas dinner this year -.. so much to do , so little time.
Saturday, December 18
Second day. Last round.
As always first day was the worst. Regina was throwing pu constantly and then her nurse thought that is ridiculos and gave her antinausea med Regina never had before. SHe slept from 9am till 4 pm.( waking up only to throw up.)
I really dont like third floor that much. Bathroom is mile away, and parent room is in the other end of the floor. Our nurse acts like she is the smartest person in whole wide world but the same time she keeps making the smallest mistakes( big ones for Reginas sake). Smetimes she does not use alcohol pads before flushing. ANd yesterday she wanted to take blood twice from same line for cultures. If I was not looking close enough and letting her know that she is making a huge mistake, she would have messed up everything. I'm suspicious about her and keep really close eye on everything she is doing with Regina.
Regina got fever 38,8 yesterday. It went down after she got her first dose of antibiotics. So far her blood cultures look good. Hopefully it was just chemo side effect
I really dont like third floor that much. Bathroom is mile away, and parent room is in the other end of the floor. Our nurse acts like she is the smartest person in whole wide world but the same time she keeps making the smallest mistakes( big ones for Reginas sake). Smetimes she does not use alcohol pads before flushing. ANd yesterday she wanted to take blood twice from same line for cultures. If I was not looking close enough and letting her know that she is making a huge mistake, she would have messed up everything. I'm suspicious about her and keep really close eye on everything she is doing with Regina.
Regina got fever 38,8 yesterday. It went down after she got her first dose of antibiotics. So far her blood cultures look good. Hopefully it was just chemo side effect
Thursday, December 16
We are waiting
Latest Update:
Regina will be admitted tonight. 4th floor is still full. She will start her chemo on ICU( third floor) and if there is opening of 4th floor we will be moved up there. :) Yes, I am very exited about it.
Labs from today look great. There were some highs and lows but the most important ones are good. Ken ( nurse practitioner) told us that they are working on getting Regina room. SO we are waiting that to happen :)
Today we had some fud moments in the hospital. Magician Nick was giving kids magic show. Regina had fun watching and figuring out how did he do it, then NWE capten and pilots were in the hospital taking pictures with kids and handling out things for children.
Yesterday santas Elves where in the hospital taking pictures with kids. It is busy here during this time of year.
now everybody lets wait
CAROL!!! Thank you for the newspapers ;) Kids had fun opening things. I did not let them open all the things. I placed Gabriels and and 2 Reginas presents under the tree and we wait until Christmas. If we are inpatients during that time, I just take all the gifts and we open them in the hospital :)
Regina wants to go to the craft store so now we are going to Michaels :)
Regina will be admitted tonight. 4th floor is still full. She will start her chemo on ICU( third floor) and if there is opening of 4th floor we will be moved up there. :) Yes, I am very exited about it.
Labs from today look great. There were some highs and lows but the most important ones are good. Ken ( nurse practitioner) told us that they are working on getting Regina room. SO we are waiting that to happen :)
Today we had some fud moments in the hospital. Magician Nick was giving kids magic show. Regina had fun watching and figuring out how did he do it, then NWE capten and pilots were in the hospital taking pictures with kids and handling out things for children.
Yesterday santas Elves where in the hospital taking pictures with kids. It is busy here during this time of year.
now everybody lets wait
CAROL!!! Thank you for the newspapers ;) Kids had fun opening things. I did not let them open all the things. I placed Gabriels and and 2 Reginas presents under the tree and we wait until Christmas. If we are inpatients during that time, I just take all the gifts and we open them in the hospital :)
Regina wants to go to the craft store so now we are going to Michaels :)
Wednesday, December 15
I'm mad part 2.
Yeah, and you can do nothing to make me feel better. I am so upset I am crying now. I was told today that they dont know when she will be admitted. And make things harder for me- I CALLED yesterday and asked do they have more info about Reginas admission. They sayed she will be admitted today for sure . And today they have no idea. This is not good.
Tuesday, December 14
BINGO!!!!!
it was bingo night here in Target house. I really am starting to miss all the action that is going on around here. :(
I was pretty lucky today. In Target house we play for toys. If we get BINGO we run to the table and get a toy that we like. Today I won twice. So Regina and gabriel both had chance to get a toy. Regina chose baby doll with a carrier and Gabriel got a monster truck. :) We had fun.
Tomorrow we have couple of interviews. ALSAC wants to hear our story and then they film us while we are doing our daily activities in St Jude. Anything for st jude :)
I was pretty lucky today. In Target house we play for toys. If we get BINGO we run to the table and get a toy that we like. Today I won twice. So Regina and gabriel both had chance to get a toy. Regina chose baby doll with a carrier and Gabriel got a monster truck. :) We had fun.
Tomorrow we have couple of interviews. ALSAC wants to hear our story and then they film us while we are doing our daily activities in St Jude. Anything for st jude :)
Just another day.
Sorry , I skipped yesterday.
I just did not feel like journaling. It was one of those days that I was very unhappy with myself.
First of all I am nerer happy with myself. there is alwasy something to pick on. But yesterday was really upsetting.
My problem Is I feel hungry all the time. I can not control my hunger. I drink my 10 glasses of water per day, I eat salad, fruits vegetables. I fike 30 miles per day( gym) SOunds healthy ? Huh? Yeah, but around 7pm hunger hits me, and I run to refrigirator to please my hunger and I eat until it is time to go to bed.
I was doing really good for a while. I was loosing and happy the way things were going, but now I just add pounds. :( I dont like it. I dont like it at all. I know I have to do something about it. I probably have to go back to my really strict 1200 calorie diet for 2 weeks. But it is really hard to do it here. I need somebody to do it with me, so it is easier. My sister is not the match. She eats her cereal and yogurt all day long and her last meal is 4 pm and then she snacks her damn carrots. ( sorry Sija). And her vision of healthy person is different from mine. So there you go.
I tryed weight watchers in the past. It worked for a while but I had hard time following though. I really have to but some more thought into healthier living. I dont want to gain 20 something lbs and look like I am all over the place. I have to stop it now . Any good recommendations how to do it right???( I am running out of options). Iused to be one that gives advice about weight loss, but now I am the one in need. ( it is hard to admit that)
Regina is doing great. Her counts look ready for chemo and she acts like Normal Regina:)
I just did not feel like journaling. It was one of those days that I was very unhappy with myself.
First of all I am nerer happy with myself. there is alwasy something to pick on. But yesterday was really upsetting.
My problem Is I feel hungry all the time. I can not control my hunger. I drink my 10 glasses of water per day, I eat salad, fruits vegetables. I fike 30 miles per day( gym) SOunds healthy ? Huh? Yeah, but around 7pm hunger hits me, and I run to refrigirator to please my hunger and I eat until it is time to go to bed.
I was doing really good for a while. I was loosing and happy the way things were going, but now I just add pounds. :( I dont like it. I dont like it at all. I know I have to do something about it. I probably have to go back to my really strict 1200 calorie diet for 2 weeks. But it is really hard to do it here. I need somebody to do it with me, so it is easier. My sister is not the match. She eats her cereal and yogurt all day long and her last meal is 4 pm and then she snacks her damn carrots. ( sorry Sija). And her vision of healthy person is different from mine. So there you go.
I tryed weight watchers in the past. It worked for a while but I had hard time following though. I really have to but some more thought into healthier living. I dont want to gain 20 something lbs and look like I am all over the place. I have to stop it now . Any good recommendations how to do it right???( I am running out of options). Iused to be one that gives advice about weight loss, but now I am the one in need. ( it is hard to admit that)
Regina is doing great. Her counts look ready for chemo and she acts like Normal Regina:)
Sunday, December 12
Happy Birthday Alex and Gabby!!!
Thank you Vanessa and Tom for inviting us to celebrate Alexes second and Gabbys third birthday with you. Regina and Gabriel had fun :) Regina told me that one day she will have long and beautiful hair( because Gabby has them). And she compared her head with Alexes head.
Enjoy these special times with your kids. And many more to come. :)
Enjoy these special times with your kids. And many more to come. :)
Saturday, December 11
I am MADDDDDDDDDDD
Today is not Reginas Admission night. Yeah, you heard right. NO chemo. I got her schedule for monday and she has labs check and that is about it. I was told that she will be admitted on thursday- if there is bed. There better be. Hey you all 4th floor kids- GET WELL really soon. REgina needs to get in .!!!
I just hope that her chemo ends before christmas.
In my past post I added list with kids who really need your prayers. I am sad to tell you that 2 of those kids passed away. Helen and Aaron. I did not know them that well, but I saw them in St Jude every day. They were part of our St Jude family and every time family member dies It affects us rest of the family.
I just hope that her chemo ends before christmas.
In my past post I added list with kids who really need your prayers. I am sad to tell you that 2 of those kids passed away. Helen and Aaron. I did not know them that well, but I saw them in St Jude every day. They were part of our St Jude family and every time family member dies It affects us rest of the family.
Friday, December 10
Thursday, December 9
I added pictures
http://www.american-dream.blogspot.com
THat is my diary to my fellow estonian speaking friends. But you really dont have to understand estonian to look at the pics. Latest pics are from our tonights outgoing to RMH. Enjoy. Hope it sets the mood for the holidays. :)
THat is my diary to my fellow estonian speaking friends. But you really dont have to understand estonian to look at the pics. Latest pics are from our tonights outgoing to RMH. Enjoy. Hope it sets the mood for the holidays. :)
Wednesday, December 8
Urgent prayer request!!
It is holiday season. Christmas should be happy and joyful. Full of excitement. But sadly for many families it is season of worring and hoping for a miracle.
I simply ask you to think about these kids and moms and dads.
Big BEN. His tumor has being growing :(
http://www.bens-story.com/pages/3/index.htm
Helen- year old with ATRT was sent home. Not responding to chemo :( She has twin brother.
http://www3.caringbridge.org/mo/helengarner/
Madelyn. I get to know her and her mom while in RMH. Her bonemarrow transplant was failure :(
http://www3.caringbridge.org/tn/madelynbeamon/
Claire- I met her and her family also while in RMH.
http://www.livejournal.com/users/tatomupdates/
Aaron- just waiting and hoping for miracle to happen
http://www2.caringbridge.org/il/aarondhunter/
... these are some of them whose websites I have , but there are more kids whos cancer is just stubborn and not responding to chemo.
I simply ask you to think about these kids and moms and dads.
Big BEN. His tumor has being growing :(
http://www.bens-story.com/pages/3/index.htm
Helen- year old with ATRT was sent home. Not responding to chemo :( She has twin brother.
http://www3.caringbridge.org/mo/helengarner/
Madelyn. I get to know her and her mom while in RMH. Her bonemarrow transplant was failure :(
http://www3.caringbridge.org/tn/madelynbeamon/
Claire- I met her and her family also while in RMH.
http://www.livejournal.com/users/tatomupdates/
Aaron- just waiting and hoping for miracle to happen
http://www2.caringbridge.org/il/aarondhunter/
... these are some of them whose websites I have , but there are more kids whos cancer is just stubborn and not responding to chemo.
Tuesday, December 7
It is almost THAT time again..
Yes, it is almost time to start 4th round of chemo. Regina will be admitted on Saturday and it is her LAST round.
I am looking forward to her NO MORE CHEMO party.If I tell you that it all has been fun and games I'd be lying. It has been nothing but fun and games. We have been worring about her recovery every day. Lot of sleepless nights, lot of tears. But of course we have our fun and we play our games but there is no place better than home and we hope that rest of her life she can play her games at home . :) ( of course we have to come back here for check ups.)
I can not belive how fast time flyes by. It was not long ago when we started and unpacked and not it is time to start packing and thinking about how can we get all this very much needed junk back to CA.
I am looking forward to her NO MORE CHEMO party.If I tell you that it all has been fun and games I'd be lying. It has been nothing but fun and games. We have been worring about her recovery every day. Lot of sleepless nights, lot of tears. But of course we have our fun and we play our games but there is no place better than home and we hope that rest of her life she can play her games at home . :) ( of course we have to come back here for check ups.)
I can not belive how fast time flyes by. It was not long ago when we started and unpacked and not it is time to start packing and thinking about how can we get all this very much needed junk back to CA.
Monday, December 6
Where is everybody???
It so quiet here . Nick left, James left. Nothing to do but just hang out in our room.
Today Regina had fast day. Nutrition consultation went ok. Nothing I did not know about. I don't like that every time different nutritionist sees Regina. So every time I have to tell them blah, blah blah and more blah blah blah.
Then OT( ocupation therapy), she did really well. Usually she does not like going to the second floor. But today she was wearing daddys St Jude Half marathon medal and she was sooo proud to show it to everybody :) . Only thing I am not sure about Regina is that suddenly( month ago) she started writing all the numbers like mirror image. It is really weird. She knows her numbers, she knows how to add and subtract but she writes them like mirror image. Her therapist told me that it is nothing to worry about. Most of the kids at some point do that. She does not do it with letters- just numbers.
And the best news at all- LAST night , after Nick left, REgina started EATING!!! She ate almost 2 mini pizzasa(those kid size pizzas, she drank milk, ate waffle sticks) Then today she ate meatballs and she did not throw up. :). She is doing really good now. SHe has completely recovered from her 3d round. We just have to go to the hospital for routin check ups. Her 4th round should start in a week, but I heard that hospital is fully packed so we MAYBE have to wait little longer :( . I dont like waiting. I want her chemo to end before christmas. !! So kids who you are in the hospital now. Get well really fast so Regina can get in to the hospital( what a wish).
Carol!!! Thank you again! Regina has been doing her coloring all day today :)
Today Regina had fast day. Nutrition consultation went ok. Nothing I did not know about. I don't like that every time different nutritionist sees Regina. So every time I have to tell them blah, blah blah and more blah blah blah.
Then OT( ocupation therapy), she did really well. Usually she does not like going to the second floor. But today she was wearing daddys St Jude Half marathon medal and she was sooo proud to show it to everybody :) . Only thing I am not sure about Regina is that suddenly( month ago) she started writing all the numbers like mirror image. It is really weird. She knows her numbers, she knows how to add and subtract but she writes them like mirror image. Her therapist told me that it is nothing to worry about. Most of the kids at some point do that. She does not do it with letters- just numbers.
And the best news at all- LAST night , after Nick left, REgina started EATING!!! She ate almost 2 mini pizzasa(those kid size pizzas, she drank milk, ate waffle sticks) Then today she ate meatballs and she did not throw up. :). She is doing really good now. SHe has completely recovered from her 3d round. We just have to go to the hospital for routin check ups. Her 4th round should start in a week, but I heard that hospital is fully packed so we MAYBE have to wait little longer :( . I dont like waiting. I want her chemo to end before christmas. !! So kids who you are in the hospital now. Get well really fast so Regina can get in to the hospital( what a wish).
Carol!!! Thank you again! Regina has been doing her coloring all day today :)
Sunday, December 5
And he left.
My Dh went back to Ca today. It was fun while he was here :) He entertained our kids , ran his first half marathon ever and was in pain.
Last Night we went to Texas de Brazil restaurant to eat. I made reservation for 8.30. We went there and waited when they call us in. It took over one hour and millions of checkins from us when we finally got invited in to eat. Middle of our dinner manager came to our table and apologised and told us since we waited for so long we get our dinners 15% off and free desserts. I was so surprised. Dinner was excellent. But it is pricy place. I think our dinner cosed us like 200 dollars( without drinks). So 15% off was nice half marathon present for guys. :) We will defanetely return to that place when nick comes back to visit us during the christmas. :)
Since dessert was free and I fasted whole day I had to have creme brule- it was soooooo gooooood. I want more. !!! !:)
Here is link
http://www.texasdebrazil.com/index2.php
Last Night we went to Texas de Brazil restaurant to eat. I made reservation for 8.30. We went there and waited when they call us in. It took over one hour and millions of checkins from us when we finally got invited in to eat. Middle of our dinner manager came to our table and apologised and told us since we waited for so long we get our dinners 15% off and free desserts. I was so surprised. Dinner was excellent. But it is pricy place. I think our dinner cosed us like 200 dollars( without drinks). So 15% off was nice half marathon present for guys. :) We will defanetely return to that place when nick comes back to visit us during the christmas. :)
Since dessert was free and I fasted whole day I had to have creme brule- it was soooooo gooooood. I want more. !!! !:)
Here is link
http://www.texasdebrazil.com/index2.php
Saturday, December 4
HE CROSSED THE FINISH LINE!!!!
WOHOOOOOOO!!!! He finished !! He crossed finish line!! YEYEYEY!!!!! His time was under 2 hours, I'm not sure excactly what . But he did it. ( I'm doing my happy dance )))))
We had fun screaming to runners.
We had fun screaming to runners.
Friday, December 3
What a fun eneving.
Today was easy day. Reginas counts where just great. Her ANC was almost 8000. It meant that we did not have to go to Medicine room for G csf. Her ANC was 2 days in a row over 2000.
Then tonight there was spanish night in target house. Spanish songs, food etc. Regina and Gabriel were just making me laugh. When music was playing they where dancing like grazy. YES. Regina gave us a performance of a lifetime. I was laughing so hard I had tears in my eyes.
She has been watching Britney spears greatest hits DVD , and she tryed to dance like her( WITH a CHAIR), then she bended her body in a way I thought it is not possible. And what really cracked me up was- I hope you guys are ready for this- She took 2 chairs. She asked Gabe to sit one chair, and she set another one. Then she grabbed Gabriels face and kissed her . OH, gROsss. SHe did it twice . Gabriel had no power to say no , because REgina smushed his face so hard he had nowhere to run. oh gowd. It was hilarious. You should have seen them. Grazy kids. lol
Now tomorrow, my sweet husband is Running for Marathon. He is ready for his first half marathon. He never ran marathon before so this one is extra special. :)
Then tonight there was spanish night in target house. Spanish songs, food etc. Regina and Gabriel were just making me laugh. When music was playing they where dancing like grazy. YES. Regina gave us a performance of a lifetime. I was laughing so hard I had tears in my eyes.
She has been watching Britney spears greatest hits DVD , and she tryed to dance like her( WITH a CHAIR), then she bended her body in a way I thought it is not possible. And what really cracked me up was- I hope you guys are ready for this- She took 2 chairs. She asked Gabe to sit one chair, and she set another one. Then she grabbed Gabriels face and kissed her . OH, gROsss. SHe did it twice . Gabriel had no power to say no , because REgina smushed his face so hard he had nowhere to run. oh gowd. It was hilarious. You should have seen them. Grazy kids. lol
Now tomorrow, my sweet husband is Running for Marathon. He is ready for his first half marathon. He never ran marathon before so this one is extra special. :)
Thursday, December 2
Wednesday, December 1
Hearing loss.
Today Regina had Audiology evaluation. They do it every time after each round ends. This time news are not so good for us. She has some hearing loss. She does not have to wear hearing aid, but damage is there. And her eveluation showed damage to high pitch sounds. So we have to be really careful about exposing her loud sounds. Now we have to wait until 4th round to see if chemo does more damage to her hearing. :(
SEnd some good thought to her way and pray that her hearing does not get damaged any more .
She also had to get blood transfusion. It took about 3 hours. Now we are back in target house and taking a rest from this long day.
Carol!!! We havent forgot about you. Regina ofthen asks questions like Where Carol really lives, and does she likes me and why is she so good that she sends me so much goodies. :) She really is thankful for everything good that is going around her. :D
SEnd some good thought to her way and pray that her hearing does not get damaged any more .
She also had to get blood transfusion. It took about 3 hours. Now we are back in target house and taking a rest from this long day.
Carol!!! We havent forgot about you. Regina ofthen asks questions like Where Carol really lives, and does she likes me and why is she so good that she sends me so much goodies. :) She really is thankful for everything good that is going around her. :D
Tuesday, November 30
Thank you for your support.!!!!
Thank you for all of you who helped raise money for good cause. :) We reached our goal.
When Nick first set up the website to raise money for St Jude , his goal was to get 1000 dollars. But soon he changed it and her last goal was 4000!!! YES!!!!! We reached that goal and even exceeded a little. :) Thank you all so much. Your money is very much needed to help all the kids in St Jude have second chance in life.
Now we are waiting 4th of Dec and My Dh Is ready to run. He is little scared but he sayed that no matter what- he WILL finish. :) Thanks Honey!! We love you :)
When Nick first set up the website to raise money for St Jude , his goal was to get 1000 dollars. But soon he changed it and her last goal was 4000!!! YES!!!!! We reached that goal and even exceeded a little. :) Thank you all so much. Your money is very much needed to help all the kids in St Jude have second chance in life.
Now we are waiting 4th of Dec and My Dh Is ready to run. He is little scared but he sayed that no matter what- he WILL finish. :) Thanks Honey!! We love you :)
May I whine???
Yeah, I really need to whine. It is raining, and I feel like I am absorbing all the rain that is falling from the sky. The feeling is horrible. If somebody would squeze now, there would be puddle of water on the floor. Yaiks. I really dont like this Memphis weather. I like California rainy weather.
And I have this weirdest headace. It is not there but it is there. If you know what I mean. It is like this. I feel like somebody is pintching me from left side( towards back) of the head. The ace is not there but evey hour or so I feel this pintching sensation for 10 minutes and then pain is gone. And then another hour or so it is there again. It is very , very weird pain. And it lasted whole night . How annoing.
Now, I am not finished yet. It is my turn to whine and I do it as much as I want to , so bare with me.
Because Regina is on TPN and because of chemo , she rans to bathroom every hour or so. And I am so over this bathroom thing. She sits up every time it is time to go to bathroom and she starts whimpering and crying that she needs to go to potty. But listen to this. If I ask her during her 30 minute twisting and turning session if she wants to go to potty , her answer is no. And then suddenly she starts crying and tells me that I HAVE to take her to bathroom. Regina- I am sorry to anounce but ther will be no baby sister in our nearest future. I am not ready to do this. And I am thankful that you are testing me like this ( waking up every hour, taking her to the bathroom- it is like baby feeding times, diaper changes etc).
What else??? OH, and I am so over this perfume thing in the hospital. Some people spray the whole container of perume on them when enetering though those hospital doors. I wonder if they evey read the care package they get when they start going to St Jude. It says clearly to avoid perfume because Chemo kids are sensitive to all the smells. I have reminded some people -really , I have. To read theyr care package about what to do or what not to do. Regina has thrown up so many times because those perfume soaked men and woman. And There are even some hospital workers( usually, the top workers, or then the maintance, housekeeping staff) who are walking perfume bottles. So please, if you Enter St Jude, think about the chemo kids and my nose, (t is very sensitive).
I think I am done for today. If you want to know more about what I dont like just ask. I feel like sharing today. Lets make today SHARE DAY!!!!!
And I have this weirdest headace. It is not there but it is there. If you know what I mean. It is like this. I feel like somebody is pintching me from left side( towards back) of the head. The ace is not there but evey hour or so I feel this pintching sensation for 10 minutes and then pain is gone. And then another hour or so it is there again. It is very , very weird pain. And it lasted whole night . How annoing.
Now, I am not finished yet. It is my turn to whine and I do it as much as I want to , so bare with me.
Because Regina is on TPN and because of chemo , she rans to bathroom every hour or so. And I am so over this bathroom thing. She sits up every time it is time to go to bathroom and she starts whimpering and crying that she needs to go to potty. But listen to this. If I ask her during her 30 minute twisting and turning session if she wants to go to potty , her answer is no. And then suddenly she starts crying and tells me that I HAVE to take her to bathroom. Regina- I am sorry to anounce but ther will be no baby sister in our nearest future. I am not ready to do this. And I am thankful that you are testing me like this ( waking up every hour, taking her to the bathroom- it is like baby feeding times, diaper changes etc).
What else??? OH, and I am so over this perfume thing in the hospital. Some people spray the whole container of perume on them when enetering though those hospital doors. I wonder if they evey read the care package they get when they start going to St Jude. It says clearly to avoid perfume because Chemo kids are sensitive to all the smells. I have reminded some people -really , I have. To read theyr care package about what to do or what not to do. Regina has thrown up so many times because those perfume soaked men and woman. And There are even some hospital workers( usually, the top workers, or then the maintance, housekeeping staff) who are walking perfume bottles. So please, if you Enter St Jude, think about the chemo kids and my nose, (t is very sensitive).
I think I am done for today. If you want to know more about what I dont like just ask. I feel like sharing today. Lets make today SHARE DAY!!!!!
Monday, November 29
Smooth Morining
We got to the Hospital around 8AM.
8.15 A/T
9.15 B Clinic
10.00 Medicine room
Yesterday her doc mentioned that she might need some blood today, but her hemoglobin was ok and even numbers raised a little, so she did not need blood. I dont remember that we ever had such a smooth day.
Tomorrow she only has medicine room. Easy enough.
She is feeling little down and not acting really well, but we all know that chemo makes our kids act weird. So It is ok to yell at your momma when you are sick , Regina.
8.15 A/T
9.15 B Clinic
10.00 Medicine room
Yesterday her doc mentioned that she might need some blood today, but her hemoglobin was ok and even numbers raised a little, so she did not need blood. I dont remember that we ever had such a smooth day.
Tomorrow she only has medicine room. Easy enough.
She is feeling little down and not acting really well, but we all know that chemo makes our kids act weird. So It is ok to yell at your momma when you are sick , Regina.
Sunday, November 28
We our out
We got discharged today!!!! Yes. REginas mood changed right away. She started eating and is acting all happy.
HEr counts look ok. Her hemoglobin is lower side, so tomorrow she will have to get some blood.
HEr counts look ok. Her hemoglobin is lower side, so tomorrow she will have to get some blood.
Saturday, November 27
We have ANC!!!!
REMINDER!!!!
Nick is running St Jude Half Marathon on December 4th. All the money donated will go to St Jude . Every dollar counts. We want to thank you everybody who helped out with donations.
We have almost reched the goal set. :)
http://stj.convio.net/site/TR?px=1008061&s_tafId=1023&pg=personal&fr_id=1023&s_oo=kkIJAr30BH-PLhYs3lnipg
200!!!! Yes, her ANC was 200 this morning. Doctor told us that we can get out of St Jude tomorrow, but we still have to the sidekicks . ( meds)
Regina is doing really well. Yesterday she and Nick had serious conversation about babies and kittyes. lol
Regina told Nick that she wants to have baby sister Audry/Audri ( not sure which spelling she meant). And she wants to have kitty Ceisy/ Keisy/Caisy.
She can have her Kitty, but I am not so sure about baby sister. Somebody else can have it for her- not me. :lol
My mom back in Estonia is having really serious healt problems. She can not feel her legs- she has problems with central nerv system- I am really not really sure how to explane it for you, but I know it is serious. Doctors told her that soon her whole body maybe paralysed and that means bed rest rest of her life. I hope they can find some cure for her and her condition does not worsen.
Nick is running St Jude Half Marathon on December 4th. All the money donated will go to St Jude . Every dollar counts. We want to thank you everybody who helped out with donations.
We have almost reched the goal set. :)
http://stj.convio.net/site/TR?px=1008061&s_tafId=1023&pg=personal&fr_id=1023&s_oo=kkIJAr30BH-PLhYs3lnipg
200!!!! Yes, her ANC was 200 this morning. Doctor told us that we can get out of St Jude tomorrow, but we still have to the sidekicks . ( meds)
Regina is doing really well. Yesterday she and Nick had serious conversation about babies and kittyes. lol
Regina told Nick that she wants to have baby sister Audry/Audri ( not sure which spelling she meant). And she wants to have kitty Ceisy/ Keisy/Caisy.
She can have her Kitty, but I am not so sure about baby sister. Somebody else can have it for her- not me. :lol
My mom back in Estonia is having really serious healt problems. She can not feel her legs- she has problems with central nerv system- I am really not really sure how to explane it for you, but I know it is serious. Doctors told her that soon her whole body maybe paralysed and that means bed rest rest of her life. I hope they can find some cure for her and her condition does not worsen.
Friday, November 26
Friday..
We are still inpatients. Regina has no fever, but we are still in because doctors want her counts do recover before they discharge us.
Regina is doing good. She gets really crumpy after she gets benadryl. She gets sleepy and irritable and moody. And wants nobody to talk to her.
Gabriel is doing great also. He adjusted to this little apartment really well. He really does not care where he is at. Just like his mommy ;)
I mentioned yesterday that I will go do some shopping today. We went to local Oak Court mall. It is a small mall . I went there around 8. Mall seemed really empty. But then I went to Macys and it was packed with people. I got some new clothes for kids. Clothes that where onsale really did not appeal to me that much , so I ended up spending some dough for good clothes.
Regina is doing good. She gets really crumpy after she gets benadryl. She gets sleepy and irritable and moody. And wants nobody to talk to her.
Gabriel is doing great also. He adjusted to this little apartment really well. He really does not care where he is at. Just like his mommy ;)
I mentioned yesterday that I will go do some shopping today. We went to local Oak Court mall. It is a small mall . I went there around 8. Mall seemed really empty. But then I went to Macys and it was packed with people. I got some new clothes for kids. Clothes that where onsale really did not appeal to me that much , so I ended up spending some dough for good clothes.
Thursday, November 25
i am so tired now.
Friday has not started yet, but I allready feel tired when I think about my shopping day tomorrow. Yes, I left My DH to hospital overnight and me, sija and Gabriel will wake up early and head to the stores. I hate crowds, but Sija is really exited about all the sales going on tomorrow.
After we left RMH today I felt suddenly hungry- can you belive it? I ate like a pig, but I felt hungry. H U N G R Y. So I went to Target house and I ate the whole 9 inch pumpkin/pecan pie I baked yesterday- IT was heavenly. It was soo good I just could not stop. After I finished eating, I started feeling really fulll. TOOO FULLLLLL. I was about to throw up. But now I am hungry again, and I have no pies to eat- I just feel like eating pies today. lol.
Regina is still not eating anything and her counts remine zero. I want her counts to recover so she can start feeling better . She has one more round chemo left! Yes for Regina!! She is such a little fighter. And smart fighter. With every round of chemo she gets smarter. She knows all the names of meds, she knows what makes her throw up, she knows what nurses do with meds ( crush them up and mix it with cherry cyrup she hates, ) , she knows that benadryl makes her extremely sleepy and vincrystine makes her throw up so does cyclo.... something.
She knows that one day she will be completely cured and she is looking forward to that day. :)
After we left RMH today I felt suddenly hungry- can you belive it? I ate like a pig, but I felt hungry. H U N G R Y. So I went to Target house and I ate the whole 9 inch pumpkin/pecan pie I baked yesterday- IT was heavenly. It was soo good I just could not stop. After I finished eating, I started feeling really fulll. TOOO FULLLLLL. I was about to throw up. But now I am hungry again, and I have no pies to eat- I just feel like eating pies today. lol.
Regina is still not eating anything and her counts remine zero. I want her counts to recover so she can start feeling better . She has one more round chemo left! Yes for Regina!! She is such a little fighter. And smart fighter. With every round of chemo she gets smarter. She knows all the names of meds, she knows what makes her throw up, she knows what nurses do with meds ( crush them up and mix it with cherry cyrup she hates, ) , she knows that benadryl makes her extremely sleepy and vincrystine makes her throw up so does cyclo.... something.
She knows that one day she will be completely cured and she is looking forward to that day. :)
We know the reason..;.
why Regina has fevers. Today doctor told us that finally they found a reason. She has viral infection. Nothing that she got from outside. IT is something we all have in us. But since her immune system is so week, she even can not fight the little viral bugs that are natural parts of our body. Now doctors are preventing her infection to get worse. She is on 2 different antibiotics. THey are trying to wean her off from vancomysin( very storng and powerful antibiotic).
Me , Sija and Gabriel went to Ronald McDonalh house for lunch. It was big but really tasty mistake. I ate 5 pieces of different pies, and turky and ham and everything else I have been wanting to eat all year long, but did not. Starting from tomorrow I have to go back to my normal , healthy balanced diet. ( with no extra sweets and calories. )
Regina seems doing ok in the hospital. We are trying to find her activities to do and she is ok with whatever we give it to her. :)
Happy Turkey Day! :D
Me , Sija and Gabriel went to Ronald McDonalh house for lunch. It was big but really tasty mistake. I ate 5 pieces of different pies, and turky and ham and everything else I have been wanting to eat all year long, but did not. Starting from tomorrow I have to go back to my normal , healthy balanced diet. ( with no extra sweets and calories. )
Regina seems doing ok in the hospital. We are trying to find her activities to do and she is ok with whatever we give it to her. :)
Happy Turkey Day! :D
Wednesday, November 24
Thank you!!!
A Thanksgiving Prayer
T
hank you Father for the blessings you've given this day.
H
elp us to remember, Thou has shown us the way.
A
nd give us strength to help those in need.
N
ever letting us forget, Thy merciful deeds.
K
eep us in Thy tender loving care.
S
ave us, O Lord, when we are in despair!
G
ive us grace as we walk through life.
I
nspire us to seek our brothers amid the strife.
V
ictory in Thee will be our guiding star.
I
n courage we march not caring how far.
N
ow we ask for the most important thing.
G
rant us salvation to escape death's sting.
Copyright by Jim Smith
How to observe Thanksgiving.
Count your blessings instead of your crosses;
Count your gains instead of your losses
.Count your joys instead of your woes;
Count your friends instead of your foes.
Count your smiles instead of your tears;
Count your courage instead of your fears.
Count your full years instead of your lean;
Count your kind deeds instead of your mean.
Count your health instead of your wealth;
Count on God instead of yourself.
~~Author Unknown.~~
T
hank you Father for the blessings you've given this day.
H
elp us to remember, Thou has shown us the way.
A
nd give us strength to help those in need.
N
ever letting us forget, Thy merciful deeds.
K
eep us in Thy tender loving care.
S
ave us, O Lord, when we are in despair!
G
ive us grace as we walk through life.
I
nspire us to seek our brothers amid the strife.
V
ictory in Thee will be our guiding star.
I
n courage we march not caring how far.
N
ow we ask for the most important thing.
G
rant us salvation to escape death's sting.
Copyright by Jim Smith
How to observe Thanksgiving.
Count your blessings instead of your crosses;
Count your gains instead of your losses
.Count your joys instead of your woes;
Count your friends instead of your foes.
Count your smiles instead of your tears;
Count your courage instead of your fears.
Count your full years instead of your lean;
Count your kind deeds instead of your mean.
Count your health instead of your wealth;
Count on God instead of yourself.
~~Author Unknown.~~
Fever, no fever, fever...
Last night around 4, Regina wanted to go to potty. I carried her to bathroom. She felt really hot, so I called nurse and told her to take Reginas temp. She had 38,8 fever. She got some tylenol and fever went down. Today has been fever free.
Sija Regina and Gabriel are in the hospital now. Regina acts like a boss there. Do this, dont do that, you have to color this way. Poor Gabriel. lol
Yesterday when I picked Nick and Gabriel up from Airport, gabriel ran to me. Oh, boy , was I happy to see him. He has grown a little. And he is cute as ever. And the best of all, he has really good manners. Nick really work on that. :)
Sija Regina and Gabriel are in the hospital now. Regina acts like a boss there. Do this, dont do that, you have to color this way. Poor Gabriel. lol
Yesterday when I picked Nick and Gabriel up from Airport, gabriel ran to me. Oh, boy , was I happy to see him. He has grown a little. And he is cute as ever. And the best of all, he has really good manners. Nick really work on that. :)
Tuesday, November 23
Still in ...
Regina had light fever this morning 37,8. So we will be on the fourth floor at least next 48 hours( probably our thanksgiving dinner will be betweek those 4 walls). I was looking forward cooking this year, but there is always next year. :)
All her cultures came back neg. SO we relly don't know what causes the fever. They took samples from her line and let it sit for 48 hours, to see if something grows ( bacteria). Hopefully not. And we just hope that the fever is caused by G shots and bonemarrow trying to engage in Reginas bones. :D
Today she feels pretty good. She is slowly starting to reveal more about herself to the nurses and doctors. Most of the nurses know her pretty well , and they know what kind of questions to ask, to make Regina open up. :)
Regina is doin a lot of crafts in the hospital. Childe life volunteers have trouble to come up with new things, since she has done every single craft twice. And she refuses to do it third time. :lol Poor volunteers. lol
3 more hours and Nick and Gabriel will be here!!!!! YES!!!!!
All her cultures came back neg. SO we relly don't know what causes the fever. They took samples from her line and let it sit for 48 hours, to see if something grows ( bacteria). Hopefully not. And we just hope that the fever is caused by G shots and bonemarrow trying to engage in Reginas bones. :D
Today she feels pretty good. She is slowly starting to reveal more about herself to the nurses and doctors. Most of the nurses know her pretty well , and they know what kind of questions to ask, to make Regina open up. :)
Regina is doin a lot of crafts in the hospital. Childe life volunteers have trouble to come up with new things, since she has done every single craft twice. And she refuses to do it third time. :lol Poor volunteers. lol
3 more hours and Nick and Gabriel will be here!!!!! YES!!!!!
Monday, November 22
Fever!!!
I spoke to soon. While I was here in Target house typing my entry, Regina was in the hospital bewing admittedn with fever. I dont know for how long we get to stay to St Jude this time but pray for a short entry. .
Diana
Diana
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