She was diagnosed around the same time as REgina was. SHe has Diffused Brain Stem Glioma. Yesterday , after MRI, they got the news nobody was expecting. Claires tumor has been growing. Regina, Claire and another St Jude patient Brooke sang and danced together in St Jude talent show.
Please check out Claire diary. http://www.livejournal.com/users/tatomupdates/
We spent some " Kitchen" time together In RMH , in Memphis, Tennessee. Claire and Regina used to play together when they got a chance. :)
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So sad about Claire, she's such a stunningly beautiful girl, her whole family in fact.
John Ott, Susan Junghuans, and the others who started STAND, their kids all had brainstem glioma.
Once Steven asked me what was the worst sort of brain tumor to have and the next time we saw Dr. Gajjar I had him ask him.
He said brainstem glioma. There really is no cure, but sometimes they can delay it a bit.
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