Friday, November 30
Something has happened to my "roommate post" Oh well....
Anyway, we got some news today. Day 5 and cultures are STILL NEGATIVE!!! WOHOOO. Alcohol lock and cefapine ( sp?) antibiotic seem to be working. Only bad thing is that every night when they alcohol lock her line, Regina smells like she just gobbled down few bottles of hard liquor.. I should smell like that instead...... Last night I tried to score some Vicodin while they were offering to it to our roommate, but I did not fit the requirement...lol
Now, around 6 am doctor came in and told us ---- 5 more day... Then he came back 9 am and told us- I have some good news for you. We try to get you out of here on Sunday. But we have to set up home health care nurse to come to your house and do all procedures needed to do.
So we get out on sunday, come back to CHLA on Monday ( MRI) and then on wednesday we see dr Dhall... Yesterday I had really emotional day. I am getting this pre MRI syndrome again. Somebody was asking how Regina is doing ( well, CHLA psychologist),, and i started crying- I DON"T KNOW HOW SHE IS DOING. I don't know. I want to know but I dont know. I also told him. Physical appearance does not matter to me right now. Yes, she looks good, but what if tumor is stable instead of shrinking and we are almost done with treatments, and what if we stop treatments and tumor starts growing. BAAAAAAA BAAAAA BAAAAA... he did gave me some good information, But I can't discuss it here.
So our prayer "bears" send extra shrinking thought to our way.. We need them more than ever :)