I AM SO BORED RIGHT NOW. We are in CHLA right now. Since regular neuro/onco unit did not have beds for us, we were placed BMT ( Bone marrow transplant unit), same floor. WELL< I AM loving it. IT is single patient room, and it is quiet in here. Boring part- Reginas tv does not work. We have been here since 1 pM and no it is 7 pm , and chemo has still not started... they had to check her urine, find doctor,, hook her up with IV fluids... We are just hanging out doing nothing.. WELL, at least I am doing nothing.
Regina had great dinner-- fish sticks, cantaloupe and some kind of drink. Right now she is playing her DS.
Around 8 PM 6 hours of chemo will start ( cicplatin), and then one oral pill. After that we have to stay here for 15 hour for monitoring and IV fluids. YUCK. YUCK. YUCK.
Myself I went to cafeteria. Got myself HUUUGE salad, with lot of dressing, HUUUGE plate of cholesterol, ( deep fried chicken wings), and giant diet coke... THIS IS my hospital comfort food. Noting is more comforting than crunchy fatty chicken during hard times. OH, sadly they did not have buffalo wings, so I dipped my wings in Tabasco sauce... hehe..
Also, I am starting to loose my "cool"... everything bugs me... Mess around me, mess in me, mess in other places... noisy people, loud advisers, know it all human beings who wish us well.
AND most of all-- I am loosing my cool because I am again at that point that I can't control my food cravings. It is horrible feeling. I don't feel full after I eat. I work out every day. I do 1 hour cardio weights combo, but after that I am so exhausted and tired and hungry, that I eat triple amount of food :(. So if you wondered how I am doing- this is how.
]That's pretty much it. Nick is going to travel soon, and I get some space ;) . I know he does not want to go away from Regina, but somebody has to work. :)
9 comments:
Keep the faith in all good, that life has to offer... Do not fall... I´ll be watching over You...
I love that little girl... and you. My thoughts and healing vibes are with you today.
love, tiffani
Let me know if I can help out somehow. Stay strong!
-merit
Hugs to you.
Where is that photo taken?
In estonia,some new tourist attraction for families :)
OK, well, this will make you laugh. For about a minute before I zoomed in I looked at it and wondered if you'd redone Regina's room again.
When I zoomed in, I thought that if you'd redone her room, you'd done it in a REALLY big way and the roof outside the window didn't look like your roof and there were no trees that close to her window.
Maybe I need some more sleep.
OMG, IT did make me laugh... But you gave me an IDEA...mhmmmmm
I was also wondering where all the trolls came from, here in southern California!!! Of course they had to be Estonian :)
Elisabet
we understand how you feel you have a lot on your plate (literally-ha!) when you can take some meditation time, you're a wonderful mommy!Pru
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