Friday, February 20


Alright. This past 2 weeks have been pretty intense . real rollercoaster with it’s twists and turns. BRRR.
Well, Regina started seizing on Thursday night. Nick called 911 while I was hysterically screaming . I have seen people seizing, but since it happened to regina and it was her first Seizure ever, I panicked my pants off…
It all happened very fast. Nick woke me up and told me that something is wrong with Regina and I should see it. I RAN to our bedroom ( I was sleeping in REginas bed). AND Regina was in mine. When I got there, Regina was shaking uncontrollably, her eyes were all back and she had really scared look on her face. I JUST Grabbed her and hugged her and told her everything will be alrigt. NICK called 911 and within minutes fire truck was at our doorstep. By then Regina had stopped seizing and she looked ok again. Little confused but ok. Later she told me that she was really scared…

After fire truck ambulance arrived. Regina was hooked on monitors and I was allowed to sit in ambulance also. Regina was present and understood what was going on. We arrived to CHOC around 5 PM. By then Regina was completely back to normal. She was hurried to CT scan. CT scan showed that there was tumor growth BUT , sadly they compared her scan that was done BEFORE her tumor multiplied and they told me that YEAH there is significant tumor re-growth… Then few doctors wanted to poke her without anesthesia, but I told them NO WAY JOSE. You are not sticking that stinky needle into my daughters brain without anesthesia… SO they had to leave… hehe. Iam so glad I DID it, because Reginas ANC is 0 and she can get infection just breathing in air….
Well, we finally got a room in PICU, 629 ( but they will move us to 617 I believe). BETTER VIEW ;) And then we saw our favorite Dr. Loudon. He calmed me down a bit by telling us that he thinks most likely it is not tumors that are causing seizure(s). It could be hundred other reasons, and you all know those reasons.
So Regina will be put on some medications, and we go from there. Other than that, Regina looks great. PALE, but she does good considering situation she is in right now.
Not sure for how long we will stay in here, but I am not complaining. AT least help is right here if things get worse. ( hopefully not ).

THANK YOU my dear Friends for keeping your fingers crossed and hopes up. It is very scary time for us, and I am confused all over. What, how, when… WHY seizures.. BUT again, her brain is in shock…
Love you all 

XOXOXOXOXOX
<3<3<3<3<3<3<3<3

It is friday night , i am home right now. Regina and nick are in CHOC. Regina is getting blood transfusion right now since her hemoglobin was low. She is also on Keppra ( i think anti seizure meds). She haven't had anymore seizures and hopefully she will never have one.
3 night , 3 different floors, and gazillion doctors nurses and other humans who asked same questions over and over and over and over....

7 comments:

GraceBeading said...

God bless that child... such a trooper. Wish I could package up a little extra strength and some peace of mind and send it to you all.

Anonymous said...

I have followed your blog for a while now and have never replied, but to day still not sure of the right thing to say I felt I must! I have a nine year old Niece that has been diagnoised with luekemia and seeing what her and Regina have been going thru has made me realize how strong these little ladies are and how much strength they truly give us and help us get thru this all..My love and strength and all of God's Grace's to help these Little Angels Better and to Live a Happy and Healthy life!!! PJ

Patty said...

You're in my thoughts.

Leah said...

Continued thoughts and prayers...

Anonymous said...

My prayers and thought are always with you all.

Colleen said...

Ellie had a seizure at school on Thursday. They think it was an Abscence seizure. There was no shaking or eye rolling she just zoned out and didn't answer for a minute. Scared the heck out of me because like you, I thought tumor growth or recurrence. That doesn't seem to be the case. Dr. Gajjar is not worried.
As you said, there are many reasons for the seizure and the obvious one is all of the recent trauma she has had up there. The brain just needed to reset itself.
We are always checking in and praying and sending positive vibes to Regina. She is such a strong girl and you are a wonderful mother.

-Colleen & Ellie
www.caringbridge.org/visit/ellie1

nino said...

Hi Di
I have been following your blog for months and are constantly amazed by Regina's strength.You cannot believe how relieve I am to hear that Regina is doing ok. She is such an amazing person. Thinking of you in these trying times.

Nino
South Africa