Friday, February 20
Alright. This past 2 weeks have been pretty intense . real rollercoaster with it’s twists and turns. BRRR.
Well, Regina started seizing on Thursday night. Nick called 911 while I was hysterically screaming . I have seen people seizing, but since it happened to regina and it was her first Seizure ever, I panicked my pants off…
It all happened very fast. Nick woke me up and told me that something is wrong with Regina and I should see it. I RAN to our bedroom ( I was sleeping in REginas bed). AND Regina was in mine. When I got there, Regina was shaking uncontrollably, her eyes were all back and she had really scared look on her face. I JUST Grabbed her and hugged her and told her everything will be alrigt. NICK called 911 and within minutes fire truck was at our doorstep. By then Regina had stopped seizing and she looked ok again. Little confused but ok. Later she told me that she was really scared…
After fire truck ambulance arrived. Regina was hooked on monitors and I was allowed to sit in ambulance also. Regina was present and understood what was going on. We arrived to CHOC around 5 PM. By then Regina was completely back to normal. She was hurried to CT scan. CT scan showed that there was tumor growth BUT , sadly they compared her scan that was done BEFORE her tumor multiplied and they told me that YEAH there is significant tumor re-growth… Then few doctors wanted to poke her without anesthesia, but I told them NO WAY JOSE. You are not sticking that stinky needle into my daughters brain without anesthesia… SO they had to leave… hehe. Iam so glad I DID it, because Reginas ANC is 0 and she can get infection just breathing in air….
Well, we finally got a room in PICU, 629 ( but they will move us to 617 I believe). BETTER VIEW ;) And then we saw our favorite Dr. Loudon. He calmed me down a bit by telling us that he thinks most likely it is not tumors that are causing seizure(s). It could be hundred other reasons, and you all know those reasons.
So Regina will be put on some medications, and we go from there. Other than that, Regina looks great. PALE, but she does good considering situation she is in right now.
Not sure for how long we will stay in here, but I am not complaining. AT least help is right here if things get worse. ( hopefully not ).
THANK YOU my dear Friends for keeping your fingers crossed and hopes up. It is very scary time for us, and I am confused all over. What, how, when… WHY seizures.. BUT again, her brain is in shock…
Love you all
It is friday night , i am home right now. Regina and nick are in CHOC. Regina is getting blood transfusion right now since her hemoglobin was low. She is also on Keppra ( i think anti seizure meds). She haven't had anymore seizures and hopefully she will never have one.
3 night , 3 different floors, and gazillion doctors nurses and other humans who asked same questions over and over and over and over....