Wednesday, February 11
(((( 2.12--- stitches are still in, Dr. Loudon wants to leave them alone for one more week )
I love our friends. I love those that are close to us, and those that choose to stay behind curtains , but once in a while let us know that they are here for us:).
I love strangers who reach out to us and ask how they can help. I love those who decide to stay as far as possible, because they know they just decide to do so :)
I also love our doctors- Dr Loudon for performing 4 surgeries, one biopsy and Gamma knife on Regina.
Dr. Gajjar in St Jude treating Regina with hard core chemo.
Dr Dhall and Dr. Finlay in CHLA for being so understanding and doing their best to please us.
NURSES- who laughed and cryed with us:) Supported us. It has been amazing few years. hard, but amazing. Every single day of this journey we have met so many different and interesting people and have learned about love, friendship , courage, survival... I could go on and on and on....
Bell family, Sunshine kids, Starlight foundation, Ride for Kids... LNES,.... .... ... I am going to stop now, or I start bawling like one big baby.
I want to thank you all for being here for us. Thank you for letters, cards. Thank you for hugs and well wishes. Thank you for great food and drinks.
Maybe some of you think that I am not thankful enough or I am ignoring you. Sometimes I actually am ignoring you. There are times I choose to be alone, but there are moments that I need to be with someone.
Sometimes I feel guilty because I feel like I can't be the friend I need to be. I feel like receiving, but not giving back. And it is not the best feeling to have.
I know you guys want to help us, and I know helping other makes me feel good. But I can't help this silly "guilty" feeling.
We have been fighting for 5 years for now and it still seems like it was yesterday we got the news first time. Maybe that is why I still have this strength to keep on going. I know we are running out of options pretty soon. This chemo round is deciding round. MRI is scheduled on 14th of march.... Honestly. not looking forward to it. ..
Regina is sleeping right now:) We are going to CHOC tomorrow to get her stiches removed. We also have home healtcare nurse come in and draw her labs tomorrow.
I just hope that her platelets got a boost and are high enough.:)
THE TANS :)