Friday, February 1


TRANSPLANT went very well. We went to Hospital 8.30. First we did our regular registration, then triage, and from there we went to day hospital where Regina was assigned to her nurse for a day. FOr today it was Gina.
Gina gave us our Room. Usually we do not get a room, we just wait for next available curtain separated chair, and there are at least 14 curtain separated chairs full of patients. This time we got a room but we had to share with kid who had blood transfusion, and whose life was not easy one...

After REgina settled down in her bed, nurse Gina drew Reginas labs. Then she hooked REgina up with IV fluids. After hour of fluids Dr Dhall came in with Somebody who had REginas stem cells in a bag. Very different from St Jude. In St Jude stem cells were brought into room with some medical refrigirator that kept stem cell temperature stable. IN CHLA they were brought in with blue Cold bag. Anyway. Regina was hooked up with heart monitor, with blood pressure monitor. Oh. Before stem cells she got pre medicated. She was given zofran for nausea, benadryl to prevent allergic reactions and tylenol- just
Now, stem cells were in tiny bag. It was hung on Reginas IV pole, and it only took 10 minutes per bag to infuse it into Regina. Dr Dhall and Nurse Gina took Reginas vitals in every 5 minuts. This time REgina only had 2 bags of stem cells. SO , it was short 20 minute process.

Regina did extremely well. She did get really bad chills for 10 minutes, but that was because stem cells were working their way to wherever they had to go....

After Stem cell transplant Regina was hooked up with fluids for an hour. Then she had to have platelets because her platelets dropped overnight to 30 thousand. That took about 40 minutes. After platelets Regina had blood transfusion because her hemoglobin also had dropped below normal limit. , so that added extra 3 1/2 hours. . It was 6 pm when we finally got out of CHLA. Regina was walking and responsive and happy. SHE RAN out of CHLA. SHE ran in Ronald McDonald house. She was just happy to get out.. She still is :) Now we are in Ronald McDOnald house. While I am typing Regina is Feeding me sunflower seeds. She tells me that I am bird baby and she is bird momma

Now, we are keeping our fingers crossed for NO FEVER.


reader Wil said...

I wish you all the best for your little girl! And take care for yourself!

Patty said...

Dear Regina,
So happy to hear everything is going so smoothly this time. I hope it continues and I pray you don't start running a fever. Mommy, Daddy and little Gabriel, all the best to you. Take very good care of that little girl.
Love to you all, Patty

Eunice said...

Cheering you on from Virginia and keeping you all in prayer. Wishing you sunshine and happy days to come.

K. said...

hei, ma jagasin oma blogi kaheks, avalik on selle vana aadressiga, omadele ja sisuliselt avalikum
muutus tehtud pahade inimeste pärast, kõigil pole vaja mu elust teada...aga sina oled teretulnud:)

Cindi said...

You go girl...beat this beast once & for all. Sending prayers of healing your way. It is so sad we all lost Madelyn today & we want this horrible disease to be gone for good!

Martin Stickland said...

Hello Regina,

I found you via Patty and we wish you well from little old England!

Kathy said...

Diana, you're missing your calling.

Either a nurse, or do-it-yourself stem cell transplant at home.

GREAT news about Regina. Keep it up.

julee said...

I had chills reading your blog. I know how hard you had to fight to get those stem cells. Every minute of the 20 must have been such a relief. I am so happy and as always I am sending out prayers and well wishes.

Patty said...

Good morning, a little joke for Regina:
The Doorbell

A man is walking down the street one day when he notices a very small boy trying to press a doorbell on a house across the street. However, the boy is very small and the doorbell is too high for him to reach. After watching the boy's efforts for some time, the man moves closer to the boy's position.

He steps smartly across the street, walks up behind the little fellow and, placing his hand kindly on the child's shoulder, leans over and gives the doorbell a solid ring.

Crouching down to the childs level, the man smiles benevolently and asks, "And now what, my little man?"

The boy replies, "Now we run!"