Wednesday, January 30
We also briefly discussed Reginas follow up therapy, because we want to do something instead of just waiting and hoping that nothing pops up from somewhere.
Dr Dhall suggested LOW dose temodor and accutane therapy. TEmodor is chemo, but together with accutane they compliment each other . BUT, if Reginas counts do not recover as well as needed, then we just do accutane ( which is actually ance drug). It has some side effects- blurred vision, fluid build up in brain( which will be removed through spine , Spinal tap). If it side effects get to severe, then we just stop therapy and keep on monitoring her. This therapy will last most likely up to a year( if she tolerates it well).
Now we are just waiting for side effects to show up... Please go donate blood and platelets. Platelets are needed more. Next week she needs most likely 3 platelet transfusions. Please :) It does not matter what blood type you have when donating platelets.