Friday, January 18
Last round of something something..
Gosh. where do I start. Honestly, today was one stressful day for me. Day started out great. Awesome day. Wohooo.. But everything changed when we entered CHLA doors. To be exact--- CHLA outpatient pharmacy , which is now WALGREENS.
On our way upstairs I payed a visit to pharmacy because I wanted to pick up Reginas CHemo drugs... I knew Dr Dhall's team faxed rx to pharmacy last week. Guess what, walgreens did not receive their fax. So upstairs I go to see what happened.
Day hospital faxed it again and this time they received it... Usually it takes about one hour for them to fill rx's.. But this time it took 3 fuckin' hours. I was vivid. AND I had right to be . OF course things have to brake just before it is my turn to get meds. So I got Reginas etoposide( one chemo drug,,, and then , walgreens scanner stopped working... OR pharmacist printed out WRONG label that did not scan. SO they DID NOT GIVE ME reginas chemo drugs. I wanted to cry right there. THey told me to come back on monday... I just looked at him and told him =- You must be kidding me. I live in Laguna, and because of your broken scanner, or wrong code I have to waste 4 hours of my valuable time JUST TO visit you for one minute????
NOW, that is ONE REASON why I like Reginas meds to be refilled at least few days before chemo starts...( REason why they did not trust me with those chemo pills- is - Co payment for them was almost 300 dollars. !!! DUH. Come on ???? I visit that pharmacy at least 3 times a month, they know my by name...
I also told them, there is NO WAY I am coming back to chla, so please fax these prescriptions over to LAguna walgreens AND MAKE SURE, they have drugs by monday, if they do not PLEASE CALL ME!!!. I can't handle this kind of mistakes or errors very well. I just cant... I also cant handle people who question my values, and ways of living the way I live, and the number one thing that bugs me is- seriously- do you really think that I would take REgina to school when she could infect other kids with her " health" issues... SerioslY???
OK. Now about cool stuff... After that stressful noon incident.. We managed to keep our sanity and headed to Pershing Square ( spelling). It is in Downtown LA. REgina is one of Sunshine kids :) http://www.sunshinekids.org/
Amy( and his team) from Sunshine kids invited us , and other neuro/onco families to outdoors Ice skating . REgina was so exited to to it. It was her first time on Ice, and she was just all in smiles.... UNTIL... bang.... she fell flat on her ass ... She tried to protect her but with her hands, but instead she ended up hurting her both hands. :( Poor REgina, she was in tears. I never seen her so sad, she never cries because of pain and to see her crying just broke my heart. She was upset and sad and in pain... It was her first time and it had to end up like this... Ijust hope that she does not give up after this :)
When GABRIEL saw REgina fall, he also stopped skating and sat besides Regina the whole time. HE even fed Regina food, because he did not want REgina to feel any pain.
Now we are back home, and Regina is doing ok. Her wrists still hurt, but she is doing ok. She took her chemo and did not complain a bit. :)
Now, mommy Diana needs some stay sane thoughts. I am beyond stressed right now. I may look OK and crack my "stupid" jokes. The truth is, i am not ok. I do not think that I ever been so stressed. I want to see more happy people around me. I do not want people feel sorry for me, or tell me how strong I am.. I am not... I am loiek you, you , you ,and you... and Right now I am just like you... I am tired and sad, and unsure whats going to happen next....