:)

GO SEE MEET THE ROBINSONS because WE JUST DID.
You will not regret. One of the best movies out there. And it is on 3D> Very vool :)

Jog-A-Thon.

Regina and Gabriel having fun at jogathon.

MENYY

Pictures

FOUND!!!!!

Horray... Today I found Reginas airpiece. It was kind of accidental finding.. During music lass kids have nametags on, and When Regina took her name tag off, her earpiece got stuck and came off. So today when I was handing all the kids their nametags- THERE it was, screaming for attention- REGINAS AIRPIECE , HOLDING onto yarn with that only curve it had. :) I shred couple of happy tears, because i was extremely happy and relieved that it was found. AND I apologise to all of you who I secretly blamed... ( I FEEL horrible )>:)

AND we are flying to memphis on 8th ( sunday, easter I am guessing) and we fly back on monday. We also have to take Gabriel with us and he will cost us 580 dollars- you better pay back when you grow older and find a job...lol But since it is spring brake , we do not mind having one hectic day long half family vacation. hihi.

Don't read if you are not ready for major anger....

I am little upset today L
As some of you know, Regina is wearing FM hearing aid in school now. ( teacher speaks to microphone, regina has ear piece in her ear, and Regina hears what teacher is actually saying. Well, today hug UUPSI happened…. While in music class Reginas ear piece fell out and DISSAPEARED. It is just unbelievable to me to hear that no one could find it. I am 100% sure that one of those kids took it. I know it is not right to blame others, but I know those kids and there are 2-3 kids who are JELOUS of what is going on. And I think that they should have strip searched all the kids. ( I have been in first grade, ad I REMEMBER we had few “good” thieves in there who smiled at teachers and lied to their faces while hiding stolen lunch money….


I just hope that teachers find Reginas ear piece…. I feel little guilty for her loosing it. I should have thought her better to check in every few seconds that if it is still in her ear L It costs her school a lot of money and they did everything to get that ear piece. L


And now about something else. About St Jude. I am pissed , truly am. I hate dealing with endocrine clinic. WAwA WAWAEA. They suck. We have to go ther in april. Well, we had to be there on 15th of February ( I had no Idea) I thought I cancelled our appointments, at least that is what Valerie told me. SO I get a call from Endo clinic- WHERE THE FUCK are you guys. You supposed to be here RIGHT NOW, we NEED TO GET YOU IN ASAP. I had my HUH moment? What you mean as soon as possible. Is Regina is some kind of danger…????

Well, seems like Reginas BONES have to be measured at first in ever 3 months and if it is little longer , I guess her bones just don’t measure right ( just kidding, some dark humor you know). After few phone calls with e clinic and endo clinic ( WHO btw, told it CANT wait, and E clinic told us IT CAN WAIT), I just gave up and told them FCUK YOU. We’ll go there in april. You morons. I really was pissed. I have life, regina has life, Gabriel has life, and now we have to waste 3 days for that one crappy appointment. L Not happy. Not happy at all… I am sure they will tell me – Reginas BONES measure 6 ½ years, and her growth hormone has to be increased. ( Then I tell them, if you are going to pay 300 dollars per months for it, then do so. HUH.) I am sick and tired of insurance comp. who is just raising prices out of the blue with one exp. It’s new year and new prices, it’s new day and new prices… etc..


OK. Now on a happier note. We all are doing great. Regina learns to play chess. I enrolled both of my kids in music to grow on lessons and abrakadoodle art classes ( I CAN not stand competitive sports, or any sports on that matter, and thanks gawd my kids are not into “real “ sports. They both love dancing and singing and acting silly )

Boohooo

Winter sucks... Winter S U C K S>.. I love Ca winter ( Just Like Kathy) , but my kids seem not to take it that well... Regia has Ear infection - again.. She did not have ear infections for over 4 years and now they are back... right before her diagnosis time... She aso is coughing er lungs out. I took her to see her doc and sure enough she has few things.... Now she is n antibiotics...

Gabriel- Cough, strep throat(sp), low grade fever, moodyness, total mommas boy- OMG, what did I do to deserve this....lol

Myself- my ears bother me 3'd month in a row... No cure so far... Nasanex is not working, musinex is not working, nothing is working. I still feel bubbles popping in my ear, and I have b alance problems. I swear, I am allergic to OC. I need to move back to new jearsey.... And My kids are also.... hihi..

But other than that, they both are doing great. :) Regina loves school and so does Gabriel, they just have hard time giving me same kind of love....lol

Boohooo

Winter sucks... Winter S U C K S>.. I love Ca winter ( Just Like Kathy) , but my kids seem not to take it that well... Regia has Ear infection - again.. She did not have ear infections for over 4 years and now they are back... right before her diagnosis time... She aso is coughing er lungs out. I took her to see her doc and sure enough she has few things.... Now she is n antibiotics...

Gabriel- Cough, strep throat(sp), low grade fever, moodyness, total mommas boy- OMG, what did I do to deserve this....lol

Myself- my ears bother me 3'd month in a row... No cure so far... Nasanex is not working, musinex is not working, nothing is working. I still feel bubbles popping in my ear, and I have b alance problems. I swear, I am allergic to OC. I need to move back to new jearsey.... And My kids are also.... hihi..

But other than that, they both are doing great. :) Regina loves school and so does Gabriel, they just have hard time giving me same kind of love....lol

MADELYN..

Few days ago I learned that our friend Madelyn has relapsed. She was diagnosed with Neuroblastoma in January 2004.

She is one amazing kid...
Think about her she needs your prayers and get well thoughts...:)
http://www.caringbridge.org/tn/madelyn/

Update...

:):):) Regina had her MRI today. Still same. Dr Gajjar is now 100% sure that changes in her Brain that MRI with contrast picked up are due to radiation therapy.

My question to him would be- So if MRi picked up braindamage, how soon are WE going to see the side effects of that severe damage??? ( we allready see minor ones- Very slow processing information and forgetfulness...) Scary stuff..

AND second bestestestest news after clean MRI scan is - WE ARE DONE GOING TO ST JUDE IN EvERY 3 MONTHS. Next apointment will be in 6 monhts . WOHOHOHOHHO

:)

Happy New year :)

Please keep your fingeres crossed for Regina. Nick and Her will fly to Memphis on Monday(8th) and she will only have 2 appointments- MRI and nurtrition checkup. :) I hope all is well, and whatever changes appeared in her brain about month ago are no gone. :)

:)

I hope you all had fun-fille JUST WHAT I NEEDED kind of gifts. :)

We spent our Christmas in Big bear , learning to snowboard. We dropped Regina and Gabriel to snowboarding school, where they spent whole day learning to snowboard. Gabriel told me that HE LOVES it and it is lots of fun, but Regina thinks that It was fun, but not really her thing. :)

my dh had jetflag and missed his first day of snowboarding. ( wasted 150 dollars), and in most days he was sleeping until noon.. Our cabin was cute, but had few major issues. We wanted to use fireplace, but after 45 minutes of fire , smoke started to come into house. It was SMOKY AND WORST PART WAS that smoke detectors didi not activate. Very upsetting. Then, heater did not heat up second floor, so we all slept downstairs , also doors did not lock properly, and previous renters left trash everywhere ( outside). But overall, it was one of the funnest experiences I had in a long time. I learned to snowboard. It is unbelivable feeling to race down the hill and NOT fall once. But first day (4 hours) I spent sliding down on my butt...lol I did injure myself couple of times, but I really did not care about that. :

Regina and Gabriel got for christmas- JUST what they needed- American girl dolls, pop up books, bike, Supergirl TV, clothes, puzzles,cars....

On 28th, it was our 8th weddig anniversary. We went to Beverly hills and had HUGE dinner in Brazilian BBQ- 15 different kinds of meat and Awsome salad bar,. After that we just walked around and ended up in bowling place for 21 and older. And after few more drinks we went back to our hotel.( kids were with babysitter). I desperately wanted to go to vegas, and we made plans to go there, but my dh chickened out- TO LONG DRIVE. He has been downer lately....

Today is dec.30 and tomorrow dec31. I still can not belive that one more year has passed. year 2006 was good but very challenging year. Regina started growth hormone therapy, ( and she is growing allready), she started antigen therapy for her allergines, 1st grade, new skills, new hobbies, she is learning to read, and so much more..

Tomorrow we will be going to LA Estonian house to welcome year 2007. :) Talk to you soon.

Stay safe. :)

Happy HOLLLLYYYDDDaaayyyySSSS. Oh my goodness, when did this happen- we only have 2 more weeks of 2006 and then it is over... OVER foreeeeeever....
If I think back, it was fun year. It was year full of challenges- Gabriel starting Kindergarten, Regina entering first grade and learning to read, Nick "moving "to china, Me starting college again, and so on ...
I really want to thank you for being here us and thinking about us and sending us letters, and cards and emails, and thank you for all the support you guys have given us throughout the year.:0 That really means lot to us... I hope little Thank You does it :)


NOW , Regina will be flying to St Jude on 8th of december. This time he will go with Nick, since that week I have to go back to college. Anyway, I made Nicks trip as easy as possible.. HE GOT LUCKY. When I fly, I have to fly from Santa ana to Minneapolis, and from there to Memphis... But Nick got NON STOP TICETS FROM LAX TO MEMPHIS. And that is thanks to me.. ( We'll that is my gift to him , It just costed me 5 minutes on phone with St Jude Travel office....Lol) . Regina has MRI 6.45 AM on tuesday the 9th, then Nutrition Follow up, then dr check up and that is it. They will be flying back on same day 3 pmish..:):):) Since I am obsessive compulsive something something, I am worried about how Nick will do it.... lol lol lol... Will he be on time, will he ask right questions, will he this and that... I know he can do it, but since this is his FIRST TIME to fly to follow up appointment with Regina I can't help but being worried :)

Angel Carol :):):)

THANK YOU :) Regina and Gabriel ask me to ask " WHAT TIME IS IT NOW" all the time....lol

Doing good.

Regina is doing awsome. Sorry for not updating for such a long time. :):) It is holiday season and we are just way to busy wrapping and rehearsing and cleaning and attending partys.... As much as I love Christmas, I wish people did not have birthday partys around Christmas. Seems like everybody has birthday....lol

BTW, my sweet Girl Regina is TEACHER OF THE DAY.... She gets to give out orders, follow around teacher all day, enjoy hot chocolate with doughnot and have HUGE pizza lunch with other teachers of the day.. It is sooooo cute..:):):) Very cute. If you ask how she got to be teacher of theday- Well, I purchased 5 raffle ticets - 2dollars each, I wrote her name on it and dropped it into box. I am not sure how many other moms in her class did it, but her name was pulled out of box and There you go- Miss Tan!!!! Good for her.:) At least she get's to be miss boss for a day.... :)

Gabriel is also doing awsme. He enjoys school very much. He does his homework and learns to read . REGINA is awsome reader now. I can't belive how much she has learned within these past few months. She still has hard time decoding some words, but in overall, I am very proud of her. :)

HAPPY THANKSGIVING....

HAPPY THANKSGIVING TO YOU ALL.

Real fun week- not.

This week has been real interesting. no school for kids since wedsnesday. You, they have been home with me because of parent/teacher conferences on wednesday thursday and today is veterans day and of course DAY OFF. I am not liking this not one bit. All absent days in school will make my kids summer vacation really short. School ends on june 20th this year. Yuck. I have plans for summmer you know . I wish last day of school was june 10th.

allrighty guys. Guess what ?? 3 months have passed very fast and on sunday Regina, Gabriel and I will go to memphis again. THis time it is really short. Our flight lands in memphis 12 .15 AM ( yup, middle of the night lol) Our first apointment is on monday 4 pm ( MRI) . And on tuesday we have just patient screening an no off therapy and the we fly back to CA ( tuesday afternoon. ) We will be back 6 pm.

I am not asking much from you guys- just think about us and send some clean scan vibes to Regina :)

Genotropin and Regina.

( Regina drew this Picture to my sister Sija today) I have to ship it to her. I am not sure what inspired her, but I love it. It is very interesting piece of art. :)
Regina has been on Genotropin ( growth hormone) over a month now. She really does not mind shots and it is not hurting her. HOWEVER, there are few side effects that are bothering me, and I hope to get answers to my questions when we go to memphis this upcoming sunday ( we will get there at midnight on sunday and get back to OC, on tuesday afternoon).
Anyway , here are the side effects that I think Regina is having.

• Constant Headaches
• constant stomach aches
• feeling "shaky" at times, mostly before bedtime
• heart beats faster ( she tells me that her heart wants to jump out of her chest)
• increased birthmark growth.- suddenly seems like birthmarks are increasing in size and popping up one after another
• SHE IS VERY, VERY moody,
• VERY IRRITABLE.
• VERY hard to handle
• sudden changes in her mood, ( cryes one moment, and then she is suddenly fine.
• Little things drive her out of her element- I take her empty cup away, and she will run after me and scream on top of her lungs like I am murdering her..... etc.
• Increased coughing at night ( one of possible side effects)
  

So here you go. I am pretty sure that tummy and head pains are caused by meds, also- she might be little depressed, since I am not the "best" mommy at the moment. I expect to much from her and that causes some stress between us.... and Gabriel sees it and uses it to his advantage....

If I got payd to do my job as being mom- I'd be millionaire......

Halloween...

My front yard.

today we went trick or treating. We just did our street , which is about 50 houses and that is it. My kids are not really candy lovers- they love plain M&Ms, strawberry lollipops and skittles and that is it. But of course this year we did not get any of these candys and they were dissapointed. lol Lots of reeses cups and other nutty treats that they dislike. So I think I am just going to send most of that candy to estonia. ( about 3 lbs). I told my kids that if they are going to leave candy outside Candy fairywill come and leave them 5 dollars. They were more than happy do to so, so tomorrow when I wake up I have to remember that Candy fairy visited us....

Ok. About costumes- Regina was Ariel and gabriel DUCK. lol He is funny. He does not like superheros or "big time kid stars" he just wants to do his own thing. Good for him for being different. :)

Pictures later. I just have way to much in my mind right now ( well, I ate about 15 mini almond Joys- my faves.....) and Now I am trying to figure out how to stop tat candy to crawling straight to my thighs..... pure processed cancerous sugar..... yuck, but I still like it.

(Riley, Regina and Devin)

AND , if you guys have some good advice what kind of TV to buy , I'd be more happy to listen to your advice since my TV downstairs. ( toshiba) made a blasting sound and went black and now all I can see is red flashing light ( I can't turn tv on or off ) . So now I have to spend my eveinings and days in my bedroom watching 10 locas channels that have commercial brakes same time.....duh...

Regina and Thanks and giving.... CHECK IT OU!!!

Check out My girl Regina on St Jude Thanks and Giving page :) Isn't she sweet ??? How can you not care if you listen to those cute sweet voices. :)
http://www.tg.stjude.org/Patient_Stories/Patient_Stories_Home.htm

Ride for kids

Thank you Kathy for inviting us to such an cool fundraiser event. :) Regina and gabriel had lots of fun, and so did I. Since, I do not want to rezise my pics down to some crappy quality, I give you my shutterfly album, where all the pics I took are stored. I hope you can view them. But yeah, not that I am in blogger beta i can not post my beautifl large filed pics because blogger says so.
http://share.shutterfly.com/action/welcome?sid=8ActWTNq4ZuGJ0