Friday, January 30
UGH.. that is all I got to say.
You know that I always tell you how it is, and I never sugarcoat the truth. I wish I had some better news for you but I don't.
Anyway, sad truth is.. IF gamma knife radiation did not work- REgina has max about 10 days. Brain stem tumors are not FUN and EASY tumors to treat or cut. And they take you down FAST.
We went to CHLA today to consult Dr. Dhall. We have not many options.. JUSt some, to MAYBE keep regina here little longer. . There are 2 things to do now- NOTHING, or Hit her with pretty serious chemo. NOTHING IS STUPID. Sorry. I understand that life quality is important. But we just had surgery, and gamma and to do nothing is just S T U P I D.
Other way is... Cisplatin, vincristine and lomustine ( CCNU). side effect for this chemo is low blood counts and possible infections which means more hospital days... It took me while to convince my DH to go THIS way. He was against this chemo. Originally we were told to start different kind of chemo, but that chemo is WAY to soon after surgery. Maybe, if in 6 weeks Regina is still here, we can try that other chemo. Keep your fingeres crossed.
NOW. ON monday I am going to take Regina to CHildrens hospital of Los Angeles. We will be admitted maximus of 24 hours. After that we will go home, and visit CHLA occasionally for other chemo drugs. Home healtcare nurse will come to our house and draw Reginas labs. And if her labs drop, then we have to go to CHLA for some blood or platelets.
Right now there is no right way . I hope that things tak better turn soon....
THANK YOU FOR YOUR SUPPORT GUYS:) YOU MEAN A WORLD TO US :) Myself I am doing best I can. It's not easy but what else can I do ??? :)