Thursday, January 22
Regina is doing great. :) Chest tube is out. Lung is functioning fine :) Tomorrow, most likely her EVD will come out - external shunt. By sunday we should be home .
GAMMA knife - on thursday and after that back to CHLA to try some chemo.
Brain surgery -2004
32 Radiation treatments in 2004
Stem cell rescue
4 months of high dose chemo with auto stem cell transplant ( 4)
Brain surgery june 2007
5 months of high dose chemo with stem cell transplant
9 months of oral chemo on 2008
Brain surgery on January 6th 2009
Brain surgery on January 13th 2009
one double hickman line
2 broviac line placement procedures.
Picc line procedure
Collapsed lung, chest tube inserted...
Gazillion pokes, numerous blood transfusion, platelet transfusions, infections , etc...
Upcoming Gamma knife
Upcoming experimental chemo...
... Not sure what else...I am sure there will be more upcoming procedures and surgeries and. meds...
.. why we are doing this... "no child should die in the dawn of life." Danny Thomas