Thursday, January 22


Regina is doing great. :) Chest tube is out. Lung is functioning fine :) Tomorrow, most likely her EVD will come out - external shunt. By sunday we should be home .
GAMMA knife - on thursday and after that back to CHLA to try some chemo.

Brain surgery -2004
32 Radiation treatments in 2004
Stem cell rescue
4 months of high dose chemo with auto stem cell transplant ( 4)

Brain surgery june 2007
5 months of high dose chemo with stem cell transplant
9 months of oral chemo on 2008

Brain surgery on January 6th 2009
Brain surgery on January 13th 2009

one double hickman line
2 broviac line placement procedures.
Picc line procedure

Collapsed lung, chest tube inserted...
Gazillion pokes, numerous blood transfusion, platelet transfusions, infections , etc...

Upcoming Gamma knife
Upcoming experimental chemo...

... Not sure what else...I am sure there will be more upcoming procedures and surgeries and. meds...

.. why we are doing this... "no child should die in the dawn of life." Danny Thomas


Kathy said...

It's not fair.

But she's coming home soon, and that's awesome news.

Anonymous said...

Wonderful news that she is making positive steps in her recovery. What a strong girl she is !!
Gayle Steuckrath (Brooke's Mom)

Old Lady Lincoln said...

Congratulations on her coming home. So glad everything has been going well for her. I know she will be so happy to get home again. Wishing her and her family all the best.

Anonymous said...

Hi Regina and Diana and Family,
You are all constatly in our thoughts and Prayers. Glad to hear that you are finally coming home... What a great feeling. Hopefully we will see you soon at the CHLA Day Hospital... Love the Nihei's, Lauren, Hilary, Gordon and Marissa

Jinsong TAN said...

So glad everything has been going well for Regina.