Axiem Stereotactic Guided Craniotomy for tumor resection---
That's what Reginas surgery was called.
First, I would like to thank all of you for emailing, calling texting, leaving Facebook, myspace, ORkut notes. THANK YOU.
NOW about Reginas complicated surgery. Surgery went ok. Dr Loudon told us that LOT of tumor got removed. It was not an easy task, and he said that this Stereotactic method was rigth kind of surgery and was very helpful. THEY removed MOSt of it in ventricle, ( PArt of it is still there close to basal ganglia), then sucked out one more tumor. Bad news is there is one tumor that had doubbled in size over 2 week period. AND it has about 2-3 more weeks before it starts worring him- sadly that tumor was not removable, and we have to wait till gamma knife..
Right now Regina is "sleeping" , she cant move, she cant talks. Mashines are breathing for her> Her vital signs are great.
WHY you ask? WHY is she paralyzed?( sp?) But because she has HUGE hole in her brain HUUUGE empty spot, that even minor movement can fill it with blood and kill her.
She is not feeling any pain, she can hear us, but she cant move.. She is true SLEEPING BEAUTY right now :)
Tomorrow she has one more MRI and then most likely they will start waking her up. PLEASE hope that she has no major side effects from this surgery.
It is very hard for us to see our girl like this, but we are hoping things will be better tomorrow :)
Love you :)
22 comments:
Seeing our kids intubated always makes me cry.
Regina is in good hands. Hugs to all of you.
Hugs and good wishes.
Hugs!
we love U regina malloys
I'm hoping for the best for your beautiful little girl...I'm a st. jude patient follower! Hoping for a miracle for Regina!
Keeping you all in my thoughts and prayers. (((REGINA)))
Still praying. Can't wait to hear she is up and talking :)
Carolynn
BIG HUGS & EVEN BIGGER PRAYERS!!
Diana, you guys are in our constant thoughts and prayers. I don't want to bother you but please please please, if there's ANYTHING I can do to help you out let me know. The kids and I will continue to check for updates...
Love to Regina, Gabriel, you and Nick!
Melissa, Jeri, Zach, Zoe and Eric
Diana and Nick-
Regina is always in our prayers..God is with her.
Love to you and Gabriel..
Doris , Kevin, Kate and Livi
Sending best wishes and prayers.
Harry
wishing you all the best for today. i hope she can wake up with no complications and everything will be just fine!!!!! -merit
Sending prayers and good wishes to you whole family.
Best wishes to Regina and her family. Hoping all turns out well for her. Love to you all.
My love and prayers go out to you and the family. As soon as you can, please tell Regina I love her and I miss her terribly in our little math group. Tell her we're still working on our times tables and we have plenty of worksheets for her all saved up (Ha Ha!) One of my favorite things about Regina is her great sense of humor. I can't wait to see her again.
Love, Katrina (Mrs. Soto)
Everyday I pray for her after my morning meditation. I know she's in good hands and I bless you for your strength.
wishing you peace & Regina healing,
Kristin, Genna & Rosie's mom
Hi Diana - I checked in our your blog the other day and read about the upcoming surgery. I will continue to pray for Regina. She is so incredibly strong. I really admire her. I know you have been on such a rollercoaster ride with recurrence and what to do for your Regina. I have to tell you that I believe everything you have done has been exactly what I would have done. When you are given a window of opportunity to try and kill this beast, you take it. Even if it's a slim chance you have gone for it. You, Diana, have amazing strength as well.
Our Ellie is home now. We are on the wait and watch. Dr. Gajjar has given her a 65% chance of being cured from the S-PNET Tumor. She still has some residual but he cannot tell if it is scar tissue or not. We go back for our first check up since chemo the end of March. Obviously I will be nervous but we are all trying so hard to live our life and not live in fear of cancer. That is no way to live. Ellie feels fantastic. You would never know she had gone through what she has if she wasn't bald with a huge scar. I pray so hard that God will take away any cancer cells. The treatment is all finished and it is up to Him now.
Just wanted to check in and let you know we are always thinking of you and will continue to pray for Regina's complete healing.
God Bless-
Colleen
www.caringbridge.org/visit/ellie1
Praying for awesome results when Regina wakes up. Glad they got a lot of the tumors out and praying the rest can be remove with gamma knife so that Regina can once again be tumor free!
Keeping all of you in my thoughts and prayers.
~Lori
I have had Regina and your family on the prayer line since she was in first grade. (My granddaughter goes to Regina's school.) Just know that you are being held up in prayer.
"Lord, when doubts fill my mind, when my heart is in turmoil, quiet me and give me renewed hope and cheer."
Psalm 94:19 (Living Bible)
Hi,
Always in our thoughts, let us know if we can help!
Elisabet, Gunnar and the kids.
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