For Life As it is.
Regina had a tough day yesterday. Pain, allergic reactions to tape, not sure if pain was pain or itching. Headaches, vomiting. She did smile and watch tv and eat some food. But in general she acts little upset and is not sure what is going on with her. Her personality has changed a bit. She still has her sense of humor, but she has more anger in her now, and when she gets upset, it is almost impossible to calm her down.
She is off all Iv meds and fluids. In that sense she is doing good.
And now worst stuff. Regina has one more REAL surgery coming up on Tuesday. Sadly her surgeons missed one big chunk of tumor that is in safe area, and they do not want to waste gamma knife radiation on that spot. Dr Loudon believes that best thing is to cut it out. Of course, risks like stroke and seizures and bleeding in brain are there, and who knows what else could go wrong. But I still feel like this is right way to go.
I know some of you are starting to doubt my sanity- why I am doing this. I am sure Nick thinks same thing, but sit and wait?? No. IF something goes wrong during surgery- we have great memories of Regina . but if things go as planned, we can spend more time with her and create even better memories. You know what,I actually enjoy this one on one time with her in Hospital. I feed her, I play with her, I change her diaper, I give her meds. Yes, I am lucky that I do not have to work.
Anyway, keep your get well thoughts coming. She needs them constantly
19 comments:
Armas Diana,
see on ainus ja õige tee mida mööda sa lähed...need inimesed, kes sind hukka mõistavad ja kahtlevad su nn terves mõistuses ei olegi kunagi õppinud iseennast kuulama...kuulama enda sisemist häält ja sellesse uskuma.
Reginal läheb suurepäraselt!! oksendamised ja peavalud on üks osa tema tänasest haigusest ja kui see nii ei oleks, võiksime arvata, et midagi on valesti. Te saate sellest koos üle...kõik see, mida sa teed on nii armas ja õige, ma kogu oma südamest loodan ja usun, et sul jätkub jõudu koos Reginaga sellele vastu pidada...palun ärge murduge...
Hoian Teid oma südame lähedal ja olen täiesti kindel, et see on üks paljudest väljakutsetest, millega Regina oma elus hakkama peab saama...ja saabki :)))
pray for Regina and family.... love for Regina... all the miracle in this world are for her..
Sending love, hugs and good wishes your way.
Love, Beth and Heather
Sending you guys strength, hugs, and more.
Diana:
One major thing I've learned as an oncology parent is that each parents' experience and decisions are as individual as they are. No one has the right to question or to pass judgment on the path you're chosing to take with Regina. Enjoy her. I'll be thinking of all of you on Tuesday.
Lori
I love the picture of her with her legs draped over the Golden Lab. She (and the dog) look pretty relaxed.
I think our dog Buddy could have been a therapy dog, he's got the right temperament, but we're pretty happy that he's just our pet.
Too bad they don't let pets visit the hospital...
Your girl is a trooper. Personality stuff could be related to so many things, I wouln't worry too much about it at this point.
Hang in there.
You have only the best wishes from the Lincoln's in Ohio. We're wishing only the best for Regina and her family. Give her a big hug from us, sending all of our love your way. Give Gabriel a big hug also. Mom & Dad, hang in there.
Love, hugs and good thoughts going your way Diana. Regina is one of the strongest little girls I know. We continue to pray for her and your family every day.
The Reiley's
Diana, I agree with Lori. No one should judge what you and Nick, as Regina's parents, decide. I don't think at this point there is a right or wrong decision. You have to go with what you FEEL is right for her. ((((HUGS)))) I know our neighbor's daughter had some personality issues (anger and such) after her brain surgery. Hopefully that will work itself out as she heals. My thoughts & prayers will be with all of you, especially on Tuesday.
I know very little of cancer and treatments. But I do know being a mother. My heart and prayers are going out and up for you and your family!
Hi there, swing by from Patty's blog and just wanna send my best wishes and praying that all would turn out well.
Take care of yourself too and be strong.
Dear Diana,
You don't know me, but I have been following your blog for the past year or more. I live in Texas and I am sending you prayers for your family and your daughter as you deal with the new surgery.
As a three time cancer survivor myself, I know you have to do all you can to find a cure, gain more time or anything to help. You are a very strong mom with an amazing daughter. Thank you for keeping us all posted on each setback and each piece of good news as we lift you up.
Many blessings,
Barbara
Sending love and good thoughts to Regina, you, Nick and Gabriel. Can't even imagine what you're going through.
Love, Melissa and gang
XXXXX
Keeping my fingers crossed for upcoming surgery!
Dear Diana:
I'm so pleased to hear Regina's doing well. Wishing the best for Regina and love for her...
I'm very sorry I can't help you.
Take care of yourself and be strong. I love you!
Jinsong TAN
Diana and Regina,
please know that the gymboree play and music family is still praying for regina! Our love and prayers to you and regina.
I wish you all the best and trust in a good result. I hope Regina will be better soon. Myy thoughts are with you.
Ellie and I are thinking of Regina and praying for an easy surgery tomorrow and that all the tumor is ressected.
As a mom, you want the best for your child. If there is a chance for her to live a cancer free life, then I understand your decision. Please put this in God's Hand and ask Him to safely bring her through surgery. Never underestimate the power of prayer.
www.caringbridge.org/visit/ellie1
Sending many heartfelt prayers to Regina and all of you. God Bless you.
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