Wednesday, April 29
We were "forced" to go to CHLA today. Sadly, ( yup, crying here), our insurance does not authorize anymore home blood draws. :(:(:(:(: Well, F you BLUE CROSS . YOU SUCK. BUT That is not it.... Since REginas neurosurgeon Dr. Loudon is OUT OF NETWORK doctor. our deductible is 20 000 plus whatever dr. decides to charge us : () GOT a just love this . SO if you have lot of money hanging around, or know any great foundations who can help with deductibles let us know. WE NEED all the help we can get.
SO, back to labs. REginas platelets had dropped again. Barbara ( our care manager) wasn't very eager to give REgina transfusion- I get it, REgina had few horrible experiences, and if immune system is down, platelets get eaten fast by Reginas marrow or whatever..
BUT SHE NEEDED them. SHe has been sleeping and taking 4 hour naps, not eating , feeling tired and down. After this transfusion she was BACK :) At home she finally ate more than usual again..
Also, guess what. You never guess...... PARIS HILTON visited CHLA today. YUP. SHe was all pretty , wearing HIGH heals, pretty spring dress, with her perfect hair, and perfect fuckin' skin and perfect poses... UGH...... SHE IS SO MUCH PRETTIER IN PERSON... SHe was beading with cancer kids today- FOR ALMOST 3 hours. She did good. I give her Credit for doing this. But of course, she had to leave whole box of her "brand" stuff . So pretty much this trip was promoting her stuff. Since REgina really did not care much for her, we left play area and went back to her bed... But then one ( our fave Nurse) told us to check out play area because they have some "free" stuff .. SO I RAN to play area, but of course, I got leftovers ;) Just Paris Hilton watch and later on nurses brought belt for REgina :)
We are going back to CHLA on Monday for labs and on Thursday for labs.:)
ON friday , May 8th I will turn 31 years old.... AAAHHHHHH