Thursday, August 13
Thank you so much for your kind words and prayers and good thoughts and vibes, and emails and phonecalls and everything else you guys have done. I am sorry that I have not returned all emales and calles , but honestly I just don't have anything else to say. Regina is stable, STILL . SHe is not doing worse, she is not doing better. Still same cute young REgina :)
SInce we have weaned her off steroids she is also eating less, but STILL A LOT :) SHE demands me to bake her foods every day.. AND GUESS, who has to taste everything gazillion times to make sure it tastes right ??? MEEEEE... hehe.. Love my job ;)
We are so fortunate to have so many good people around us caring about REgina :) I know most of you want to help more, but afraid give me a call or drop a note. DOn't be :) If you want to help then drop by and say HI:) Just for few minutes :) I really hate phones I DO . I can't stand phones and small talk. it just drives me grazy.. I LOVE people, but not talking to them on my cell.... srry guys. :( So if you want to contact me text me (949) 290 6958
We had hospice care ( Trinity Kids Hospice care) Only pediatric hospice care center in OC and LA area. LOVE THEM. We haven't signed any papers yet, but next week I will give them phonecall and get things started.
I also cancelled ( AND people helped me cance) whole bunch of appointments- physical therapy, audiology... endocronology, blood draws 3 times a week. SInce REginas labs were PERFECT on tuesday, I want little break from it. So we are going back to CHOC on thursday:).
Also.. Please recommend good CHILD friendly hotels in OC and LA area with POOL, or things for kids to do. I told Nick that we should go to hotel ( since kids LOVE hotels ) and spend a night there. Get a manicure with Regina, pedicure... you know, simple things...