Saturday, April 30

Back home :)

We are home now. Gabriel has weird rash on his body. He gets it when he drinks milk, or orange juice or eats bananas. It is weird. I hope it is not infectios. Regina is not feeling very well eater. She threw up again and seems down . her gums are red and swollen and she has no apetite. She still playes but is not herself. I think she got some kind of virus from St Jude. I saw a lot of kids really sick and not wearing masks. What happened with green mask rule??? Coughing, runny noses, fevers- did parents have not any idea what one sick infectios kids can do to hundreds with zero ANC. But who am I to tell??????

Top 10 most frequently asked questions in St Jude.



How are you?-Great
How is Regina doing?- Great
Does Reginas hair grow back already?- look and see
For how long will you be staying this time?-For a week
Did she relapse, that is why you are back?- Now she did not, we are here for a check-up.
What kind of meds is she on now?- None, she is medicine free
Does she have her central line still on?- Nope
How old is she-5and half
Did you made her pink little hat?- No I did not, I bought it when she was about 9 months old. I bought it from Gap.
Did you have fun at home?- We sure did.

I really did not mind answering these questions, but I got little tired telling the same thing over and over again. Why nobody asked what is her favorite food now, and how is she physically doing( Dr Gajjar did ask that), etc. ? Maybe next time. Lol

Our first 3 month check up is over. It was nice to being “ back” and visiting with Doctors and nurses. I feel bad that I did not take time to visit B clinic, because Reginas favorite nurse practitioner Kathy was probably wondering why we did not step in. Sorry Kathy. Every time we had time to go over there Regina was ether ready to nap or drugged up. L Better luck next time.
Many more appointments to come, and many more questions to be answered.

Di

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