We did see Dr. Dhall on Wednesday in CHLA. We did not check her scans, but I got a copy from hospital and when I feel like it , I will check it out myself and post a pic. for you guys :)
It's not fun being a mom to a 9 year old cancerpatient. 5 Years ago ( on 28th of may , REgina had her First brainsurgery) and we thought that that was it. NO MORE CANCER :) WOHOOOO. And we were at peace. Not really worring much. THen second surgery ... HUH, peace was taken away but we managed to find it ... third and fourth surgery just crushed all hope that was left, and I am not at peace, I am relieved that tumor is stable, but I am so done with living DAY by DAY hoping that TUMOR NEVER starts growing again. I don't want to worry about it, .. But things are different.
Dr Dhall thinks ( but is not sure) that tumors are sensitive to Chemo. And "smart" way to go is to try some more chemo... Even though Reginas body is tired of chemo, she did recover pretty nicely again. So we are giving lower dose chemo one more chance. 3 different drugs. Once IV one ( VIncristine) once a week for 3 weeks in CHLA. and 2 oral drugs . CCNU - only once, and then Procarbazine fpr 10 days. We see how she does. IF it does not affect quality of her life, then we will give one more round but little higher dose ( 15 days).
I know , we can't keep doing this forever. Some of you are getting frustrated with this, and are done with cancer crap, but this is OUR life. My desisions are based on HOW well REgina is doing. Yeah, I do complain once in a while. WHO WOULD'nt. WE all have issues , we all get pissed off once in a while and need to vent.. Sometimes I listen to your issues and stay neutral, sometimes I just don't.
Anyway. More low dose chemo. MOre Labs, MORE MRI's, MORE this n that. AND if it prooves to keep her alive and does not affect her Quality of life , and she WANTS TO FIGHT WE DO IT AS LONG AS IT TAKES ;0) capiche?
Regina went to School today and she lasted all day :) Again, her classmates and friends were very exited to see her, they greeted her with hugs and WOWOW REGINA happy yells. And more HUGS, and more REGINA yells:) She was happy. I could see it in her eyes.
We also want to thank you Third grade Teaches for a awesome surprise :) WE LOVE YOU ALL:):):):)