Wednesday, November 5

I am bored....

( Regina and Dr Dhall-- we love him to pieces )
(Main trouble makers-- there is one more huge spot, but I can't save it in my comp)



To be honest, I am tired of this cancer talk. UUUUHHH. Yeah, you heard me. I am over it! DONE!
Well, I want best for Regina and right now what I want is not available for her... CANCER FREE LIFE !!!-- It is not our near future..

My dear friend Kathy came all the way from San Diego to be with me in CHLA today..( THANK YOU very very much) and She saw Regians scans, and saw how boring my hours in CHLA usually are... But she knew it before she came with me.. She is one of those LUCKY St JUDE moms. ;)

BUT, Tumors have grown and A LOT. And right now we , once again, we do not know how much time we have with Regina.. NObody knows. Regina has a mind on her own and only she knows. :0 ) We just have to deal with it:) So rest of you just have to be really nice to her and send her lot of junk ;) I do not mind it at all ... Whatever makes her happy, SHE HAS TO HAVE IT!!
If she feels like not doing her home work- FUCK IT, WHO CARES!!. IF she does not want to go to school- IT IS NOT END OF THE WORLD. If she wants to stay up late-- SO???

So be patient with us and send your well wishes to her way.:):):) We love you guys:)

12 comments:

Kathy said...

She's got it going on, fuzzy hair, Tinkerbell shirt, Hannah Montana shoes--

If only her teeth weren't pink...

Hugs to all of you.

Sleeping Beauty said...

OOH, Kathy... i made her scrub those teeth.. But I guess she kind of likes them Pink...;)

Anonymous said...

this is tiffani. i have 2 girls. 4 and 7. My oldest, maci would like to make her something. how do i get it to her?

i agree - she can do whatever she wants! make the dreams that we can control come true. she deserves it.

i hate this. i hate this. i hate this.

i wish i could hug you all... we are all the way in maryland so i guess that cant happen. but you and your beautiful daughter have certainly touched our lives.

send me an address and we will send some goodies! we want to! my email is killianettes@gmail.com.

Old Lady Lincoln said...

I am sending well wishes to the entire family. Regina, Gabriel, Mommy and Daddy. I am so very sorry this is all happening to her. We can keep praying for that miracle. As a family I know you are all strong. And remember there are a lot of people out there rooting for her and a recovery. Love to you all.

Reader Wil said...

I too will wish you all the patience, love and support for the whole family. We can only pray!

Wanda said...

I came by from Patty Lincoln's post to send by best wishes and prayers to a brave little girl and family.

LOL:Wanda

Winifred said...

I got your details from Patty Lincoln's post too.

All my love, best wishes and prayers for you all.

Melinda said...

well Pat Lincoln is my mom....and I found out about Regina a long time ago. I guess I am a lurker of sorts...but I am praying and have sent prayers for your entire family and Regina's behalf and will continue to do so and ask God to touch and heal her body in a miraculous and powerful way!

Nancy said...

Yes, let her do as she wants. Nothing wrong with that. She's been through so much, so why not! I am praying for a full recovery for her! She has so many players AND prayers in her court! And God hears our every prayer, and He does answer prayer, too.

(((((( HUGS ))))))

Leah said...

This just sucks! I'm so sorry. But I agree let her do what she wants. Still praying.

Anonymous said...

wow, life is so unfair and unpredictable.....

Denise Martin said...

I am so sorry about the MRI. I hate cancer, you know? I think you're right to let that precious baby do whatever she wants!

Denise
www.taysplace.com