Doctor from St Jude endocrine clinic called today. I thought- OH NO, he does not want to reschedule Reginas October apointments. lol
But instead he told me that He and Doctor Gajjar had "couple" of conversations about Regina and her counts and growth etc and since she grew 1, 1/2 inches within past 3,5 months , he thinks that Regina does not have to go to st Jude in october for Insuline injected growth hormone testing. When we go to St Jude in December he will evaluate Regina one more time and if she continues to grow , then she does not has to get those daily growth hormone injections.
I feel pretty good about it. I was scared , so scared about that test. And now i can sleep somewhat better at night. :)
Dr Gajjar mentioned when we were in memphis that he tried to talk to Dr Shelso about this extra trip to St jude and that he thinks it is ridiculos to bring Regina in just for that one test. I guess Dr shelso listened to him and re-thought about his "experiment" with Regina. OR he just got scared at dr Gajjar.... lol
ok.
Regina still coughs a lot and has painful blisters in her mouths and on her lips. She did not get fever last night but she woke up every half an hour to drink water. ( I have not had good night sleep for 4 nights in a row now), Which makes me grumpy and moody and picky and icky...;)
3 comments:
if you are gumpy and moody - best time to turn to your PMS blog... :)
i am so happy to hear that test were ok and you will be saved from this extra trip!
isn't nick coming soon back? he will be help!
so long - keep up!
hope she will get better soon!
That's great news about endocrine.
I've been so very thankful that we haven't had to seriously consider growth hormone yet, or the testing.
Hope Regina (and you) feel better soon. Sometimes I get sick after something stressful (like Memphis trip), but for me it's usually bad, my body rebelling maybe after all the junk food and weird diet and no sleep that happens every time we go back for followup visits.
When will Nick be back?
Nick will be back on Sunday night. Then on monday We have Reginas Wish Granting party and on Friday ( next week) we'll fly to florida. Just send some good healh vibes here.
DO any of you know is Florida Disney in a safe zone ( weather vise) ??
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