i
I have been reminded by few of you that I have not uploaded my beautiful blog. I do it now. Better late than never.
Nick and Gabriel are back from CHina and Regina is really happy that they are home :) Missed my guys :)
Reginas latest MRI showed no signs of tumor growth. BUT.. BUT BUT BUT> Her ride side is really weak. She can't walk without support at all. She was on steroids but they did nothing for her. All she did was eat and eat and eat. . We are starting Physical therapy on 30th of july to regain some strength and make her right leg and hand work.:)
She is doing lot of coloring, watching lots and lots of TV, and plays webkinz. SHE also eats one can of PRINGLES sour cream and onion potato chips per day ( because of steroids), so guys, if you wanna make her happy, always take pringles chips with you when you come over.
another her fave food is fried potatoes .NOT french fries, more like hash brown style cooked withbacon and with little oil only.
We are still going to choc 3 times a week for labs mostly. Sadly REginas counts have not recovered yet, and we have not been able to start chemo. Sad. :(. We were supposed to start 2 weeks ago, but platelets are not stable enough to do so. So we check her platelets and if in 2 weeks they are still not 75 000 ON THEIR OWN, then we have to think twice before starting chemo. Not happy about it. Dr.'s think that reginas tumors are chemo sensitive and prevent tumors from growing, so if we stop chemo.. who knows what might happen . Hope that nothing happens and they just stay stable for a very very very very long time :).;
Also, Regina has double broviac line in. We were talking to Dr. Dhall, and if REginas counts remain stable and platelets are high enough, we will remove it, and place port, which is not outerior line. In this case REgina could swim ( good for her physical Therapy), take long baths and does not have to worry about 2 hanging "hoses" on her chest:).
That is about it.. Gabriel stars Crown Valley YMCA in august, so at least he has something to do during daytime.
Once again, I want to thank you all of you for being so patient with us.
Di
3 comments:
That green can again...
Big hugs to all of you, I'm glad Nick and Gabe are home.
So happy for Regina and you that Nick and Gabriel are back home. Good to know Regina is holding her own.
I see the steroids are giving her that round face, what some people call moon face. The same thing happened to me, I was on prednisone for about 18 months for my lung problem. I was hungry all the time. I was already overweight, but I gained an additional 25 pounds. I worried about it, but doctors all said, that was the least of my worries, and believe it or not, as the medicine was tapered off to the point I no longer needed to take it I lost that additional 25 pounds.
Hope that tubing comes out soon so she can get in the swimming pool.
I just love you...what can I say! Something very special about you and I love what a fighter Regina is! Wow...really puts life into perspective! I am glad her daddy and brother are back home! She must love it! You are an AMAZING mother and Regina is so very lucky to have you right by her side each and every step of the way!! :)
Post a Comment