Friday, March 6

Today was one grazy day.

Regina has such great few hours yesterday. I took her to her classroom for a HOUR long visit. Kids saw her and went like - REGINA:). Run to her and gave her hugs. It was such a sweet moment. Myself I was fighting back tears big time. She looked so proud and happy for a moment :) I just wish I could see it more often..
We also went to mall and did some shopping . She brought herself club Penguin nintendo DS game. After that we got home .. and she got a mild headache...
Few hours later, 9 pm, she was crying that her head is burning inside. AND it hurts a lot. I had ran out of all the pain meds and olny had tylenol. Which of course did not work. SHE was awake all night. dosing off for only few minutes at a time.

Today her headache continued and I emaild Dr. Dhall. he prescribed some decadron..

....

FAST FORWARD.
Around 10 AM today we went to chla, because Reginas headache was still pretty bad. Dr. Dhall and barbara thought it is a great idea to give her some platelets. Anyway. IN chla she got premedicated for platelets( tylenol and Benadryl). gueSS WHAT. Last time she had reaction to platelets was in 2004 in St. Jude. she got some hives on her scull..Reginas nurse gave her some steroids and after while she started doing better. Also her headache got away...
I really think that Regina has THE best doctors in whole wide world:) In chla dr dhall decided that it would not hurt to get CT scan of her brain. Hour later we were in CT scan area and Reginas head was scanned. CT scan showd no significant change in ventricles, and no bleeding . GOOD NEWS ):)
On monday we have an MRI ( march 9th, 3 PM). We had date set on march 14th, but since regina has been complaining headaches, Dr. Dhall got us new closer date.
Right now Regina feels great. Her brain likes steroids. She is smiling again and eating dinner.

Last night was tough. I cryed , she cryed, She was awake ALL NIGHT and so was I. In morning I thought I could nap, but ater Dr, dhall called, my plans got cancelled. SO I drove to CHLA as fast as I could.
:) AHHHH> I am sooo tired today.. SOO TIRED...

Thank you for your continued prayers and get well thoughts:)

8 comments:

Kathy said...

So please, you sleep tonight. Let Nick do the night watch and if he can't call me and I'll come and keep watch over her.

Barring things like middle-of-the-night trips to the ER, tomorrow you should be well rested. If you can't sleep I bet a xanax/SlimFastshake combo would do the trick.

Give R a hug from us.

Sleeping Beauty said...

:D Hi Kathy :) YEAH, nick can't he is in Asia again :) Regina is still not sleeping, so I just stay awake till she falls asleep completely :)

Thank you for the offer though:D

Anonymous said...

You are one AMAZING mother! And I am so touched by your beautiful, strong, brave young girl! My heart goes out to you as you and Regina fight this beast. I so wish she was feeling stronger and didn't have those horrible headaches. I have been following Regina's story for some time and have not posted...sorry for that. But I about freaked out when my husband updated my computer and I lost track of her blog. I am like, "that cannot happen." So I figured it out and remembered the name of the site and so here I am. One of Regina's BIGGEST fans! You are awesome and I love how honest you are and how fun-loving and goofy you are despite all the crap thrown your way.

Shelley said...

i didn't mean to be anonymous..i will fill in the info later so i can have a real identity!! :) my DD is waiting to watch movie!!!!!

Sleeping Beauty said...

HI Shelley:) :D:D THANK you for your "silent" support :)

Anonymous said...

checking in this morning... you are an amazing momma. I wish I could help. I can't believe you are doing this without Nick. You are A-M-A-Z-I-N-G! And of course Regina is also. I love her to pieces and don't even know her. hugs and happiness to you both.
tiffani

Anonymous said...

Diana - I continue to wish you strength during this time. You are such an amazing mom and even though I have never met Regina - she is so loved! I live in OC and work in Newport Beach and if there is anything I can ever do - please ask. I don't even know you, but feel so much for your family.
Pam

Anonymous said...

checking in... thinking of you.

tiffani