Monday, September 26
Saturday, September 24
Thursday, September 22
And our day Ended in Chilis. At first we wanted to go to Downtown Disney to have dinner, but Regina decided that she was too tired to do so and told us she feels like eating in Chilis. :)
Wednesday, September 21
Monday, September 12
But at first I have to tell you about dessert table. lol I think I ganed about 10 lbs just looking at that table- there was peanut butter and jelly pizza, huuuge chocolate cake, cinamon bread pudding, cherry cake, rasberry cheescakes, lemon square cake, yello, 6 in chocolate chip cookies, rice crispies decorated as cake slices, ICE cream, frest fruits and even more. lol. It was amazing dinner ( at least for me). Regina had slice of cheese pizza, some ice cream and of course her Favorite- CHOCOLATE cake!!!!! Gabril was really scared at first. He refused to do anything at all. But he got really exited when Coofy wanted to high five with gabe. Gabe finally agreed to eat. He had 2 slices of pizza and lots of mac and cheese( miki shaped).
We also got our tickets- our adventure starts 4.30 AM on friday morning. Limo will pick us up and take us to LAX. Regina got Backpack full of things to keep her busy during her plane flight and she also got new dora the explorer packback. I thought dora was NickJr character, not disney- oh well, even the best of us make some mistakes. lol
More to come when I feel better- all that food I ate today made me feel little sick. So off I go.....
Saturday, September 10
She is up and playing right now which is good :)
She is taking 4 different meds now- her thyroid med once, antibiotics(2x a day), C-tussin(2X), acyclover(4x), and her vitamins.
Thursday, September 8
But instead he told me that He and Doctor Gajjar had "couple" of conversations about Regina and her counts and growth etc and since she grew 1, 1/2 inches within past 3,5 months , he thinks that Regina does not have to go to st Jude in october for Insuline injected growth hormone testing. When we go to St Jude in December he will evaluate Regina one more time and if she continues to grow , then she does not has to get those daily growth hormone injections.
I feel pretty good about it. I was scared , so scared about that test. And now i can sleep somewhat better at night. :)
Dr Gajjar mentioned when we were in memphis that he tried to talk to Dr Shelso about this extra trip to St jude and that he thinks it is ridiculos to bring Regina in just for that one test. I guess Dr shelso listened to him and re-thought about his "experiment" with Regina. OR he just got scared at dr Gajjar.... lol
Regina still coughs a lot and has painful blisters in her mouths and on her lips. She did not get fever last night but she woke up every half an hour to drink water. ( I have not had good night sleep for 4 nights in a row now), Which makes me grumpy and moody and picky and icky...;)
Wednesday, September 7
She feels horrible now, she throws up , can not keep even water down. She has slept most of the day, and she got bad mouth sores. And Her Right ear is also infected. :(:(:( I am waiting for fever to show up soon. I have to make her drink little more or we end up in hospital, because she is dehydrated. AND my dh is not home to help me out. :(:(:(
Scans were all nice and clean. Labs looked great :)
BTW. REgina did her scans without sedation :) Since she had fever and was caughing really bad they decided not to do sedation. She fell asleep the moment she entered the MRI and was still 45 minutes. And she even did not cough there.
They did not do x rays as they first promised. Now we are here and ready to go to Reginas pediatrition to get some meds to make her feel better. Robitussin in not working( coughing). Last night she spiked high fever again and I worked hard 3 hours do get her fever down( without the meds BTW). Around 2 am we fell asleep and had to wake 5 am to go to airport. :)
She threw up couple of times in airplane, but at least I know it is not due to braintumor.
Tuesday, September 6
Last night I decided to call doctor on call here because REgina was coughing way to much. We got robitussin and her coughing slowed down. Then , around 3 AM in the morning I woke up becuase she was coughing. I touched her forhead and she was burning up. I took her temp and it was 102,7. I panicked and was about to call 911( trust me, my first thougt was Oh no, she has low counts and she can not fight infections now- St Jude makes me think that way). But I just applied damp , cold washcloth on her forhead for 2 hours. ANd in the morning her fever was gone. Almost gone.
Around 10 am we got called in to get her anestesia going. But Itold them what has been going on and they decided not to sedate her. NOw we are back in E clinic area. THey will thraw her labs around2.15, give her some codeine( spelling?) and try to do MRI without sedation. OH yeah, right lung has little wheezing in, so she has to be x rayed also. ( her MRI is scheduled around 5 pm).
On a good note- I have not smoked for 2 days, so I really did not make any good friends here.....
Friday, September 2
We have set up automatic payments for Make a Wish organization here in Orange county. Today we got the newsletter and guess whose fase was on it?? REGINAS!!!! We attended Wild Rivers Make A Wish party , and she was making a butterfly there, and when it was finished they took her pic with butterfly. Her pic on newsletter is tiny, but it is on front page :):):):):) I showed it to her and she was very, very happy about it!:) So am I !!!!
Ok, now something frustrating again. Today , after I picked Regina up from shcool , 3 of us headed to mall to eat our lunch. Kids Love terriaky chicken there with rice and both of them clean up those huge plates of chicken and rice. After eating we went to pet store( in mall). After that they wanted to play. I TOLD GABRIEL AND REGINA TO STAY WITH ME and not run away. But you know- THEY DID NOT LISTEN. Regina took off running and took escalator up. Gabriel took off in totally different direction and refused to stop. So I finally yelled ( I think all people in the mall heard me). STOP RIGHT NOW. So he stopped. I yelled to regina to take escalator down, which she did without any complaints. We ran to Gabriel and I calmly took, him and made him apologise to me, which he did not. lol
after mall, nothing exiting happened. We went to best buy to
BThen suddenly somebody tapped to my sholder. It was one mom with 2 kids who had seen the whole ordeal. She told me that I don't know how I did it, but I handled it very well. She also sayed that she allready sees her future with 2 restless kids who each want different things, and she sees herself chacing her kids from one end of mall to another. :) lol Of course, Gabriel finally apologised after screaming 15 minutes face down on the floor, and me standing 10 feet away just minding my own business. Then we went to Best buy to get my iPod new USP cord and then Borders to get some books to read.
Kids eat really well during the dinner and now they are in bed.
And i am here worring about my upcoming memphis trip. Wish us luck and clean scans :)
Thursday, September 1
This September, give yourself a well-deserved break from the kitchen and provide hope to cancer-stricken children.
As part of National Childhood Cancer Awareness Month, Chili's Grill & Bar is asking its guests to donate $1 or more to color pinups of the Chili's signature pepper during its nationwide "Create a Pepper to Fight Childhood Cancer" campaign for St. Jude Children's Research Hospital. Additionally, Chili's will donate 100 percent of its profits on Monday, September 26 to St. Jude.
For more than 40 years, St. Jude Children's Research Hospital has been finding cures and saving children. Through its discoveries, St. Jude has helped push the survival rate for acute lymphoblastic leukemia, the most common form of childhood cancer, from 4 percent in 1962 to 85 percent today. And no family ever pays for treatments not covered by insurance, and families without insurance are never asked to pay. It takes more than $1 million a day for St. Jude to continue its mission.
Chili's is hoping its customers can help raise $3 million for the hospital during the campaign. Last year, Chili's raised more than $2.5 million at its more than 850 company-owned and franchised U.S. locations.
For the second year, Jeff Probst, host and producer of the EmmyTM Award-winning CBS-TV series Survivor, will serve as spokesperson for the campaign. "It couldn't be easier to have a positive impact on children who are fighting cancer," said Probst. "You go into any Chili's during the month of September and simply color a pepper for $1. It doesn't sound like a lot, but every dollar helps the children who depend upon the life-saving research and care provided by St. Jude."
For more information, to create a pepper online, or to purchase a "Create a Pepper" T-shirt, visit www.createapepper.com.