Year ago today we were told That Regina has PNET. And it is malignant. Neurosurgeon, who performed Reginas Surgery, came in to see us after we found out. He tried to make us feel better by telling us If he'd ever have malignant brain tumor, he'd rather have this one. It did make me feel better to know that there was hope but those letter meant nothing to me. What the heck is PNET? How did she get it, will she survive, how bad is it, what are the treatment options etc.
At that time we were given only one option and we were told that IF we don't do anything RIGHT NOW, it will start growing back soon. Oncologist is CHOC , scared the shit out of me. HE was brutal and his English was horrible. Option was to do some Chemo, and Radiatin therapy( full brain and spine), and more chemo and even the survival chances are very slim( about 40%).
But thanks to WWW.google.com, we found some great people, organizations who directed us to St Jude. You know who you are-- BIG THANK YOU !!!!
We also spoke couple of families whose kids were treated in CHOC( Childrens Hospital of Orange county) and they were very pleased with treatments in here.
But I just had that Mothers Intuition that sayed- YOU HAVE TO TAKE REGINA TO ST JUDE. And we all are so happy that we made that desision and it worked out great for Regina.
Let's eat some reginas favorite cake today- chocolate cake with chocolate mousse between the layers and topped with light chocolate whipped cream and frosting flowers in the middle :)
Yes, she is chocoholic....
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