FEVER!!!

I just got a call from my husband. He is in LA with Regina right now. Regina spiked 38,5 fever, so Nick is taking her to CHLA ER. Yesterday Regina started complaining mouth sores, so I am guessing mouth sores have something to do with her fever.
Send those get well vibes to her way :) She needs them now.

Our Friend Madelyn.

WHile ago I posted about our St Jude friend Madelyn. I am sad to tell you that Madelyn passed away 2 days ago. She will be missed.
http://www.caringbridge.org/tn/madelyn/

Transplant.

WOHOO!!!
TRANSPLANT went very well. We went to Hospital 8.30. First we did our regular registration, then triage, and from there we went to day hospital where Regina was assigned to her nurse for a day. FOr today it was Gina.
Gina gave us our Room. Usually we do not get a room, we just wait for next available curtain separated chair, and there are at least 14 curtain separated chairs full of patients. This time we got a room but we had to share with kid who had blood transfusion, and whose life was not easy one...

After REgina settled down in her bed, nurse Gina drew Reginas labs. Then she hooked REgina up with IV fluids. After hour of fluids Dr Dhall came in with Somebody who had REginas stem cells in a bag. Very different from St Jude. In St Jude stem cells were brought into room with some medical refrigirator that kept stem cell temperature stable. IN CHLA they were brought in with blue Cold bag. Anyway. Regina was hooked up with heart monitor, with blood pressure monitor. Oh. Before stem cells she got pre medicated. She was given zofran for nausea, benadryl to prevent allergic reactions and tylenol- just incase...lol
Now, stem cells were in tiny bag. It was hung on Reginas IV pole, and it only took 10 minutes per bag to infuse it into Regina. Dr Dhall and Nurse Gina took Reginas vitals in every 5 minuts. This time REgina only had 2 bags of stem cells. SO , it was short 20 minute process.

Regina did extremely well. She did get really bad chills for 10 minutes, but that was because stem cells were working their way to wherever they had to go....

After Stem cell transplant Regina was hooked up with fluids for an hour. Then she had to have platelets because her platelets dropped overnight to 30 thousand. That took about 40 minutes. After platelets Regina had blood transfusion because her hemoglobin also had dropped below normal limit. , so that added extra 3 1/2 hours. . It was 6 pm when we finally got out of CHLA. Regina was walking and responsive and happy. SHE RAN out of CHLA. SHE ran in Ronald McDonald house. She was just happy to get out.. She still is :) Now we are in Ronald McDOnald house. While I am typing Regina is Feeding me sunflower seeds. She tells me that I am bird baby and she is bird momma ..lol:)

Now, we are keeping our fingers crossed for NO FEVER.

Yup.

(Dr. Dhall and Regina

I am now 100 percent sure Regina has some "energy" guide guiding her somewhere. We went to Day clinic today to see Dr Dhall today. Before seeing Dr. Dhall, Regina had labs drawn. Again, instead of her counts dropping they went up. ( which is good of course..lol), but weird. her hemoglobin was 8,6 yesterday, and today it was 9,6. Platelets stayed the same ( they should have dropped a few. ANC was about 1000, which is high , consider that she just had 10 days oral chemo and 2 days high dose IV chemo. So now, on Friday she has Stem Cell transplant.

We also briefly discussed Reginas follow up therapy, because we want to do something instead of just waiting and hoping that nothing pops up from somewhere.

Dr Dhall suggested LOW dose temodor and accutane therapy. TEmodor is chemo, but together with accutane they compliment each other . BUT, if Reginas counts do not recover as well as needed, then we just do accutane ( which is actually ance drug). It has some side effects- blurred vision, fluid build up in brain( which will be removed through spine , Spinal tap). If it side effects get to severe, then we just stop therapy and keep on monitoring her. This therapy will last most likely up to a year( if she tolerates it well).

Now we are just waiting for side effects to show up... Please go donate blood and platelets. Platelets are needed more. Next week she needs most likely 3 platelet transfusions. Please :) It does not matter what blood type you have when donating platelets.


DI

NO MORE CHEMO!!!!!!!!!

We spent 8 hours in CHLA today . REgina received her Last Round Of Hight Dose CHemo!!!! Wohooowohohoooooo.... And on friday she will have her Second CHLA stem cell transplant.:) WOHOHOHOOOHHOOHOHO

I am very exited, but scared same time. I am already panicking about what's next... We hope lots of hot summers with pool parties and Estonian Trips.:)

Keep those Get well soon WIshese coming.

( at Elephant Bar)

Chemo side effects are starting to show. Reginas appetite is slowly diminishing. She has blisters on her lips, and runny nose has found her again.


Tomorrow ( monday) and Tuesday REigna will receive very toxic chemo. First she will get 1 hours hydration, then 2 hours of IV chemo and then 4 hours of FLuids. SO we will Be in CHLA from 7.30 till 3o'clockish....

On Tuesday same thing. Then wednesday and thursday will be OFF days, and Friday REgina will receive her stem cells back.:) PLEASE, extra special good thoughts are needed this time. You all know why. We can only hope that this is Reginas last round of CHemo EVER.
I am just asking your understanding when I do not act as enthusiastic as I should. I am trhilled that Regina is doing great, and I am thrilled that we are DONE... But I am not so thrilled about how I feel myself. I am just staying realistic.- NOT pessimitic-

This is how Gabriel loves to read....

ce-ce-chemo

(On her way to School)



Today started with lots of rain and wind, but it all calmed down around 7 o'lockish.. Just in time when I had to take kids to school. REgina was very exited about rain. She went and digged out her Little Mermaid Umbrella.WHen Rain stopped she just sighted and told me- Oh man, not again, why does rein has to stop when I am ready for it..

No more school for Regina. Today was day 7 for her chemo ( last round)AND side effects are starting to show up. Let me tell you, whoever thinks that oral chemo is fun, is WRONG!! Oral chemo is discusting , nasty, ugly, depressing and horrible tasting. REgina can handle oral chemo pills, BUT she has hard time swollowing fluid chemo. TOday she finally threw up. Big time. Gabriel ran downstairs and grabbed couple of Reginas protective masks and brought one for me to cover up my nose, so I could not smell reginas vomit...lol

Anyway, NO MORE SCHOOL FOR REGINA. No more school at least until Valentines day.

I want you to ask a huge favor. PLEASE GO DONATE PLATELETS . REgina needs at least 4 platelet transfusions. IT will be long process, but PLEASE do so.

Please keep your fingers crossed for successful transplant.
REgina has very toxic chimo on Monday and Tuesady, ( we have to wash her 3 times within 24 hour period, to wash off Chemo from her skin, it comes out from her sweat glands). Scary stufff... So again, if you thin that chemo is fun, think again. There is nothing fun about it.
Side effect, after side effect, ... It gets very scary...

Anyway, after this is over, I will take my time and smell the roses..., and I promise, I WILL FIND MYSELF SECOND JOB!! My first job always will be MOM!!!

We will be in ROnald McDonald house in LA, and you can reach us by calling on my cell- 9492906958.

What Are Platelets?
Your blood is made up of several components, the fluid that surrounds your blood cells is called plasma; it contains proteins, coagulation factors and other metabolites. The different types of cells in blood are the red blood cells, white blood cells and platelets. The platelets are the cells that help to form a clot and keep you from bleeding.

What Do Platelets Do?
Most of the platelets in the body are stored in the bone marrow, liver, and spleen. When the number of circulating platelets is decreased, the body responds by sending platelets from storage areas into the blood circulation. There are a large amount of platelets in the circulating blood as well.

Who Needs Platelets?
Patients receiving chemotherapy and/or radiation treatment and those who are having a Bone Marrow Transplant, have especially low platelet counts and can bleed very easily. We need people to give platelets to maintain an adequate supply for these patients.

How Do We Get Platelets?
When a unit of whole blood is collected from a donor, only one unit of platelets can be made from that donation. As you can imagine, with the great need of the patients who require platelet transfusions, many more must be collected. Using a blood cell processor, at least six units of platelets can be collected from one donor in a Plateletapheresis donation.

The procedure takes approximately two hours. The donor will have a needle in each arm for that amount of time. In order to have a successful apheresis procedure, the donor must have very good veins. The blood will flow from one arm to the collection instrument where the platelets are removed and the balance of the blood is returned to the donor in the other arm. Sterile plastic software is used in the blood cell processor to collect the platelets from the donor. The donor's blood is never in contact with the instrument itself -- so there is no risk of being exposed to another person's blood.

Who Can Donate?
The requirements for donating platelets are the same as for a regular blood donation, except that a platelet donor cannot have aspirin or other anti-inflammatory drugs, like ibuprofen, for at least 36 hours prior to the donation. These drugs greatly weaken the effectiveness of platelets and therefore of platelet transfusions. And of course the donor must have very good veins in both arms.

Does Blood Type Matter?
Since there are no red blood cells in a platelet product, we are not limited to using the same donor blood types as with red cells.

Make an appointment Today!
Since the process of donating platelets takes two hours and we have a limited number of spaces, we must closely monitor our times of donation. Plateletapheresis donations are scheduled by appointment only. We have appointment times Monday through Friday starting at 7:30am, 8:00am, 10:00am, 10:30am, 12:30pm, 1:00pm, and 3:00pm. Our Saturday appointment times are at 7:30am, 8:00am, 10:00am, and 10:30am.

To make an appointment or for any questions, call (323) 361-2441

280 dollars...

5 temodor pills , 100 mg each. Copay for it - 280 dollars. Temodor is one of REginas chemo drugs. She has to take one 100 mg pill, then 3-20 mg pills. ANd past four days she has been on oral etoposide. TOmorrow we add those 4 temodor pills.. Not fun, not fun. I put all chemo drugs on table, lots of snacks next to it and I let her choose when she finishes them. Usually it takes about 30 minutes to take all those pills orally. I do not want her to throw upl, so that is why I am not forcing her to take it all at once.
BTW, without insurance this would have been about 800 dollars. So guys, eat your vegetables and fruits , and STAY AWAY FROM CANCER!!! IT is an order!!! BTW, Regina is doing pretty good :)


I have to share one funny story. My 6 1/2 year old boy Gabriel is very curious boy. He wants to know everything and asks gazillion questions per day.
This time he chose his topic- Babies and how that happens.

Gabriel knows that boy's have penises and girls have vagina's. He does know that it takes 2 people to make babies... BUT until last week he thought that all it takes is that "special"hug.. and BOOM, there is baby in your tummy. HE has been acting very confused and asking questions about How, how, how... he does not get it.lol

So I told him, I went straight to business. I told him. That special hug means, that boy has to put his penis into girls vagina. BUT you can not do it with your sister, or with your mommy. It is very wrong and not good thing to do.
Gabriel looks at me and tells me- that's it??? I am still not getting it. What does penis have in it??

HOnestly, at that moment I wanted to burst out laughing like I never laughed before. BUT I managed to keep my " streight purple face".. I really did not want to get into "sperm business yet", and I told gabriel.....
LISTEN Gabriel, your penis has magic dust in it, and that's it........ ( I know , stupid)....

I was not prepared what happened next. My handsome, smart, talented six year old pulled his pants down and started shaking his privates and screaming out loud.. I GOT magic baby dust on my penis. I will make lots of babies .... Mommy, do you want some baby dust.

At that moment, I just could not take it any longer I started laughing like I never laughed before. And so was gabriel. He pulled his pants back up and told me- Mommy, you are my "gilfriend", when I get older I will merry you and then we can use my baby dust.

I just hugged him and told him. Dear Gabriel, I love you very much. But one day you understand Why mommies and sons do not get married. You will find yourself one very beautiful girl and get married to that girl and then you can spread your baby dust. :)

BTW- We will be going to Ronald McDonald house on Saturday. Also, on saturday Regina has first part of her Psychological testing. It will be 3 hours long , but she needs it, and most importantly it is free of charge. This will let us know where Regina is mentally . How smart she is, how much she knows, etc.:) Keep your fingers crossed that tests show only good results. :)

Last round of something something..

Gosh. where do I start. Honestly, today was one stressful day for me. Day started out great. Awesome day. Wohooo.. But everything changed when we entered CHLA doors. To be exact--- CHLA outpatient pharmacy , which is now WALGREENS.
On our way upstairs I payed a visit to pharmacy because I wanted to pick up Reginas CHemo drugs... I knew Dr Dhall's team faxed rx to pharmacy last week. Guess what, walgreens did not receive their fax. So upstairs I go to see what happened.
Day hospital faxed it again and this time they received it... Usually it takes about one hour for them to fill rx's.. But this time it took 3 fuckin' hours. I was vivid. AND I had right to be . OF course things have to brake just before it is my turn to get meds. So I got Reginas etoposide( one chemo drug,,, and then , walgreens scanner stopped working... OR pharmacist printed out WRONG label that did not scan. SO they DID NOT GIVE ME reginas chemo drugs. I wanted to cry right there. THey told me to come back on monday... I just looked at him and told him =- You must be kidding me. I live in Laguna, and because of your broken scanner, or wrong code I have to waste 4 hours of my valuable time JUST TO visit you for one minute????
NOW, that is ONE REASON why I like Reginas meds to be refilled at least few days before chemo starts...( REason why they did not trust me with those chemo pills- is - Co payment for them was almost 300 dollars. !!! DUH. Come on ???? I visit that pharmacy at least 3 times a month, they know my by name...

I also told them, there is NO WAY I am coming back to chla, so please fax these prescriptions over to LAguna walgreens AND MAKE SURE, they have drugs by monday, if they do not PLEASE CALL ME!!!. I can't handle this kind of mistakes or errors very well. I just cant... I also cant handle people who question my values, and ways of living the way I live, and the number one thing that bugs me is- seriously- do you really think that I would take REgina to school when she could infect other kids with her " health" issues... SerioslY???

OK. Now about cool stuff... After that stressful noon incident.. We managed to keep our sanity and headed to Pershing Square ( spelling). It is in Downtown LA. REgina is one of Sunshine kids :) http://www.sunshinekids.org/
Amy( and his team) from Sunshine kids invited us , and other neuro/onco families to outdoors Ice skating . REgina was so exited to to it. It was her first time on Ice, and she was just all in smiles.... UNTIL... bang.... she fell flat on her ass ... She tried to protect her but with her hands, but instead she ended up hurting her both hands. :( Poor REgina, she was in tears. I never seen her so sad, she never cries because of pain and to see her crying just broke my heart. She was upset and sad and in pain... It was her first time and it had to end up like this... Ijust hope that she does not give up after this :)
When GABRIEL saw REgina fall, he also stopped skating and sat besides Regina the whole time. HE even fed Regina food, because he did not want REgina to feel any pain.

Now we are back home, and Regina is doing ok. Her wrists still hurt, but she is doing ok. She took her chemo and did not complain a bit. :)
Now, mommy Diana needs some stay sane thoughts. I am beyond stressed right now. I may look OK and crack my "stupid" jokes. The truth is, i am not ok. I do not think that I ever been so stressed. I want to see more happy people around me. I do not want people feel sorry for me, or tell me how strong I am.. I am not... I am loiek you, you , you ,and you... and Right now I am just like you... I am tired and sad, and unsure whats going to happen next....

Go see...

Go see Alvin and the Chipmunks. It was one of the funniest movies I have seen in a long while. I laughed so hard I had tears in my eyes. Kids were laughing also. It really was one great movie. :)

Regina is doing OK. We had a fun play date with couple of good friends today. I never seen such well behaved group of kids. When I put dinner to table, all kids ( 5+ one baby) all ate then same food without complaining and then went upstairs to play. I was impressed... But then again, they all wanted to play came cube..... go figure...
On friday we are going to CHLA for labs, and after that Sunshine kids ( non profit org) has invited us to Ice Skating.( Pershing square) we will be there around 4 PM.

And that's it. Nothing really interesting is going on around here...

Regina , School, Friends.

Regina is doing pretty good. Last friday I had to take her to see my doc, since I noticed tiny oozing thing under here eye Turned out, she had Impetigo ( contagious infection). She was given some topical antibiotic ointment and now it is healing.

In school she does alright. Little behind, but that's ok. She'll catch up. :)
Last round of chemo starts on friday.

PS. Big thanks to Reginas Angels Judy and Angie:)

One more week before Chemo..

We saw Dr Dhall today and had a nice long discussion about Regina.
Reginas last round of chemo/stem cell transplant will start next friday. She did not make chemo counts today , her platelets were still little low. But ANC and hemoglobin are nicely recovering.
I kind of like this nice long break. :) Regina is doing awesome. She enjoys school, she had couple of nice play dates with her classmate ( cross the street neighbor). She eats and drinks well.

After this upcoming last round of chemo we are done!!! DONE. I am speechless. I thought this day never come. But I am scared also. I already mentioned before that MRI did not pick up any active cancer cells in her brain. But it does not mean that danger is over. Doctors think that whatever mass is left in her brain is not cancer, and they think it is necrosis. i asked about possible surgery to remove some of it. Dr Dhall told me that it is not possible to remove anything, since necrosis is all spread our . IF it was in one spot , then yeah... Also, dr Dhall mentioned "possibility" to radiate Reginas brain more... BUT only HUGE concern here is location. Since radiation is needed in left side of brain, it is not best idea to do so. It can damage her "intelligence" quite a bit. AND radiation is needed IN CASE there is something hiding in that dead mass... And it will help to kill those left cells ( INCASE there is something).

But that is only talk. Dr Dhall also wants to neuro testing.( psychological) evaluation, to see where REgina stands academically... .. Whew...

Lets just hope that Reginas next round of Chemo will be her LAST round EVER!!!

URGENT PRAYERS NEEDED FOR OUR FRIEND.

CUT AND PASTE FROM MADELYNS CARINGBRIDGE SPACE>
Our St Jude friend Madelyn is loosing battle with Neuroblastoma. She only has few days left and I am heartbroken and devastated over this.


uesday January 8, 2008 10:45pm CST

http://www.caringbridge.org/tn/madelyn/

"at this time we kindly ask that visits be limited to the immediate family only as we are sharing our last and final days with our Princess! Her time awake is very little and we are cherishing every part of that as a family. Thank you!"

I also wanted to say that last night, while Maddie was up, she had a sweet time reminiscing about special times with Tyler. She didn't realize Tyler was standing behind her listening, but she gave him her little sweet smile when she realized he was there. I am so happy for this for him. Also, Brandi said that she is sorry she hasnt gotten to update as she would like but will as soon as she can.

No news is good news...

Kids are finally back in School . Regina is doing awesome. Her appetite is back and bigger than ever. She is full of energy, and shows no signs of weakness.
We are going to meet Dr Dhall on Wednesday to discuss Reginas treatment plan.
Me, other hand... i am just tired of sitting around and worring. I know I will be worrying rest of Reginas life about every step she takes, every time she gets sick, every time, she is too sleepy,.etc. I wish i had some super powers to see future..

Gabriel has been asking me some weird questions and giving me some even weirder commands...
His number one wish is--- "I want Reginas cancer be over by June, because I want to have my Birthday party in Scooters jungle".. He keeps asking every day IF Reginas cancer will be "over" by June... And he makes sure he Reminds me that IT IS very important that his birthday will be in SCOOTERS JUNGLE...( IF you remember , then Regina had her second brain surgery on Gabriels sixth Birthday, ( june 22nd), And gabriel still Remembers that his birthday got canceled and he could not play with his friends and Sc. Gabriel really has lots of patience to deal with Regina and her issues.

Home Sweet Home:)

It is so nice to bet at home again. Regina is so much happier here and we can finally relax:) We FINALLY had our "traditional " Christmas Dinner with appropriate food and it feels right :)

We had to go to CHLA today. Dr Dhall wanted to make sure Reginas platelet counts were stable .. But they were not. They were below 50 000 and Dr Dhall wanted REgina to have transfusion,so Regina can survive this upcoming weekend. But since there were to many children needing platelets, Regina was not their First priority, and we had to wait 3 hours to get those platelets. :( Finally we got them and weekend can start:)

We are going to Dr Dhall on wednesday, and after that we will start Reginas Last ( hopefully) round of chemo/stem cell transplant. Regina is doing better now,and is slowly recovering from her last stem cell transplant.

ANC.--Update January first...

++++We are getting out today :):):) ( january first )+++

One of our Fave Child life workers and Regina.
Thank Kathy for Great New year wishes. BTW. Reginas ANC decided to finally show up. it is 560 now. She had 2 sets of labs drawn today. She is off fluids. BUT now she has another issue. More diarrhea... Nick is in hospital with him, because I was just way to tired to function in hospital environment. MOST of 4th floor rooms are empty. they just sent whole bunch of people home today. Regina has to stay for at least 3 more days- Antibiotics...

Now , that this year is almost over- in 4 hours. I would have NEVER ever imagined that we will be doing what we are doing right now. Regina was talking all year long going to Big Bear to do more snowboarding. Then she wanted to go to Estonia... Then she wanted more sleepovers with her friends.... I am sure relapse was not one of her plans, but hey, if life gives you lemons , you just have to make some sweeeet lemonade... And I am sure we have made plenty of lemonade to last a lifetime.

We are so lucky and happy to have Regina with us . Not in Million years we would have thought that chemo works so well and REgina is pretty much cancer free. Not in million years would I have thought that I would have so much patience and energy to deal with situation the way I am dealing . Not in million years would I have thought that I would ever Love CHLA and Dr Dhall... But we do. We all do. We love our 4th floor nurses , we love Dr Dhall and Finlay and other doctors who have very funky names ;), we love our childlife girls , who always find a moment to fill Reginas wishes for that thay...

We are so grateful for Laguna Niguel Elementary school and it's staff. They have been so understanding and helpful and I am just amazed the support I have been getting from them.

AND most of all, I would have never ever thought that we are surrounded with such great people all around the world. We are humbled by every card, letter, phone call, package, advice, help... etc. We are so blessed to have you all in our life... I just hope that you understand that we do care and appreciate your support. I am sorry for not sending out thank you cards for all of you. I just hope that you all will be there whenever we will need you( most of the time my Needs list consists of one thing- TAKE good care of my boy Gabriel ;) ) ...

Anyway, this past months have been very exhausting months, But outcome speaks to itself. We had HOPE, and We have Regina. Never stop hoping for a Miracle. Never:)

Happy Ney Year

Still in Hospital.

Regina is doing better. Her white count is slowly coming up, but they still do not calculate ANC... :(:(:( We will be moving to fourth floor today ( 429) I think. Not sure, but our " source" told us most likely we will be up today.
THANKS GOD!!! I have not slept for 3 nights. Since PiCU does not have beds next to patient bed, Then I had to sleep in same bed with Regina, BUT those beds are way to small, and Instead of sleeping I spent all my nights watching some stupid infomercials...
Anyway, just hanging in there. But It has been 1o days and i had enough.
Happy New Year to you guys :)

GO DONATE PLATELETS!!!!

Our wishlist....

Regina needs platelets and hospital only has one bag of platelets. PLEASE GO DONATE PLATELETS. Regina needs then now more than ever. IF she does not get platelets, it may really happen that her brain starts bleeding... We can't let her platelet count drop to low

Nick is trying to donate today, we'll see how it goes.

Please send those GO AWAY HEADACHE kind of thought to Reginas way. She had headache last night and was unable to sleep because of that.
I am home with Gabriel. I MISSED MY HOME. I MISSED CLEANING IT. I missed smell of it, I missed my bed, my things, my shower, my closet. EVerYTHiNG... And most of all--I missed my wine and cheese... Oh the power of simple things.:)


PLEASE GO And DONATE PLATELETS. SHE NEEDS THEM!!!!!!

I am so glad I did not have wireless connection for few days.

We had lots of drama here In CHLA. It all started day after Christmas. Regina woke up super pale and was throwing up - A LOT!! Then she started complaining headaches. She had all th signs that something wrong in her brain was going on. So doctors ordered her CT scan. She was send downstairs to do CT scan. When we got back to our room, there were few people waiting for us.
We were told- CT scan picked up something that appears to be bleeding . I started panicking. We saw few doctors. Within that 30 minute frame and all of us told us that not to worry, since we got it so early, Regina is safe. BUT to be even on a safer side we will move you to Pediatric intensive care unit. I was panicking even more.
Reginas platelet count was 34 000 and usually bleeding in brain happens when Platelet count is low. So Regina was given 2 bags of platelets and her platelet count was pumped up to 131 000.

Brain MRI was ordered to figure out how bad that bleeding is. I was patiently waiting. 40 minutes seemed like few hours. After it was done we went back to our PICU room H, and waited.

Doctor came in. I was fearing for the worst - BUT WE WERE TOLD THAT MRI PICKED UP NO BLEEDING!!!! WOHOOOOOOOHOOOOHOOO!!!! What looked like drops of blood on CT scan , was just calcification ( calcium deposits). SInce CT scan is ony black and white, it looked like blood BUT IT WAS NOT!!!!!!

OMG. What a relief. Now, what caused Regina to throw up and have headaches was most likely some yucky virus , not eating for few days, just being stuck in same room for 7 days... etc. Reasons are few.... BUT bleeding in her brain, new brain tumors IS NOT THE CASE. Reginas brain is still stable and hopefully it remains stable for many years to come :):):)

Now- Happy Anniversary to us.... My dh left me a great gift to RMDH - Wireless G plus MIMO usb Network adapter. Hopefully this will help me contact to wireless EVERYWHERE>.... ;)

Happy Holidays.

Merry Christmas.
Reginas ANC is 0. White count down.... She already received blood and platelet transfusions. She is eating again.
She still got runny nose and cough, but her chest sounds fine. doctors think it is just head cold, and will run it's course. But since her and is down, we are on a look out for fevers. IF fevers do not show up , then we will get out in 5 day. If she gets fever, that will guarantee our New Years eve in CHLA.

Thank you for checking in on us.
Christmas in CHLA was not that bad. We saw few santas, Regina got about 14 barbies, Bratz, my scenes.. ( SHE THANKS HER ANGEL JUDY, FOR SENDING HER HANNAH MONTANA DOLL and clothes). And Angel ANGIE FOR COOL stuff ( that's what she said, when I asked how she likes her things- COOL STUFF). lol

My husband and I are celebrating our 9th wedding anniversary on December 28th. Most likely we will be eating Hospital food and drinking lots of water..lol...

Have a safe holiday season,and do not over shop with those after holiday sales...

Regina send you all huge Xmas hug :)