Tuesday, February 22
Claire( St Jude Patient)
She was diagnosed around the same time as REgina was. SHe has Diffused Brain Stem Glioma. Yesterday , after MRI, they got the news nobody was expecting. Claires tumor has been growing. Regina, Claire and another St Jude patient Brooke sang and danced together in St Jude talent show.
Please check out Claire diary. http://www.livejournal.com/users/tatomupdates/
We spent some " Kitchen" time together In RMH , in Memphis, Tennessee. Claire and Regina used to play together when they got a chance. :)
Please check out Claire diary. http://www.livejournal.com/users/tatomupdates/
We spent some " Kitchen" time together In RMH , in Memphis, Tennessee. Claire and Regina used to play together when they got a chance. :)
Monday, February 21
Party part2
Like in every party things don't always go the way they supposed to. First I forgot to serve my wary favorite apetizer. Smoked salmon rolls with garlic cream cheese. I just but them into the empty vegetable drawer and forgot. There were about 200 rolls. :( So, now I will be eating salmon and cheese next 2 years( I freezed them ). lol
I also had planned little speech, but it got so grazy in our house, and it was impossible to get everybody to listen so I just sayed eh, who cares, they came to our house to eat not to listen some weird speech. ;)
Then of course, I wanted to take group picture with all the kids that came to our house, but I could not get all the kids into same room. lol, when some of the kids stayed still and waited patiently when I arrive with rest of the kids, then those rest of the kids dissapeared on their way upstairs. lol, so there you go. What a great organizer I am. I also did not get to spend enough time to chat with people :( But regardless of all the things that did not go the way I wanted , Party was great success. :) Money well spent. :
We also had facepainter Carrie, who did wonderful job, and she worked hard for 2 hours. :) Thank you Carrie.
Today Regina has been behaving her best. :) I got little upset about her room being very , very messy. I told her IF she does not clean up her books, dolls, and trash, she is not allowed to play for a while. After I sayed that, I went downstairs to eat. 10 minutes later Regina came down and told me that she had abig surprise for me. SHe asked me to close my eyes, she held my hand and leeded me to upstairs. And guess what??? SHE CLEANED UP HER ROOM. All the dolls were lined up, books were in a nice pile, and she even folded her clothes. :D It was her first time ever to actually clean her room like that. Usually she just threw things into toy box. Then she was in mood for more cleaning, and she helped Gabriel to clean his room :) Great!!!!!!!
Now they are having their lunch
I also had planned little speech, but it got so grazy in our house, and it was impossible to get everybody to listen so I just sayed eh, who cares, they came to our house to eat not to listen some weird speech. ;)
Then of course, I wanted to take group picture with all the kids that came to our house, but I could not get all the kids into same room. lol, when some of the kids stayed still and waited patiently when I arrive with rest of the kids, then those rest of the kids dissapeared on their way upstairs. lol, so there you go. What a great organizer I am. I also did not get to spend enough time to chat with people :( But regardless of all the things that did not go the way I wanted , Party was great success. :) Money well spent. :
We also had facepainter Carrie, who did wonderful job, and she worked hard for 2 hours. :) Thank you Carrie.
Today Regina has been behaving her best. :) I got little upset about her room being very , very messy. I told her IF she does not clean up her books, dolls, and trash, she is not allowed to play for a while. After I sayed that, I went downstairs to eat. 10 minutes later Regina came down and told me that she had abig surprise for me. SHe asked me to close my eyes, she held my hand and leeded me to upstairs. And guess what??? SHE CLEANED UP HER ROOM. All the dolls were lined up, books were in a nice pile, and she even folded her clothes. :D It was her first time ever to actually clean her room like that. Usually she just threw things into toy box. Then she was in mood for more cleaning, and she helped Gabriel to clean his room :) Great!!!!!!!
Now they are having their lunch
Sunday, February 20
---WE SURVIVED---
It is sunday morning. It is awful quiet today in here today. Yesterday our house was filled with chatter and laughter and facepainting fun. Today , we only have fun memory of it.
About 70 people showed up in our hause. Party extravaganza started around 4 pm when first visitors showed up, and from there it took about 30 minutes to fill up our house with friends and neighbors. Last people left around 2 AM( yes party lasted from 4PM- 2 AM ) And best of all, wheather calmed down, rain stopped and we could not have asked for a better weather to grill :)
I want to thank you all of you who were part of our " little celebration". I want to thank you for the hugs, for engouraging words. I want to thank you for being here with us, I want to thank you for all the gifts Regina received last night- she had fun opening them today :D I want to thank you for the great dishes you brought with you . I want to thank you for eating the food I prepeared for you to enjoy- I had fun greating what you ate last night ;)
There are not enough words to describe how wonderful I felt last night. It was great to see you all to come here and celebrate something so big - new beginning. I know Regina will grow up to be something "big" she will move mountains when she will grow up :) She has thought us so much through out this journey- patience, love, respect. She has thought us to fight without violence, she has helped us to grow stronger and she has helped us to undertand that not everything is about what it seems to be it is, it is always more to things. You just have tho look harder, think more and appreciate what you got and tresure it :)
Thank you ...
PART1
About 70 people showed up in our hause. Party extravaganza started around 4 pm when first visitors showed up, and from there it took about 30 minutes to fill up our house with friends and neighbors. Last people left around 2 AM( yes party lasted from 4PM- 2 AM ) And best of all, wheather calmed down, rain stopped and we could not have asked for a better weather to grill :)
I want to thank you all of you who were part of our " little celebration". I want to thank you for the hugs, for engouraging words. I want to thank you for being here with us, I want to thank you for all the gifts Regina received last night- she had fun opening them today :D I want to thank you for the great dishes you brought with you . I want to thank you for eating the food I prepeared for you to enjoy- I had fun greating what you ate last night ;)
There are not enough words to describe how wonderful I felt last night. It was great to see you all to come here and celebrate something so big - new beginning. I know Regina will grow up to be something "big" she will move mountains when she will grow up :) She has thought us so much through out this journey- patience, love, respect. She has thought us to fight without violence, she has helped us to grow stronger and she has helped us to undertand that not everything is about what it seems to be it is, it is always more to things. You just have tho look harder, think more and appreciate what you got and tresure it :)
Thank you ...
PART1
Thursday, February 17
Wish me luck - and REMINDER!!!!!!
OH, I am geting scared. Some of you know that on Saturday we have huge party. And it is getting bigger every minute. I thought that at most around 50 people will show but since it is such a huge event- We are celebrating Reginas life - and so far 80 people have signed up. AND make things worse , seems like weekend will be rainy and I have to make sure all 80 people will feel comfortable in my house. OH, I have no Idea how will I manage to keep things under control on this saturday. :)
**** IMPORTANT****- to all of you who are planning to attend this party( who have allready replied to evite, and invitation letter
IF YOU , OR YOUR KIDS are sick( cough, cold, etc,) please think twice before you are planning to attend this party., Reginas immune system is still recovering and we are very cautious about being around sick people. Better safe than sorry, she still gets infections very easily and recovery may be slow and painful
I want to thank you all of you who have called and told us that you or your kids are sick and you can not attend. If you have questions please call me. :)
949 290 6958( my cell) or email dianatan78@cox.net
I can not wait to see you all on this saturday around 4 pm. :D
**** IMPORTANT****- to all of you who are planning to attend this party( who have allready replied to evite, and invitation letter
IF YOU , OR YOUR KIDS are sick( cough, cold, etc,) please think twice before you are planning to attend this party., Reginas immune system is still recovering and we are very cautious about being around sick people. Better safe than sorry, she still gets infections very easily and recovery may be slow and painful
I want to thank you all of you who have called and told us that you or your kids are sick and you can not attend. If you have questions please call me. :)
949 290 6958( my cell) or email dianatan78@cox.net
I can not wait to see you all on this saturday around 4 pm. :D
Tuesday, February 15
Yesterday was busy day.( February 14th)
Morning started with droping Gabriel off to daycare. Then me and Nick went to buy new patio furniture. After that, me , sija and Regina painted Reginas room half pink. It took 3 coats of paint to get the color we wanted. Then, around 4.30 pm My dh decided to go to gym. we had reservation to restaurant 7PM. And he promised he'll be back 6pm. Suddenly he calls home and tells me he will be late because he had accident. I did not get all the details because Sija answered. When he got home, his hand was wrapped .
You know those workout chairs or benches that you can adjust to upright or flat position? Well, he started adjusting one and halfway through adjusting bench fell, and his hand got stuck - between his thumb and index finger. He lost lot of blood and he sayed he almost fainted because of that. He just finished his cardio, and his blood was still flowing hard, so thats why he lost lot of blood. :(
After he got home, we got dressed and went to Aliso Creek Inn to have our Valentines dinner. He could not drive his manual car , so he drowe my car instead. Dinner was wonderful. Lots of food. For apetiser they had shrimp kabobs and white truffle and potatoe soup. For main dish I had crispy crust salmon , and for dessert I had dark chocolate heart. I was stuffed it was lot of fooood to eat but worth every dollar ;)( Dinner price was fixed, so if I had skipped dessert and apetizers , I still had to pay the full price)
Then we drowe around looking for movie theater to see Hitch. But movie started too late and we ( I) did not want to wait couple of hours. Around 9.30 we went back home and watched CSI Miami. Sija had her friend over, and so 4 of us watched csi.
Today I added finishing touches to reginas room. It is still not ready and has to be accessorised.:)
You know those workout chairs or benches that you can adjust to upright or flat position? Well, he started adjusting one and halfway through adjusting bench fell, and his hand got stuck - between his thumb and index finger. He lost lot of blood and he sayed he almost fainted because of that. He just finished his cardio, and his blood was still flowing hard, so thats why he lost lot of blood. :(
After he got home, we got dressed and went to Aliso Creek Inn to have our Valentines dinner. He could not drive his manual car , so he drowe my car instead. Dinner was wonderful. Lots of food. For apetiser they had shrimp kabobs and white truffle and potatoe soup. For main dish I had crispy crust salmon , and for dessert I had dark chocolate heart. I was stuffed it was lot of fooood to eat but worth every dollar ;)( Dinner price was fixed, so if I had skipped dessert and apetizers , I still had to pay the full price)
Then we drowe around looking for movie theater to see Hitch. But movie started too late and we ( I) did not want to wait couple of hours. Around 9.30 we went back home and watched CSI Miami. Sija had her friend over, and so 4 of us watched csi.
Today I added finishing touches to reginas room. It is still not ready and has to be accessorised.:)
Sunday, February 13
Sunday ,the 13th.
IT is great day. Regina is 100% better from yesterday. SHe is not fighting, crying or complaining. I guess She was just did not get enough sleep and was tired from her sleepover party with her best friend.
We went to see our friends baby today who was born 2 weeks ago. Regina was exited to do that because she LOVES babys. They also have 2 big german shepards- beautiful dogs. Joshua is CUTEST baby I have seen for a while. ;) He was quiet the whole 40 minutes we were there. I remember my kids never where quiet. Only time he made some sound was when he got hungry , and waited for his momma to get ready;)
I forgot how little babyes can be- tiny fingers, tiny mouth, everything is so tiny about them. But oh boy, do they grow up to be strong individual with strong personalities. Regina still wants me to have baby - and IT HAS TO BE baby sister. And gabriel wants me to have baby also- but he wants to have baby brother. Where do they get that from??? ALl i can say is maybe. I don't promise anything....;)
On 16th I will go and Register Regina for public kindercarten. School is walking distance from us, and is best in the neighborhood. :) On 17th of Feb. Make a Wish people will come over and interview REgina about her wish. I know what it will be. But oh well, it is her wish, and if it gets granted she will be happiest girl in whole wide world. I know one thing why she wants her wish to be what it is. She wants to get lots of Disney musicboxes with different princesses inside. ( we have non, and every time we go to Disney store, she sees them and sayes- mommy, I WISH I had all of those musicboxes).
Then on 19th is the big day. PARTY!!!!!!!! HUGE party. Menu is together, and I am ready to have that party for Regina. Everything - plates, cups, , napkins etc, will be red, purple and pink- because these are her favorite colors. I just have no idea how will I manage to entertain about over 60 people in my house. :D It'll be a party to remember :D
We went to see our friends baby today who was born 2 weeks ago. Regina was exited to do that because she LOVES babys. They also have 2 big german shepards- beautiful dogs. Joshua is CUTEST baby I have seen for a while. ;) He was quiet the whole 40 minutes we were there. I remember my kids never where quiet. Only time he made some sound was when he got hungry , and waited for his momma to get ready;)
I forgot how little babyes can be- tiny fingers, tiny mouth, everything is so tiny about them. But oh boy, do they grow up to be strong individual with strong personalities. Regina still wants me to have baby - and IT HAS TO BE baby sister. And gabriel wants me to have baby also- but he wants to have baby brother. Where do they get that from??? ALl i can say is maybe. I don't promise anything....;)
On 16th I will go and Register Regina for public kindercarten. School is walking distance from us, and is best in the neighborhood. :) On 17th of Feb. Make a Wish people will come over and interview REgina about her wish. I know what it will be. But oh well, it is her wish, and if it gets granted she will be happiest girl in whole wide world. I know one thing why she wants her wish to be what it is. She wants to get lots of Disney musicboxes with different princesses inside. ( we have non, and every time we go to Disney store, she sees them and sayes- mommy, I WISH I had all of those musicboxes).
Then on 19th is the big day. PARTY!!!!!!!! HUGE party. Menu is together, and I am ready to have that party for Regina. Everything - plates, cups, , napkins etc, will be red, purple and pink- because these are her favorite colors. I just have no idea how will I manage to entertain about over 60 people in my house. :D It'll be a party to remember :D
Saturday, February 12
Quick update.
Couple of days have passed since my last update. Everything is pretty much normal. Regina had her bloodwork done. Everything looks great. Her ANC is 2600. Her liver numbers are getting better. Her platelets were little lover since month ago, but that low. Her doc here recommended to to one more bloodwork in 2 weeks and see how it is then :)
Regina had her first sleepover since she left to Memphis in September. She had great time. But when I went to pick her up this noon, she started crying and did not want to come home. :( She had fun with her best friend. But what frustrated me was her behavior. She started acting mean ( telling NO, NO NO to everything, and when I told her to hug her best friend, she started shouting and crying. I felt emarrased because of her behavior. I guess she does not like good buys, but why does she has to act so mean and hurtful ???
Now she is sleeping. I guess all that playing made her tired, and I hope after she wakes up she is back to normal Regina again. It feels like she is on chemo- because during her chemo she acted all mean and hurtuf. :( I hate those past feelings :(
Regina had her first sleepover since she left to Memphis in September. She had great time. But when I went to pick her up this noon, she started crying and did not want to come home. :( She had fun with her best friend. But what frustrated me was her behavior. She started acting mean ( telling NO, NO NO to everything, and when I told her to hug her best friend, she started shouting and crying. I felt emarrased because of her behavior. I guess she does not like good buys, but why does she has to act so mean and hurtful ???
Now she is sleeping. I guess all that playing made her tired, and I hope after she wakes up she is back to normal Regina again. It feels like she is on chemo- because during her chemo she acted all mean and hurtuf. :( I hate those past feelings :(
Wednesday, February 9
Bai Nian, Bai Nian
...which is greeting in Chinese New year. And we celebrated Beginning of Rooster year with some of my DH friends. We had hot pot dinner. We bought thinly sliced meat and vegetables from Asian market and we boiled them and ate them with special sauces. Kind of like fondue , but only with water( no chocolate or cheeses). And we boiled meats, vegetables and soy products in that hot water. :o) . We also drank some Chinese liquor( 56%), some Chinese beers and Plum wine. Dinner was excellent. :)
My fasting( as I mentioned yesterday) ended today 6 PM. It means I fasted for 36 hours. I only had water, tee, coffee( 2 cups) and vegetabel broth. Starting from today I am back to my normal eating habits.
Regina had her labs drawn today. She started crying when she saw needle, but after she saw that her "poke" was covered with Garfield bandaid, she was happy again. It is so weird. Usually in St Jude we knew how her labs were 30 -45 minutes after they were taken, but here , in CA( LabCorp), we get results back on saturday or sunday. Oh, I don't like waiting that long. They told me that If I want to know how her labs were, I have to call them on Monday. It is a long wait. But the same time , looking at Regina, I know that all the labs will come back just fine because Regina is acting happy, active and ready to take life by storm. :) She really is recovering real nicely. Only thing I am still little worried is her apetite. She is eating, BUT not as well as I want her to. I want her to eat more nutitious food. But she likes mostly carbs, and meats make her throw up. :( . Good thing is she is Drinking milk :)
My fasting( as I mentioned yesterday) ended today 6 PM. It means I fasted for 36 hours. I only had water, tee, coffee( 2 cups) and vegetabel broth. Starting from today I am back to my normal eating habits.
Regina had her labs drawn today. She started crying when she saw needle, but after she saw that her "poke" was covered with Garfield bandaid, she was happy again. It is so weird. Usually in St Jude we knew how her labs were 30 -45 minutes after they were taken, but here , in CA( LabCorp), we get results back on saturday or sunday. Oh, I don't like waiting that long. They told me that If I want to know how her labs were, I have to call them on Monday. It is a long wait. But the same time , looking at Regina, I know that all the labs will come back just fine because Regina is acting happy, active and ready to take life by storm. :) She really is recovering real nicely. Only thing I am still little worried is her apetite. She is eating, BUT not as well as I want her to. I want her to eat more nutitious food. But she likes mostly carbs, and meats make her throw up. :( . Good thing is she is Drinking milk :)
Tuesday, February 8
Tuesday
If you guessed ( about ribs) the thrid option( my husband was taking shower, and forgot all about the ribs) you were almost right. His shower took 2 minutes longer and that what it takes to burn your dinner. lol
Regina is doing very well. There is nothing really to report about her health right now. But tomorrow we have to go to LabCorp to get her labs drawn. And since now she does not have central line anymore, she has to be poked. I guess she will put on a little fight, but she understands how important these labs are. More to report tomorrow. :)
Today is the day I am fasting. NO FOOD Until tomorrow morning. All these meats have screwed up my digestion and I am trying to do little cleansing procedure. ALl I drink today is lemon or lime water- and some green tea to keep me warm. I tend to get chills during fasting periods( I do it usually 3 times a year). It is not really hard thing to do during the daytimel. But when clock hits 6pm , hunger hits me hard,and then I have to find things to do to keep my mind away from food.
I have one prayer request- Stanton who is batteling with Neuroblastoma has little hope surviving. His bonemarrow is packed with neuroblastoma cells and there were no healthy cells left. Please check out their Caringbridge site.
http://www.caringbridge.org/la/stanton
Regina is doing very well. There is nothing really to report about her health right now. But tomorrow we have to go to LabCorp to get her labs drawn. And since now she does not have central line anymore, she has to be poked. I guess she will put on a little fight, but she understands how important these labs are. More to report tomorrow. :)
Today is the day I am fasting. NO FOOD Until tomorrow morning. All these meats have screwed up my digestion and I am trying to do little cleansing procedure. ALl I drink today is lemon or lime water- and some green tea to keep me warm. I tend to get chills during fasting periods( I do it usually 3 times a year). It is not really hard thing to do during the daytimel. But when clock hits 6pm , hunger hits me hard,and then I have to find things to do to keep my mind away from food.
I have one prayer request- Stanton who is batteling with Neuroblastoma has little hope surviving. His bonemarrow is packed with neuroblastoma cells and there were no healthy cells left. Please check out their Caringbridge site.
http://www.caringbridge.org/la/stanton
Monday, February 7
Sunday, February 6
Saturday, February 5
Grillmasters
He. We have been grilling for 2 days now. Beginners exitement. lol Today we made trout, stakes, hot Louisiana links. ANd for lunc I made shirmp scampy.
Regina is doing great. She is very active 5 year old. And has great imagination. Today she was mom, I was baby, dad was her and gabriel was me. SOunds complicated? She was the one who was bossing us all around( sounds very much like me, lol)
On a good note. I am overwhelmed with all the responses I am getting from my neighbors. Some of them come by , some of them call, some of them leave nots to our mailbox. I was not ready for this kind of kindness. It is amazing and I am thankful for all the kind words I have heard past 4 days. :) I usually tell Regina when somebody calls or writes and her first response is DO THEY HAVE KIDS? lol Some of them do , some of them don't and some of the kids are allready grown up. Little bit of everything :)
Regina is doing great. She is very active 5 year old. And has great imagination. Today she was mom, I was baby, dad was her and gabriel was me. SOunds complicated? She was the one who was bossing us all around( sounds very much like me, lol)
On a good note. I am overwhelmed with all the responses I am getting from my neighbors. Some of them come by , some of them call, some of them leave nots to our mailbox. I was not ready for this kind of kindness. It is amazing and I am thankful for all the kind words I have heard past 4 days. :) I usually tell Regina when somebody calls or writes and her first response is DO THEY HAVE KIDS? lol Some of them do , some of them don't and some of the kids are allready grown up. Little bit of everything :)
Friday, February 4
Reginas Smile quilt and more.
http://smilequilts.com/regina.html
Click on a link and see where it takes you :) Quilting angels did amazing job creating this quilt for her. :) It is beautiful :) Hope it makes you smile also :)
Today I interviewed Regina because I am planning to " refresh" her room.
I asked her what color she wants, what things she wants in the room, what kind of decorations etc.
No big surprize on color- Pink, of course, dark pink.
She is not playing with her barbies but princesses, but she wants to have princess room. She loves do dress up as princess and walk around the house with high heel shoes and magic wand. Today I saw in home depot the cutest princess mirror and rocking chair. I did not buy it yet. I give her one more week to decide if she still wants princess room. If she does, then I have to find a job and make money to get her that room( remember, I am trying to save money and my pudget does not include PRINCESS rooms).
I have to get her princess bed spreads, and pillowcases, and girly curtains and rug and- did I mention princess toychest. I better not even think about it. To much pink. I wish princess color was cranberry or burgundy red. lol
OK. We have been living in our house for 3 years. WE DID NOT HAVE GRILL for these 3 years, we did not cook out for 3 years. Why? Because my dear loving husband told me every time we went to HD - NEXT TIME, NEXT TIME, NEXT TIME... Finally next time arrived and we got it. It is gas grill and homefully with no time I will master the art of grilling.
Tomorrow I will go to Target and get patio set( yep, we dont have that one eather, it is " next time" thing again. lol
Click on a link and see where it takes you :) Quilting angels did amazing job creating this quilt for her. :) It is beautiful :) Hope it makes you smile also :)
Today I interviewed Regina because I am planning to " refresh" her room.
I asked her what color she wants, what things she wants in the room, what kind of decorations etc.
No big surprize on color- Pink, of course, dark pink.
She is not playing with her barbies but princesses, but she wants to have princess room. She loves do dress up as princess and walk around the house with high heel shoes and magic wand. Today I saw in home depot the cutest princess mirror and rocking chair. I did not buy it yet. I give her one more week to decide if she still wants princess room. If she does, then I have to find a job and make money to get her that room( remember, I am trying to save money and my pudget does not include PRINCESS rooms).
I have to get her princess bed spreads, and pillowcases, and girly curtains and rug and- did I mention princess toychest. I better not even think about it. To much pink. I wish princess color was cranberry or burgundy red. lol
OK. We have been living in our house for 3 years. WE DID NOT HAVE GRILL for these 3 years, we did not cook out for 3 years. Why? Because my dear loving husband told me every time we went to HD - NEXT TIME, NEXT TIME, NEXT TIME... Finally next time arrived and we got it. It is gas grill and homefully with no time I will master the art of grilling.
Tomorrow I will go to Target and get patio set( yep, we dont have that one eather, it is " next time" thing again. lol
Thursday, February 3
Thursday (2/3/5)
Today both of my kids are home with me. I decided to keep Gabriel home so he and Regina can play all day long. But so far all they have been doing is arguing/ screaming/ making each other cry/arguing/ hurting each other feelings etc. I don't get it. When they are not together they are the best kids in whole wide world. They listen to me, they eat their food, they wash their hands whenever I tell them to . But today, I AM PULLING my hair out one by one. lol They both fight to get my attention. What is it with them??? How many times I have told them that hurting each other feelings is not good, bringing each other down is even worse. Regina understands everything, but Gabriel( of course he is only 3,5) has no clue what being good boy means. lol
I just wish there was way of teaching them that they don't have to fight to get my attention. They have it 24/7. :)
Regina still has runny nose- clear runny nose. It has been runny for 2 months . Not worse, not better just same .
Her hearing seems pretty good. Even better than in St Jude.
*On Tuesday I have to take her to unilab so they can draw her blood and check how her counts are doing. For me, she seems perfectly fine. Her hemoglobin is probably nice and normal , because she does not act tired, and platelets too are ok( no bruising or bleeding).
I want to teach her to read( she did started showing interest in St Jude), but she shows now no interest of spelling words out or picking up books. She draws, colors, creates cards, clues together little crafts I got her, etc. I wish it included learning to read. :)
I just wish there was way of teaching them that they don't have to fight to get my attention. They have it 24/7. :)
Regina still has runny nose- clear runny nose. It has been runny for 2 months . Not worse, not better just same .
Her hearing seems pretty good. Even better than in St Jude.
*On Tuesday I have to take her to unilab so they can draw her blood and check how her counts are doing. For me, she seems perfectly fine. Her hemoglobin is probably nice and normal , because she does not act tired, and platelets too are ok( no bruising or bleeding).
I want to teach her to read( she did started showing interest in St Jude), but she shows now no interest of spelling words out or picking up books. She draws, colors, creates cards, clues together little crafts I got her, etc. I wish it included learning to read. :)
Wednesday, February 2
I can not belive what I did. :)
While we were in Memphis I started thinking about all the people I know/communicate with here in CA. Belive me or I hacve no relationships whatever with my neighbors. SOmetimes I do take my neighbors trash out( next door), loan her our trash cans( what a relationship, lol) but nothing else.
About week ago , after we returned home, I wrote 2 page letter to our neighbors( on our street). It was hardest thing for me to do. I HAVE NEVER, EVER, EVER done something like that in my life.
I brfeifly( 2 pages) explaned them who we are and what has happened past 7 months. I printed them out, closed them in to envelopes and sticked them to their mailboxes/ doors/ in personal. I felt weird doing it. Not bad weird, but exited weird. I usually wait when people aproach me. Now it is my turn to aproach them and see where it goes from here
I just want to know more about people I see every day , exchange HI's , smilies or just ignore( lol)
I guess I am more in me then I thought ;)
About week ago , after we returned home, I wrote 2 page letter to our neighbors( on our street). It was hardest thing for me to do. I HAVE NEVER, EVER, EVER done something like that in my life.
I brfeifly( 2 pages) explaned them who we are and what has happened past 7 months. I printed them out, closed them in to envelopes and sticked them to their mailboxes/ doors/ in personal. I felt weird doing it. Not bad weird, but exited weird. I usually wait when people aproach me. Now it is my turn to aproach them and see where it goes from here
I just want to know more about people I see every day , exchange HI's , smilies or just ignore( lol)
I guess I am more in me then I thought ;)
Hurray!!!
My Toshiba is up and running again :) Everything that was important to me is still in here ;)
Now I can start finish printing my letters. ( I will write about this later)
Now I can start finish printing my letters. ( I will write about this later)
Tuesday, February 1
\WINDOWS\SYSTEM32\CONFIG\SYSTEM ---HELP!!!!!!
Windows XP could not start because the following file is missing or corrupt: \WINDOWS\SYSTEM32\CONFIG\SYSTEM
We have tried to reboot it but nothing. When I turn computer on it gives me that error message and it does not read even cd. It keeps turning on and off itself. I am so frustrated now. I was printing out some invitations and next thing I know is that stupid F*(^(*g error. GRRRRRRR
ALL my latest pics are in that computer- EVERYTHING is in there. I was thinking about backing up all the files tonight but I guess not. I am about to cry. PLEASE, PICTURES be there.
We have tried to reboot it but nothing. When I turn computer on it gives me that error message and it does not read even cd. It keeps turning on and off itself. I am so frustrated now. I was printing out some invitations and next thing I know is that stupid F*(^(*g error. GRRRRRRR
ALL my latest pics are in that computer- EVERYTHING is in there. I was thinking about backing up all the files tonight but I guess not. I am about to cry. PLEASE, PICTURES be there.
Monday, January 31
Spring cleaning. TO early???
WoW , it is last day of the month January. TIme does fly past quickly. Regina is up and is allready creating memories. She ran out of good stickers and now she is cutting pics out from magazines and cluing them to scrapbook. I guess we need to do some sticker shopping. lol
Gabriel is back in school and he was very lucky to get same teacher and kids he had before. I thought he will threw some horrible temper tantrum , but for my surprise he did not . Great going Gabriel.
AND I am living on a budget. I gave my husband all my credit cards and for return I got sertain amount cash, and now I have to live with that amount until january is over. I really needed to do something about my spending problem. Whenever I felt stressed I hit the stores and bought things I did not need. Of course I bought things I wanted but I did not NEED them. So now I can only buy things that I are NEEDED( food, food and more food). I hope it takes care of my spending problems. (WIsh me luck)
We did more cleaning today - this time we cleaned up drawers and organised our dvd/vhs/cd library/. We also are planning to clean up our closets. I have to threw away my FAT clothes. lol If I don't do that now, I have more reasons to eat , and before I know it I'll be back on size 22.( Yeap, 3,5 years ago that was my size ) Sounds fun ? huh?
Gabriel is back in school and he was very lucky to get same teacher and kids he had before. I thought he will threw some horrible temper tantrum , but for my surprise he did not . Great going Gabriel.
AND I am living on a budget. I gave my husband all my credit cards and for return I got sertain amount cash, and now I have to live with that amount until january is over. I really needed to do something about my spending problem. Whenever I felt stressed I hit the stores and bought things I did not need. Of course I bought things I wanted but I did not NEED them. So now I can only buy things that I are NEEDED( food, food and more food). I hope it takes care of my spending problems. (WIsh me luck)
We did more cleaning today - this time we cleaned up drawers and organised our dvd/vhs/cd library/. We also are planning to clean up our closets. I have to threw away my FAT clothes. lol If I don't do that now, I have more reasons to eat , and before I know it I'll be back on size 22.( Yeap, 3,5 years ago that was my size ) Sounds fun ? huh?
Sunday, January 30
Lazy me. :)
I am sorry for the lack on entries. . I have time but same time I dont. I have so much to do around the house and outside the house it is grazy. But it is really nice up here. Home sweeet home;)
We have been organizing and cleaning and messing up our house over and over again. Don't tell Regina and Gabriel, BUT we threw away about 5 garbage bags full of toys. I felt sad to threw some of the toys away but , they don't really play with most of the stuff anyway. I need space for new toys ;)
Regina is doing great. She keeps herself busy doing what she likes to do. Today she has been creating memories. She and Sija cut out pictures from old magazines and she clued them to her little book. Her apetite is getting greater and greater.m Her new favorite food is turkey sandwiches and Starbucks Sugar cookies. She also likes Wahoos kid bowls ( rice and beans ). She laughes more she is more active and she just loves being back home :)
Tomorrow I will take Gabriel back to preshool. He will pick up from where he left off :)
We have been organizing and cleaning and messing up our house over and over again. Don't tell Regina and Gabriel, BUT we threw away about 5 garbage bags full of toys. I felt sad to threw some of the toys away but , they don't really play with most of the stuff anyway. I need space for new toys ;)
Regina is doing great. She keeps herself busy doing what she likes to do. Today she has been creating memories. She and Sija cut out pictures from old magazines and she clued them to her little book. Her apetite is getting greater and greater.m Her new favorite food is turkey sandwiches and Starbucks Sugar cookies. She also likes Wahoos kid bowls ( rice and beans ). She laughes more she is more active and she just loves being back home :)
Tomorrow I will take Gabriel back to preshool. He will pick up from where he left off :)
Saturday, January 29
We are Home
Are you as exited as exited we are? Finally we are home. Home sweet Home.
Our flight was pretty good. Looong but good. No bumpy weather. Everything went really smooth. We did had to change our planes once, In Minneapolis. But no big deal. We had our tickets, and Memphis flight was on time. J
I hate airports. They make me so emotional. All the commotion that is going on in them. Everybody is in a hurry, mean, mad. It is just one of those places that causes stress. We did have little incident in Memphis airport. Everybody who knows me well enough , knows that my suitcases are always extra heavy. And most of the time I have been pretty lucky and avoided those 25 dollar fees , if bags are over 50 lbs. Well, today my bag weighed 67 lbs. ( 2 Reginas). They told me that they can do nothing about it and I have to pay that 25 dollar fee. Of course prior entering the airport I was in such a good mood because finally I am feeling soo light that I can go home. And let me also mention that I ONLY had one suitcase. If I had 2 suitcases weighing 30 lbs each there would not have been a problem at all. But since I crammed everything into one suitcase , big deal was made out of it. Finally they called St Jude and problem was taken care off. But of course my mood was ruined and I was in tears. ( airports tend to make me cry. I cry in every airport I enter)
Regina did really well during both flights. She ate a lot. She was snacking during both flights and even ate bunless turkey sandwich( that’s what she calls it) hehe .
Now I have to start organizing my house. Somebody wants to come and help me out.? Huh? One of the promises I made for new years was to get rid of all the junk( that I don’t need) , but I am packrat. I have to keep everything. And saying everything I mean EVERYTHING. I am trying to brake that bad habit and make my house clutter free. With that I hope I also reduce stress. And most importantly, If house is nice, clean and organized , I will know where everything is and I don’t have to worry about looking for stuff to the places where it is not.J So , send me some organizing vibes, or come and help me. ;)
My crew made home before me. They got home on Friday around 3 pm. So , Nick picked us up from airport and brought me beautfiul red tulips( I love tulips).
Right now it is 7.02 am in CA. Sun is shining, view from my vindow is so relaxing and peacful and everything is green. I love my home and family :)
Regina was ready to sleep alone in her room. She did not wake up once during the night. :) That's called growing up ( i guess ;)
AND- i kept one of my mini promises. When people asked me what is the first thing I do when I get home , I told them I take bath and light the candles I did it. I have to mention that My husband made bath ready for me :) OH, It felt sooo relaxing and wonderful. You have no Idea how much I missed taking bubble baths :)
Our flight was pretty good. Looong but good. No bumpy weather. Everything went really smooth. We did had to change our planes once, In Minneapolis. But no big deal. We had our tickets, and Memphis flight was on time. J
I hate airports. They make me so emotional. All the commotion that is going on in them. Everybody is in a hurry, mean, mad. It is just one of those places that causes stress. We did have little incident in Memphis airport. Everybody who knows me well enough , knows that my suitcases are always extra heavy. And most of the time I have been pretty lucky and avoided those 25 dollar fees , if bags are over 50 lbs. Well, today my bag weighed 67 lbs. ( 2 Reginas). They told me that they can do nothing about it and I have to pay that 25 dollar fee. Of course prior entering the airport I was in such a good mood because finally I am feeling soo light that I can go home. And let me also mention that I ONLY had one suitcase. If I had 2 suitcases weighing 30 lbs each there would not have been a problem at all. But since I crammed everything into one suitcase , big deal was made out of it. Finally they called St Jude and problem was taken care off. But of course my mood was ruined and I was in tears. ( airports tend to make me cry. I cry in every airport I enter)
Regina did really well during both flights. She ate a lot. She was snacking during both flights and even ate bunless turkey sandwich( that’s what she calls it) hehe .
Now I have to start organizing my house. Somebody wants to come and help me out.? Huh? One of the promises I made for new years was to get rid of all the junk( that I don’t need) , but I am packrat. I have to keep everything. And saying everything I mean EVERYTHING. I am trying to brake that bad habit and make my house clutter free. With that I hope I also reduce stress. And most importantly, If house is nice, clean and organized , I will know where everything is and I don’t have to worry about looking for stuff to the places where it is not.J So , send me some organizing vibes, or come and help me. ;)
My crew made home before me. They got home on Friday around 3 pm. So , Nick picked us up from airport and brought me beautfiul red tulips( I love tulips).
Right now it is 7.02 am in CA. Sun is shining, view from my vindow is so relaxing and peacful and everything is green. I love my home and family :)
Regina was ready to sleep alone in her room. She did not wake up once during the night. :) That's called growing up ( i guess ;)
AND- i kept one of my mini promises. When people asked me what is the first thing I do when I get home , I told them I take bath and light the candles I did it. I have to mention that My husband made bath ready for me :) OH, It felt sooo relaxing and wonderful. You have no Idea how much I missed taking bubble baths :)
Wednesday, January 26
Last preparations...
Nick , Sija And Gabriel left to Ca this morning. Now it is only Me and Regina. :) I am doing my last packing and trying to fit all the stuff that is left here to one suitcase. lol I think I can do it. Regina is also packing her suitcase. She has packed and unpacked at least 10 times allready. lol. She is really, really exited to go back home and meet his old friends again. But so am I. I really want to go home and clean my house. I have not cleaned for 4 months, Sija( my sis) did all the cleaning here. :) She is cleaning maniac, she loves to clean (Just like my mom). I am more of a messmaker. I guess that is a nice balance ;)
I payed a quick visit to hospital today. I had to pick up letter that I will give Reginas doctor in CA, and I also got a CD with Latest MRI. I preffered to have the first MRI( where tumor was present), but I guess Valerie was to busy and forgot;). That is ok. I can always go back and ask for it. :o) Yes, her brain looks nice and clean :)
OK. Today is my last day online. If you want to reach me tomorrow please call me (949) 290 6958 .
I want to thank you all for being part of Reginas story. I will continue to write as often I get a chance. Don't forget to check for updates.
I know lot of you are checkin up on us. Please leave us a not that you where here spying on us. ;) We love hearing from you :)
I payed a quick visit to hospital today. I had to pick up letter that I will give Reginas doctor in CA, and I also got a CD with Latest MRI. I preffered to have the first MRI( where tumor was present), but I guess Valerie was to busy and forgot;). That is ok. I can always go back and ask for it. :o) Yes, her brain looks nice and clean :)
OK. Today is my last day online. If you want to reach me tomorrow please call me (949) 290 6958 .
I want to thank you all for being part of Reginas story. I will continue to write as often I get a chance. Don't forget to check for updates.
I know lot of you are checkin up on us. Please leave us a not that you where here spying on us. ;) We love hearing from you :)
Tuesday, January 25
U P D A T E
I happily announce that we fit all our stuff to our car. yeah. Car is fully packed. I am really glad that I don't have to ride back to ca.lol
Me and nick Went to Texas De Brazil ( restaurant) to have dinner. Food was amazing as always the best in Memphis( brazilian barbeque). Of course I had to eat tooo much, but it was worth it. Parmesan Chicken- the best
Bacon wrapped fillet Mignon- it just melted in my mouth- these were my favorites. But they serve around 15 different meats, and servers sircle from table to table to offer fresh meats whenever you are ready to eat.
Then they have salad/ cold bar. My favorite from there are smoked salmon, marinated jalapeno peppers with carlic, asparagus with strawberry vinnegrete, tomatoes with pesto sauce, sundried tomatoes, mushrooms, bamboo shoots, ... lets just say. I LIKE IT ALL. If you are not meat lover, you will be after visiting this place. MEAT just melts in your mouth- thats how good it is. :)
Nick went back to hotel and sija is out having some midnight fun ;) It is just me my kids and suitcases :D
Me and nick Went to Texas De Brazil ( restaurant) to have dinner. Food was amazing as always the best in Memphis( brazilian barbeque). Of course I had to eat tooo much, but it was worth it. Parmesan Chicken- the best
Bacon wrapped fillet Mignon- it just melted in my mouth- these were my favorites. But they serve around 15 different meats, and servers sircle from table to table to offer fresh meats whenever you are ready to eat.
Then they have salad/ cold bar. My favorite from there are smoked salmon, marinated jalapeno peppers with carlic, asparagus with strawberry vinnegrete, tomatoes with pesto sauce, sundried tomatoes, mushrooms, bamboo shoots, ... lets just say. I LIKE IT ALL. If you are not meat lover, you will be after visiting this place. MEAT just melts in your mouth- thats how good it is. :)
Nick went back to hotel and sija is out having some midnight fun ;) It is just me my kids and suitcases :D
One, two , three- AND PULLLLLLL.
Today was eventful day for us. Reginas line got pulled. She was such a big girl about it. Nurse came in, I removed dressing from line, nurse but on her blue clowes, counted to three and voilaa- out it was. It took only about 2 seconds and her line was out. She did tear up a little but did not start screaming or crying. I was amazed how well she did. She had to stay still for 10 minutes and then we left the hospital :) I have her line with me, it is in plastic bag.. I told Nick that I will frame it and hang it on Dining room wall. lololol
Regina is feeling really well now. She is really exited to go home. :O) I guess we all are.
Now I have to make sure she stayes dry for 2 days, and in 7 days she can take baths allready. :) SHe havent had a bath for 6 months. Don't get me wrong, she is all clean, besides baths there are other options keeping your kids clean ;)
Regina is feeling really well now. She is really exited to go home. :O) I guess we all are.
Now I have to make sure she stayes dry for 2 days, and in 7 days she can take baths allready. :) SHe havent had a bath for 6 months. Don't get me wrong, she is all clean, besides baths there are other options keeping your kids clean ;)
Monday, January 24
Monday
I am counting days. I am. Today my dear husband will arrive and take my car back to CA. Sija and Gabriel will travel with him- GOOD LUCK. They will need that. Gabriel is little chatterbox and will keep them entertained during the trip. lololol
On Sunday( we are not here anymore), Goulds will come to Target house and bring full spa with them. moms will get massages, facials, haircuts, I think even hair colored. And Target house moms don't have to pay anything for it. :) They all deserve this kind of treat once in a while. :)
All Regina does is talks about her Best friend heather. So does gabriel. They are even packing their bags so when we finally go back home they are ready to leave for a sleepower. lol They are too funny.
On Sunday( we are not here anymore), Goulds will come to Target house and bring full spa with them. moms will get massages, facials, haircuts, I think even hair colored. And Target house moms don't have to pay anything for it. :) They all deserve this kind of treat once in a while. :)
All Regina does is talks about her Best friend heather. So does gabriel. They are even packing their bags so when we finally go back home they are ready to leave for a sleepower. lol They are too funny.
Sunday, January 23
Sunday- nothing exiting
Carol- I have been thinking a lot about you. I hope snow does not block you going out and doing things you love doing. I wish I could send you some good weather vibes to NY, but weather here in memphis is C O L D and windy. I think I forgot to mention to you that Regina was very happy to receive packs from you. SHe has been coloring and drawing pics . Everybody is amazed how well she colors. I think she even colors better than me. :D
Today I went to Michaels graft store. I just love going there. Right now they are getting all the Valentines Day and St Patricks day stuff up. I love valentines day :D
Regina is doing ok. I think her cold is getting little worse because she tells me that she can not swollow food because it hurts. :( But she tries. :)
Most of my stuff is packed and ready to leave memphis. 5 more days. Oh man. Times goes by so slow now. lol I was surprised how fast these 5 months passed and now I can not wait until these final days pass by. Oh I am so unpatient.
Beth and Heather- Regina told me that she also is very exited to go back and meet Heather. She sayed that she will pack her suitcase and move to heathers place for a while. lol I guess that FOR A WHILE means sleepover. Trust me, Regina is ready to have some Girl fun. Only thing I am little worried is that She is Spoiled to rotten here, and has little attitude problems. I hope that HEather will teach her how to behave well and not argue about every little thing :D
Today I went to Michaels graft store. I just love going there. Right now they are getting all the Valentines Day and St Patricks day stuff up. I love valentines day :D
Regina is doing ok. I think her cold is getting little worse because she tells me that she can not swollow food because it hurts. :( But she tries. :)
Most of my stuff is packed and ready to leave memphis. 5 more days. Oh man. Times goes by so slow now. lol I was surprised how fast these 5 months passed and now I can not wait until these final days pass by. Oh I am so unpatient.
Beth and Heather- Regina told me that she also is very exited to go back and meet Heather. She sayed that she will pack her suitcase and move to heathers place for a while. lol I guess that FOR A WHILE means sleepover. Trust me, Regina is ready to have some Girl fun. Only thing I am little worried is that She is Spoiled to rotten here, and has little attitude problems. I hope that HEather will teach her how to behave well and not argue about every little thing :D
Saturday, January 22
FOOD IS GOOD
Tonigh was the night that The Pittmans cooked dinner in RMH. Oh man. Before I went there with kids I promised myself that I only eat a little. YEAH< RIGHT. You just can not eat little because food they make is just toooo good. Vegetable casserole, sweet potato dish, grilled chicken breast and legs, hamburgers, corn salad....... and more and more and more......
Before we started this whole ST JUDE experiense I was vegetarian. BUT , you just can not be vegetarian in MEMPHIS. At least not me. I have to experiense this whole new unhealty way of staying healthy. Do I make any sense now? lol
Anyway- food was excellent, desserts were good and kids behaved really well. I feel full and happy today.
Did you guys know that Memphis is unhealtiest city in USA and besides that , rated fourth fattest city in usa( meaning overweight ). And I so understand why it is like the way it is.
Before we started this whole ST JUDE experiense I was vegetarian. BUT , you just can not be vegetarian in MEMPHIS. At least not me. I have to experiense this whole new unhealty way of staying healthy. Do I make any sense now? lol
Anyway- food was excellent, desserts were good and kids behaved really well. I feel full and happy today.
Did you guys know that Memphis is unhealtiest city in USA and besides that , rated fourth fattest city in usa( meaning overweight ). And I so understand why it is like the way it is.
Friday, January 21
I dream......
There is nothing much to report. We did not have to go to St Jude today. Instead we just went out and enjoyed good weather until both kids started acting up. ( about hour). Regina is doing pretty well. Her runny nose is getting more runny. I guess she has to be but back on some new antibiotics, because the ones she just finished are doing nothing to make her feel better.
Lot of the kids are down with colds and sinus problems so I think maybe Regina cought something from somebody in the hospital. Her apetite is still very weird. Things she liked yesterday make her sick today and things she liked today will make her gag tomorrow. She is off the TPN and now we have to really , really encourage her to eat as much as possible.
We are getting more and more exited about leaving to CA. First thing I will do is take a looooong bath and burn candles--- AND buy some fresh REAL flowers. I havent had a bath for 4,5 months. I so need one now!! I also have to get some baths salts- lavender, eucalypt, peppermint, lemon. And New candles of course and manicure, and pedicure. I am so ready to leave this place.
I don't mind living in Target house, but I miss all the things I used to do and I took for granted. Now everything I don't have here seems so much more luxorius.
OK. Here I go again talking about myself. But there is really nothing else to report. :)
Lot of the kids are down with colds and sinus problems so I think maybe Regina cought something from somebody in the hospital. Her apetite is still very weird. Things she liked yesterday make her sick today and things she liked today will make her gag tomorrow. She is off the TPN and now we have to really , really encourage her to eat as much as possible.
We are getting more and more exited about leaving to CA. First thing I will do is take a looooong bath and burn candles--- AND buy some fresh REAL flowers. I havent had a bath for 4,5 months. I so need one now!! I also have to get some baths salts- lavender, eucalypt, peppermint, lemon. And New candles of course and manicure, and pedicure. I am so ready to leave this place.
I don't mind living in Target house, but I miss all the things I used to do and I took for granted. Now everything I don't have here seems so much more luxorius.
OK. Here I go again talking about myself. But there is really nothing else to report. :)
Thursday, January 20
I am doing my Happy Chicken dance. :D:D:
First I want to apologize for not updating yesterday, but nothing interesting happened;)
Today I have the best news for you. REGINAS SCANS WERE CLEAN :D SPARKLING CLEAN. What a feeling. I feel like a mountan has lifted from my shoulders and I can finally breath:)
Regina is feeling great. She has been singing and dancing . She had lumbar puncture done, but after anestesia wore off , she was up and playing. She is very exited about us going home and her feeling better and better every day :) YEAh, that's my girl.
AND--------- I finally got my wish. On Tuesday Reginas line will be removed. YES. I was so scared to bring up the subject today. I knew what the answer was going to be. NO. But after I explained him and valerie why line has to be removed, they both agreed and on Tuesday Regina is going to be freeeeee. :))))) I am so happy with Reginas progress.
Thanks to Dr Gajjar and his dedicated staff and research plan, to B clinic , Regina is here with us and Ready to take next big step in this wonderful life. I am speachless. Speachless in a good way :)
Today I have the best news for you. REGINAS SCANS WERE CLEAN :D SPARKLING CLEAN. What a feeling. I feel like a mountan has lifted from my shoulders and I can finally breath:)
Regina is feeling great. She has been singing and dancing . She had lumbar puncture done, but after anestesia wore off , she was up and playing. She is very exited about us going home and her feeling better and better every day :) YEAh, that's my girl.
AND--------- I finally got my wish. On Tuesday Reginas line will be removed. YES. I was so scared to bring up the subject today. I knew what the answer was going to be. NO. But after I explained him and valerie why line has to be removed, they both agreed and on Tuesday Regina is going to be freeeeee. :))))) I am so happy with Reginas progress.
Thanks to Dr Gajjar and his dedicated staff and research plan, to B clinic , Regina is here with us and Ready to take next big step in this wonderful life. I am speachless. Speachless in a good way :)
Tuesday, January 18
It sucks to be me
AHHHHH. Today is one of those" I FEEL HORRIBLE" days. My allergies are acting up. I am all congested and sneeze million times a day. I finally went to walgreens and got myself some benadryl. BUT I forgot one little thing about that powerful medicine. Yes, it did make me feel 10 times better but it also made me so sleepy /drowzy I was unable to walk. About ten minutes after I took medicine I fell asleep.
Regina was taking Benadryl all the time for her medicine allergies and before platelets and blood and it always made her sleepy. Why did I not think about it before I took the med. WAAAAAH.
REgina is doing good. She is playing dress up with my clothes and is all over the place. Her runny nose is back and seems like meds are not working as well as anticipated. Tomorrow I have to drop a note to doctor Gajjar about it.
OH, I think I forgot to mention to you all that Regina is on extra fluids during the night. Because one antibiotic that she is taking is hard on kidneys. She is not drinking as much fluids as needed and those 600 ml of fluids help her keep hydrated.
quote- The liver and kidneys work together to remove Acyclovir from the body. Patients with disease in these organs may have additional possible complications. Dehydration or kidney disease may increase blood levels of Acyclovir, increasing the chance of side effects. Make sure you are well hydrated while taking Acyclovir, or it may cause problems with the kidney.
Regina was taking Benadryl all the time for her medicine allergies and before platelets and blood and it always made her sleepy. Why did I not think about it before I took the med. WAAAAAH.
REgina is doing good. She is playing dress up with my clothes and is all over the place. Her runny nose is back and seems like meds are not working as well as anticipated. Tomorrow I have to drop a note to doctor Gajjar about it.
OH, I think I forgot to mention to you all that Regina is on extra fluids during the night. Because one antibiotic that she is taking is hard on kidneys. She is not drinking as much fluids as needed and those 600 ml of fluids help her keep hydrated.
quote- The liver and kidneys work together to remove Acyclovir from the body. Patients with disease in these organs may have additional possible complications. Dehydration or kidney disease may increase blood levels of Acyclovir, increasing the chance of side effects. Make sure you are well hydrated while taking Acyclovir, or it may cause problems with the kidney.
Monday, January 17
Quick update.
Regina had audiology evaluation today. Her hearing is getting worse. Her hearing loss is rated moderate. Not the news I wanted to hear but I was ready to take whatever comes. I have noticed that she does not hear as well as before and she asks huh, what, more often.
Her speach went very well. She has little trouble with th sounds but that is ok. She does not know how to for her thong to make it sound righ.
Tomorrow we have no apointments
Wednesday- MRI
Thursday- Spinal Tap.
And maybe end of the week her line will be removed -;)
Her speach went very well. She has little trouble with th sounds but that is ok. She does not know how to for her thong to make it sound righ.
Tomorrow we have no apointments
Wednesday- MRI
Thursday- Spinal Tap.
And maybe end of the week her line will be removed -;)
Saturday, January 15
Cupcake Heaven.
Yummmm! Me and regina made some cupcakes today. With one package we made 12 cupcakes with 3 different flawors. Regina wanted to have original flawor- she got it, I wanted to have banana/cinamon- so I added some bananas and cinnamon in 1/3d, and 3d flawor is chocolate . Room smells soooo good right now.
Before cupcakes I went to see movie. ELEKTRA. I think it was good movie. My kind of movie with comic book action and poor acting jobs. But action was all good. And if you like Jennifer Garner then 10+.
What I DID not like about my todays movie experiense was that movie theater was DIRTY. YUCK!!! Cleaning staff had not cleaned up after previous presentation and all the popcorn, empty soda cups, papers , straws where all over floors and chairs. I have never seen such a mess in movie theater. I guess my next nightmare will be about popcorn attacing me and I am stuck in one of those empty soda cups. LOL.
Anyway, it was slow day. Regina keeps doing well. She takes her meds pretty good and has not thrown up once. Our TPN mashine arraived last night around 12.15 and after that I was so tired and lazy to move to bed. I fell asleep on sofa.
BTW- Cupcakes are ready now. OH, THEY TASTE HEAVELNY!!!!! With some chocolate frosting on top and vanilla ice cream on side. You have no idea what you are missing :) Better than - you know what.......;) No strings attached. ANd they make you fat - just like marrige does. I am telling the truth, and nothing but the truth
Love Diana
FOOD INTAKE( Regina)
Chips- 300 CAL
meatball with sauce
36 oz of milk
water
3 bites of ice cream
1 tsp Chocolate frosting and 3 bites of cupcake.
Sunday:
2 meatballs with sauce
14 mini choco cookies-150cal
noodles about 5 mouthfulls
milk 30 oz
cinnamon bread 1/2 slice
Before cupcakes I went to see movie. ELEKTRA. I think it was good movie. My kind of movie with comic book action and poor acting jobs. But action was all good. And if you like Jennifer Garner then 10+.
What I DID not like about my todays movie experiense was that movie theater was DIRTY. YUCK!!! Cleaning staff had not cleaned up after previous presentation and all the popcorn, empty soda cups, papers , straws where all over floors and chairs. I have never seen such a mess in movie theater. I guess my next nightmare will be about popcorn attacing me and I am stuck in one of those empty soda cups. LOL.
Anyway, it was slow day. Regina keeps doing well. She takes her meds pretty good and has not thrown up once. Our TPN mashine arraived last night around 12.15 and after that I was so tired and lazy to move to bed. I fell asleep on sofa.
BTW- Cupcakes are ready now. OH, THEY TASTE HEAVELNY!!!!! With some chocolate frosting on top and vanilla ice cream on side. You have no idea what you are missing :) Better than - you know what.......;) No strings attached. ANd they make you fat - just like marrige does. I am telling the truth, and nothing but the truth
Love Diana
FOOD INTAKE( Regina)
Chips- 300 CAL
meatball with sauce
36 oz of milk
water
3 bites of ice cream
1 tsp Chocolate frosting and 3 bites of cupcake.
Sunday:
2 meatballs with sauce
14 mini choco cookies-150cal
noodles about 5 mouthfulls
milk 30 oz
cinnamon bread 1/2 slice
Friday, January 14
Herpes-UPDATE ABOUT REGINAS TPN
WELL, About 10 15 pm Reginas TPN pump broke down. I called coram and they sayed somebody will call me shrotly. I am waiting and waiting . Nothing. No call. I called them again and they sayed that they have called me couple of times. Yeah, I checked messages and of course they have called me. But my (^)*%^ phone just did not ring. I waitset perfect hour waiting for them to call me because of some stupid no ringing phone. NOW I have to wait another 1,5 hours before they send me another TPN bump , because this one has to be serviced. Oh boy. Why evrything has to happen middle of the night.
Well, Reginas labs came back positive( on her arm) , and that huge blister is herpes indeed. So Now she is taking antibiotics for it 4 times a day. She is on 4 different meds right now and and total times she has to take them orally 12 times a day. SHe does mind taking them because I tell her that It makes her tummy feeling better( I am such a liar- bad Momma. )
Today Country Cares was visiting hospital LOOOOOOOOOOOOOTS of people and lots of famous country singers( I am not into country music, so I have no Idea who they where, but I was told they are really, really famous. Lol
Then Regina got her monthly antibiotic shot, actually it took hour in medicine room , and it did make her sick , so she threw up because of meds.
On Monday she has speech, audiologi, A/t and E clinic lab check.
19th of January is very important day. It is her MRI and spinal tap day. You have no idea how much I want to forget about all what have happened to Regina and how it has affected us. Even though Regina is doing great I am worried sick. There are nights when I wake up and watch her to sleep. SOmetimes she is sleeping so peacfully it scares me. I try to wake her to make sure she is ok and alive. I don't want to be scared. I know all of us are scared one time or other about loved ones , but this time everything is different. Now I am worried about every step she takes. I am worried about how she speaks, how she looks, when those chemo side effects are starting to show, how well will she develop. How can I help her to make feel better about herself.
There are so many things I want to be answered right now. But only time will show what, when , where , how.
Why it is so hard to live one day at a time??
Well, Reginas labs came back positive( on her arm) , and that huge blister is herpes indeed. So Now she is taking antibiotics for it 4 times a day. She is on 4 different meds right now and and total times she has to take them orally 12 times a day. SHe does mind taking them because I tell her that It makes her tummy feeling better( I am such a liar- bad Momma. )
Today Country Cares was visiting hospital LOOOOOOOOOOOOOTS of people and lots of famous country singers( I am not into country music, so I have no Idea who they where, but I was told they are really, really famous. Lol
Then Regina got her monthly antibiotic shot, actually it took hour in medicine room , and it did make her sick , so she threw up because of meds.
On Monday she has speech, audiologi, A/t and E clinic lab check.
19th of January is very important day. It is her MRI and spinal tap day. You have no idea how much I want to forget about all what have happened to Regina and how it has affected us. Even though Regina is doing great I am worried sick. There are nights when I wake up and watch her to sleep. SOmetimes she is sleeping so peacfully it scares me. I try to wake her to make sure she is ok and alive. I don't want to be scared. I know all of us are scared one time or other about loved ones , but this time everything is different. Now I am worried about every step she takes. I am worried about how she speaks, how she looks, when those chemo side effects are starting to show, how well will she develop. How can I help her to make feel better about herself.
There are so many things I want to be answered right now. But only time will show what, when , where , how.
Why it is so hard to live one day at a time??
Thursday, January 13
Short day.
Today Regina had labs drawn and quick visit with Dr Gajjar. :) What surprised me was , Reginas apointment was on time. We were invited in to clinic 5 minutes before her apointment time. That has never happened before. And before I could wink Dr Gajjar was in room and checking on Regina :)
They had to swab her arm ( she still has that ugly blister/ herpes lookalike) that does not want to heal. Well, it heals, and then again after while it starts oozing. Nobody has no idea why it is there or what is it. Maybe tomorrow we know more about it, if not, They will scratch skin off from that part and swab it then. Tara told me most likely they do it on 19th, because then she will be sedated for MRI and will n0t feel a thing. :)
Tomorrow we will have to spend some time in medicine room - some meds she has to breath in. and then we will see nutritionist . Hopefully Sunday will be her last day on TPN :)
On monday I try to talk to DR Gajjar one more time about taking Reginas line out. Only meds she has to take while we go home are oral and line stayes in only for blood tests. I was told that she maybe has to get her first blood test in 2 weeks after we get home. Dr Gajjar told me half joking that how should I feel if everybody will stick needels in me all the time. lol
FOOD:
15 potatoe chips- 150 cal
I slice of cinnamon bread
1,5 Burger king chicken tenders
3 glasses of milk
Sprite
3 teespoons of Chocolate Ice Cream for breakfast.
They had to swab her arm ( she still has that ugly blister/ herpes lookalike) that does not want to heal. Well, it heals, and then again after while it starts oozing. Nobody has no idea why it is there or what is it. Maybe tomorrow we know more about it, if not, They will scratch skin off from that part and swab it then. Tara told me most likely they do it on 19th, because then she will be sedated for MRI and will n0t feel a thing. :)
Tomorrow we will have to spend some time in medicine room - some meds she has to breath in. and then we will see nutritionist . Hopefully Sunday will be her last day on TPN :)
On monday I try to talk to DR Gajjar one more time about taking Reginas line out. Only meds she has to take while we go home are oral and line stayes in only for blood tests. I was told that she maybe has to get her first blood test in 2 weeks after we get home. Dr Gajjar told me half joking that how should I feel if everybody will stick needels in me all the time. lol
FOOD:
15 potatoe chips- 150 cal
I slice of cinnamon bread
1,5 Burger king chicken tenders
3 glasses of milk
Sprite
3 teespoons of Chocolate Ice Cream for breakfast.
Wednesday, January 12
Little confused( edited)
I told you about Reginas tummy problems. Well, I got the results back while ago and in Blinic they told me that everything is notmal. Nothing to worry about. Poop was negative but her urine did show little viral infection, but nothing to worry about. Today Eclinic nurse called and told me that her poblem HAS to be treated with antibiotics and she prescribed some for Regina. She sayed if it is not treated it may get worse. Or come back later on or 100 other things. She has to take meds for 10-14 days and if 2 poop cultures come back negative she can stop taking them. How frustrating.
We decided to go out to eat today. I was hoping maybe regina will eat more if we are out. I was so right. We went to Chilis. She had 1/4th of pizza, ( kids size), 5 pieces of penne pasta with marinara sauce, 3 tsp of chocolate ice cream, 1/3 white chocolate tipped marshmallow, 5 sips of coke and right now she is eating skittles. She really is sweet tooth. I need to make her eat meat. She does not want to hear a thing about the meat. Then we did little shopping and now I am overtired. .Nick is finally back from China. He informed me that Our neighborhood looks great and rain has not done much damage. :) Lucky us :)
We decided to go out to eat today. I was hoping maybe regina will eat more if we are out. I was so right. We went to Chilis. She had 1/4th of pizza, ( kids size), 5 pieces of penne pasta with marinara sauce, 3 tsp of chocolate ice cream, 1/3 white chocolate tipped marshmallow, 5 sips of coke and right now she is eating skittles. She really is sweet tooth. I need to make her eat meat. She does not want to hear a thing about the meat. Then we did little shopping and now I am overtired. .Nick is finally back from China. He informed me that Our neighborhood looks great and rain has not done much damage. :) Lucky us :)
Tuesday, January 11
Soon , very soon!!!
Today was great:) Dr Yusuf finally got a smile from Regina. :) 4 months Regina was hiding her face from Dr Yusuf, and finally today she spoke to him and smiled. :) I think she is happy that we are finally back in E clinic with Dr Gajjar. :) IT was such a sweet moment for me. :) She even got pictures taken with Dr Yusuf and Katie and she smiled( Yes, it is important for me).
Then we saw Dr Gajjar and Valerie. Lot of my guestions were answered today. One thing I am not very happy about is that Reginas line has to stay in because she will be off the TPN and she will need electrolytes, and her blood has to be checked often etc, so Dr Gajjar thinks it is best if her line remains in her for next 3 months to prevent all needle sticking. :( I am not exited about it. I AM NOT. 3 more months away from St Jude , 3 more months changing her dressing 3 times a week, 3 more months of flushing her line every morning. Regina thinks it is great Idea to keep her line in because she does not like poking. We'll see. They are talking about letting us go end of next week if everything goes well. They will reduce the amount of TPN today and monitor her kidneys. There are so many little things that has to be done before we leave.
Of course her ANC dropped , it was 1800 today. And it will take time until it recovers . Everything will happen gradually.
Regina is eating more and more. Today she had whole corndog , pear, chips, 3 glasses of milk, apple juice. And I think she will eat more later. :) Yeah for her :)
Right now I am worried her getting of the TPN , I hope everything will go fine and she has no side effects after she gets off.
We are off to see movie now. We have seen Scooby Doo 2 allready, but tonight somebody comes to Target house and shows it on Target house big screen. :)
Then we saw Dr Gajjar and Valerie. Lot of my guestions were answered today. One thing I am not very happy about is that Reginas line has to stay in because she will be off the TPN and she will need electrolytes, and her blood has to be checked often etc, so Dr Gajjar thinks it is best if her line remains in her for next 3 months to prevent all needle sticking. :( I am not exited about it. I AM NOT. 3 more months away from St Jude , 3 more months changing her dressing 3 times a week, 3 more months of flushing her line every morning. Regina thinks it is great Idea to keep her line in because she does not like poking. We'll see. They are talking about letting us go end of next week if everything goes well. They will reduce the amount of TPN today and monitor her kidneys. There are so many little things that has to be done before we leave.
Of course her ANC dropped , it was 1800 today. And it will take time until it recovers . Everything will happen gradually.
Regina is eating more and more. Today she had whole corndog , pear, chips, 3 glasses of milk, apple juice. And I think she will eat more later. :) Yeah for her :)
Right now I am worried her getting of the TPN , I hope everything will go fine and she has no side effects after she gets off.
We are off to see movie now. We have seen Scooby Doo 2 allready, but tonight somebody comes to Target house and shows it on Target house big screen. :)
Monday, January 10
Easy day.
Nothing much is going on in here. Regina is eating more and more and asking for snacks. That is great. No hospital today.
This morning I got a haircut. Goulds people come to Target house and give Target house families free haircuts. So I just got tiny trim. I want my hair to grow longer , so I could have extensions.
Then I felt like going to movies. I decided to watch Darkness. I like scary movies and this was one of them. But I was disapointed. Yes, it was scary but I HATED the ending. It felt like I have to come back tomorrow and then they show Part II. HATED it. I really wanted to go to see White Noise but i did not want to wait 3 hours until the mocie started. After Movie I bought 2 scoops of Ice cream for Regina, but she sayed she does not want it and of course I ate it. BAD Diana, we parents are not supposed to eat our childrens leftovers. I just did not want threw 5 dollars down to trash.
And I think that is about it. Really, my life is full of events, but same time nothing interesting is happening.
Hey Californians. How's weather???
This morning I got a haircut. Goulds people come to Target house and give Target house families free haircuts. So I just got tiny trim. I want my hair to grow longer , so I could have extensions.
Then I felt like going to movies. I decided to watch Darkness. I like scary movies and this was one of them. But I was disapointed. Yes, it was scary but I HATED the ending. It felt like I have to come back tomorrow and then they show Part II. HATED it. I really wanted to go to see White Noise but i did not want to wait 3 hours until the mocie started. After Movie I bought 2 scoops of Ice cream for Regina, but she sayed she does not want it and of course I ate it. BAD Diana, we parents are not supposed to eat our childrens leftovers. I just did not want threw 5 dollars down to trash.
And I think that is about it. Really, my life is full of events, but same time nothing interesting is happening.
Hey Californians. How's weather???
Sunday, January 9
Saturday, January 8
Weekend.
Today started 7 am for me. I went to gym to do my cardio for one hour. Then 11.30 we went to see Unfortunate Events movie- it was ok, nothing special. Then I did some shopping and my favorite part of the day was visiting RMH , where Lauren King Min. cooked dinner for RMH families. Target house Families where also invited and we payed a visit. Dinner was great as always- very tasty food. :) and atmosphere was fantastic :) I got to meat Debbi who I havent seen for a while and it was nice to talking to her . Sadly I had to leave to soon , because Regina announced she was bored. So we left, and now we are back in target house. I feel full( why I have no willpower to say no to food- desserts, chocolate)
Tomorrow we will have to go to hospital and get our labs. Hopefully they are all fine. Regina is feeling better today. No " poop" problems. All the meds she has to take are making her throw up( antibiotics, apetite stimulants, tummy meds, allergy meds, and antinausea meds- last ones are the only ones that does not make her throw up. I feel so bad that I have to feed them , but she has to take them . :(
Kailen and Felicia- we think and talk about you often. I hope everything is fine with Keilen. We miss you and can not wait to meet you when you get up here .:)
Tomorrow we will have to go to hospital and get our labs. Hopefully they are all fine. Regina is feeling better today. No " poop" problems. All the meds she has to take are making her throw up( antibiotics, apetite stimulants, tummy meds, allergy meds, and antinausea meds- last ones are the only ones that does not make her throw up. I feel so bad that I have to feed them , but she has to take them . :(
Kailen and Felicia- we think and talk about you often. I hope everything is fine with Keilen. We miss you and can not wait to meet you when you get up here .:)
Friday, January 7
LAst day in B clinic
We dont have to go to Hospital until Tuesday, and then it is E clinic with Dr Gajjar :)
Regina is not feeling very well. She has a runny nose and tummy problems. If she poops 2 more times today I have to take her back to hospital and they have to find out what causes her Diarrhea. She also has to take antibiotics for cold and apetite stimulants , because we really do want to get off the TPN. Today she have not eaten anything and she shows no signs of hunger. I told nutritionist lets keep her on TPN over the weekend because I don't think she will eat much during this " down " time.
Her counts are revovering nicely. Everything looks grate. I wish she had attitude makover, because her lately negative attitude is starting to annoy me a bit. Everything is bad for her, people are bad, doctors are bad, home is bad, weather is bad, food is bad, friends are bad>..... MANNER are B A D. I really hope she'll change because enough is enaough and she has to understand when and where, but she just ignores me when I tell her about how to behave or when to say Hi, and you welcome and thank you.
About me, my "scars" are not hurting me at all, BUT I got killer headace. I think it is mostly because I am over tired. Last night I only got 5 hours of sleep, night before that 4 hours. Most hours I got to sleep here in st Jude over this 6 months is 6 hours and that happened only maybe once in 2 months. After we get back to home I really need to get away from all of it for a while. I really do. Just me, nobody else. I want to spend a day in the spa, get a manicure and pedicure, get my hair colored, loose 15 lbs, start eating healhy again( right now I am in vending mashine Diet, and it is not working, lol). I have to start exercising more , take my friends out to eat, give my husband MUCH needed attention, start cooking again( I can come to your house and cook dinner for you, just call me and I'll be there ;) )). THen I want to scrapbook more , have ADULT conversation , eat slice of caramel cheescake, dress up and go clubbing, drink cosmopolitans, bleach my teeth, get my permanent retainer out. And I really want to go to Hollywood and just walk around. But most of all, I want our FAMILY to be family again. And I want to REDECORATE our master bedroom, because it looks horrible. If you check out our photo album(links) then you see what I mean. I want it to make our getAway retreat, stress free zone. :)
OK, OK, this is 1/3 of all the things I NEED to do. Soon you hear about the rest of the list :)
Regina is not feeling very well. She has a runny nose and tummy problems. If she poops 2 more times today I have to take her back to hospital and they have to find out what causes her Diarrhea. She also has to take antibiotics for cold and apetite stimulants , because we really do want to get off the TPN. Today she have not eaten anything and she shows no signs of hunger. I told nutritionist lets keep her on TPN over the weekend because I don't think she will eat much during this " down " time.
Her counts are revovering nicely. Everything looks grate. I wish she had attitude makover, because her lately negative attitude is starting to annoy me a bit. Everything is bad for her, people are bad, doctors are bad, home is bad, weather is bad, food is bad, friends are bad>..... MANNER are B A D. I really hope she'll change because enough is enaough and she has to understand when and where, but she just ignores me when I tell her about how to behave or when to say Hi, and you welcome and thank you.
About me, my "scars" are not hurting me at all, BUT I got killer headace. I think it is mostly because I am over tired. Last night I only got 5 hours of sleep, night before that 4 hours. Most hours I got to sleep here in st Jude over this 6 months is 6 hours and that happened only maybe once in 2 months. After we get back to home I really need to get away from all of it for a while. I really do. Just me, nobody else. I want to spend a day in the spa, get a manicure and pedicure, get my hair colored, loose 15 lbs, start eating healhy again( right now I am in vending mashine Diet, and it is not working, lol). I have to start exercising more , take my friends out to eat, give my husband MUCH needed attention, start cooking again( I can come to your house and cook dinner for you, just call me and I'll be there ;) )). THen I want to scrapbook more , have ADULT conversation , eat slice of caramel cheescake, dress up and go clubbing, drink cosmopolitans, bleach my teeth, get my permanent retainer out. And I really want to go to Hollywood and just walk around. But most of all, I want our FAMILY to be family again. And I want to REDECORATE our master bedroom, because it looks horrible. If you check out our photo album(links) then you see what I mean. I want it to make our getAway retreat, stress free zone. :)
OK, OK, this is 1/3 of all the things I NEED to do. Soon you hear about the rest of the list :)
Thursday, January 6
2 more days in Bclinic
I can not belive that on monday we will go back to E clinic( back to dr Gajjar). I told Regina and she asked if it means that No more DR Yusuf??? hahah. And when I told her that that is right she started jumping up and down and clapping her hands. I guess she thinks it is dr Yusufs fault that Chemo made her that sick. hehhe
She is doing much better. After she got her -hopefully- last blood transfusion , she was in all smiles and happy. But when nurses and doctors came in to sing her a song( NO MORE CHEMO), she started crying and told me that they are to loud, She was still cranky from benadryl.
We also saw nutritionist. And Regina is gaining weight, and since now she only gets 60% of her nutritional needs( TPN) , she shows signs of hunger and even eats more than ever before. :) So I guess somwhere in the end of next week , they take her off from TPN. That is great news, BUT, she has to eat at least 500 cal per day. I guess I can make her do that. ANything to get her off the TPN.
About me- today is the day that my teeth get pulled. I am telling myself NO BIG DEAL, but the thought of teeth pulled still scares me. I even had dream about me being without any teeth. And let me tell you, it did not look pretty.
Carol !!! We have not forgotten you. Regina was really happy when she got the blow pens and patterns. She did some great cards and was really happy to try something new :) Thank you !! I hope you got something little that we got for you :)
She is doing much better. After she got her -hopefully- last blood transfusion , she was in all smiles and happy. But when nurses and doctors came in to sing her a song( NO MORE CHEMO), she started crying and told me that they are to loud, She was still cranky from benadryl.
We also saw nutritionist. And Regina is gaining weight, and since now she only gets 60% of her nutritional needs( TPN) , she shows signs of hunger and even eats more than ever before. :) So I guess somwhere in the end of next week , they take her off from TPN. That is great news, BUT, she has to eat at least 500 cal per day. I guess I can make her do that. ANything to get her off the TPN.
About me- today is the day that my teeth get pulled. I am telling myself NO BIG DEAL, but the thought of teeth pulled still scares me. I even had dream about me being without any teeth. And let me tell you, it did not look pretty.
Carol !!! We have not forgotten you. Regina was really happy when she got the blow pens and patterns. She did some great cards and was really happy to try something new :) Thank you !! I hope you got something little that we got for you :)
Wednesday, January 5
NO MORE CHEMO. Some of the nurses, and doctors came downstairs to medicine room to sind NO MORE CHEMO song for Regina. She was supposed to get her party on December 21st, but ICU does not give patients that kind of special treatment , and they had no Idea that it was Reginas last day of chemo. So today she got her special treat just minutes after her ( hopefully) last blood transfiusion. :)
Tuesday, January 4
Subscribe to:
Posts (Atom)